Making the most of things. Passionate about influencing services to reflect the needs of those who use them. Member of @RCObsGyn's Women's Network. Views own.
Under the blue dot
Joined August 2011
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A week ago, I was preparing to share my views at @APPG_WH on women's #informedchoice. With @JanePlumb & @RCObsGyn I advocated for respect of women and our agency; health professionals' openness to learning; & access to the info we need, when we need it and in the way we need it.
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Fab to speak l at today's @APPG_WH as RCOG's Women's Voices Lead. #InformedChoice needs to be business as usual for all healthcare, especially around pregnancy
@runsteadjones shared her positive experience & I a #groupBStrep story where lack of informed choice led to tragedy – at Croydon, London
Homemade badges by my son for us all to wear today! Raising awareness of Vascular Ehlers Danlos Syndrome. #REDS4VEDS #VascularEDS @AJsChallenge
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"The film’s cinematography is bolstered by Anthony Weeden’s powerful score, which is at once ethereal and ominous, building the film’s slow burn intensity."
Hear that @anthonyweeden ☺️🎼🥰 hammertonail.com/reviews/the…
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At our last Charities Research Involvement Group meeting, we spoke about ways of keeping people engaged in research.
@AMHursey shared this great ‘Staying Connected’ toolkit developed by the @ParkinsonsUK participation steering group.
Check it out 👉🏽parkinsons.org.uk/research/s…
Great to have young people from @TheBRITSchool running drama and dance sessions for children via @CPParkTrust. Loved seeing everyone learning from the experience. More of this please!
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Co-creating our payment policy: a personal reflection from co-producer @Al_Richards_786 please have a read coproductioncollective.co.uk…
ALT A pile of giant gold coins with a miniature figure sat on top of the pile reading a newspaper
A must read for any clinician who encounters a vascular EDS patient. Great blog by Clare who writes so well about her experience and how frightening it can be when people don't understand your condition. From @AJsChallenge #vEDS
I agree! The presentation by @neilajryan was so very clear. I learnt a lot and feel much more informed. I now understand the importance of this area of work and explaining it in an accessible way.
Thank you @neilajryan for such a fascinating talk on #genomics and the @RCObsGyn taskforce. Vital that women understand how genomics can assist them in making informed decisions
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Measuring the invisible work of millions of volunteers is challenging yet critical to help us understand their value
📢Join the @ilo @UNVolunteers dialogue to learn new approaches & tools for measuring volunteering
🗓️4 March, 2-3 pm CET
Register today: bit.ly/3sAgNvt
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Looking for ways to build #evaluation and learning into your #CoProduction? Get practical tips from @NPCthinks evidence and impact lead, @EParker000 and friends of ours @UCL Evaluation Exchange eventbrite.co.uk/e/making-ti…
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☎️ We need your thoughts on our helpline. ☎️
It's important for us to understand what we do well, but also how we can improve our services.
Please take 5 minutes to complete our survey below by 25 October DEADLINE: 👉ow.ly/mWr150BZCfa👈
#StrepB #groupBStrep
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Also to add that we have recently published on the important but often 'hidden' role of PPI leads, led by @elspeth_mathie researchinvolvement.biomedce…
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SUDC UK co-founders have lit candles this evening as part of the #waveoflight2020 - one candle for each family registered with SUDC UK.
We wish you a gentle evening. Their light shines on 💙🌟
#waveoflight #waveoflove
#blaw2020 #sudcawareness #childbereavement #cdr #charity
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There’s lots of evidence that #involvement in #research studies adds value. But does #PPI in research add value for charities? An @slginvolvement report details the 10 ways that #PPI helps charities do their jobs better. Full report here: bit.ly/3nda2O2 @AMRC
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We are very excited about our workshop which will be taking place on Friday!
We have an excellent group of people from across the UK bringing their widely varied experiences & views to help find the Top 10 questions for future reseach in #diabetes & #pregnancy!
Thanks @Mental_Elf for a fantastic session today. For anyone interested in future #publicengagement seminars you can sign-up via ucl.ac.uk/psychiatry/events/…
I’ll be banging on about public engagement, mental health research and social media next week (Tue 29 Sep 2-3pm BST).
It’s a FREE Zoom webinar and everyone’s invited. Drop @jechan213 a line if you fancy joining us.
And tweet me if you have any specific questions 👍
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Read the story of founding SUDC UK on Instagram or Facebook facebook.com/137758415236797…
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Fab charity, looking for very special people. Could it be you? Click the link to find out more.
#StrepB #charitytrustee #charitychair #makeadifference – at Keymer, England
We're looking for our next Chair & new Trustees.
It's an exciting time for #groupBStrep prevention - are you the right person for one of these key roles?
Click the link to find out more, & please RT.
#trustee #chair #recruitment
gbss.org.uk/latest-news/recr…