Carer to my younger sister who has very severe M.E.
Joined March 2023
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@wesstreeting and @AshleyDalton_MP, my younger sister & best friend has very severe #MyalgicEncephalomyelitis. She was fit, healthy and loved life. Now she is bedridden, tube fed, needs 24 hr care and is suffering so much. Please #FundThePlan and be #ThereForME
Rosie retweeted
„This is very common: many doctors, I’m told, seem unaware of the new guidelines and react defensively when challenged. In many practices, GET has simply been rebranded as “building tolerance” or “pacing up” or “a little more activity each day”.
theguardian.com/commentisfre…
Rosie retweeted
📰 New article in today's Guardian:
"Abandoned, dismissed and gaslighted: there is no excuse for the way M.E. sufferers have been betrayed."
Huge thanks to George Monbiot for trying to keep this issue in the public eye. #MECFS #r4today
theguardian.com/commentisfre…
Rosie retweeted
"Of course, as there is no effective treatment, it’s a difficult situation for doctors as well as patients. But even worse than no solutions is false solutions & a dangerous, gaslighting, even punitive approach to a terrible disease" George Monbiot
#ME
theguardian.com/commentisfre…
Rosie retweeted
@YvetteCooperMP @andyburnham
It's up to you to finally end this appalling injustice which has been inflicted on patients with M.E. for decades.
#ME #MEcfs #MedTwitter #pwME
"I’ve spent my working life covering neglected issues. But few are neglected like the devastating chronic condition ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome)." - George Monbiot
#pwME #ME #MEcfs #MedTwitter
theguardian.com/commentisfre…
Rosie retweeted
"I’ve spent my working life covering neglected issues. But few are neglected like the devastating chronic condition ME/CFS (myalgic encephalomyelitis, or chronic fatigue syndrome)." - George Monbiot
#pwME #ME #MEcfs #MedTwitter
theguardian.com/commentisfre…
Rosie retweeted
theguardian.com/commentisfre…
Many thanks George Monbiot @guardian for such a bold & clear article & for being on the right side of history again. I hope your call for a public inquiry gains traction. As a carer for my 19yo who has very severe ME, I hope this happens in my lifetime.
Rosie retweeted
We're excited to share something we've been working on for a while.
ThereForME is now a registered charity! 🥳
1/4
ALT We’ve got news! ThereForME is now a registered charity. ThereForME is a Charitable Incorporated Organisation registered in England and Wales. Registered Charity No. 1218590.
Rosie retweeted
The sense of shock George conveys at how people with ME have been failed is exactly why we founded ThereForME.
And it’s why we’re so determined to bring the reality of ME directly to the people with the power to act.
Who’s with us?
theguardian.com/commentisfre…
Rosie retweeted
"Abandoned, dismissed and gaslighted: there is no excuse for the way ME sufferers have been betrayed"-
George Monbiot @guardian 24.9.26
#pwME #ME #MEcfs #MedTwitter #MEAwareness
theguardian.com/commentisfre…
🤖 Made with AI
Rosie retweeted
George Monbiot was nominated for last year’s ThereForME Advent Calendar for using journalism to shine a light on failings faced by pwME.
Today, he writes that too often people with ME are abandoned, while discredited treatments continue to be prescribed.
He’s right.
Rosie retweeted
Why hasn't the current Health Secretary @YvetteCooperMP implemented the Delivery Plan for #MECFS? It's unconscionable that someone who's responsible for the NHS would leave some of the most severely ill patients without any sort of specialist inpatient treatment whatsoever.
Rosie retweeted
You may have noticed there's a new PM in town!
Today's #ThereForME post from our co-founder @GoreLloyd outlines a problem his government will inherit when it comes to ME.
Houston, we have a data problem.
Link in next post 👇
ALT "Data on ME matters because numbers drive resources and political attention. If the number under-represents the scale of the issue, the response will be insufficient." - Emma Gore-Lloyd, #ThereForME. New #ThereForME Substack post
Rosie retweeted
Chronic fatigue syndrome care services are ‘not sufficient’ to meet needs, HSE admits irishtimes.com/health/2026/0…
Rosie retweeted
Yvette Cooper had #ME around ‘96 for a couple of years. Obviously she recovered. If this was via brain retraining we’re sunk but if she remembers how dreadful it was and considers herself one of the lucky ones we may be lucky. Obviously this could have implications for #LongCovid
