https://teapaw.org/t.co/zM9Em1IIrP
Los Angeles, CA
Joined September 2016
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JIM IS WALKING A MILLION STEPS FOR JUNE SCLERODERMA AWARENESS MONTH
Jim Hines is walking in support of his wife Roberta who is living with scleroderma. Follow his journey @ myscleroderma.org/jims-2022-…
ANNOUNCING NAME
THE SCLERODERMA FOUNDATION OF CALIFORNIA
visit our new website myscleroderma.org
Join us as we honor and remember our heroes this Memorial Day. #memorialday #scleroderma
If you’re interested in getting the #moderna #covid19 #vaccine in #montebello Garfield Health Center is holding a drive tomorrow! No proof of residency or insurance required!
We want to see YOUR 2021 STEPPING OUT TEAM POSTERS! Team SoCal went for an 80s neon vibe. What do you guys have in mind? #challenges #teamsocal #steppingout2021 #scleroderma #losangeles
SclerodermaCa retweeted
February is #BlackHistoryMonth, and Sydney is spreading awareness about scleroderma. "I find it extremely important to share my story this month,“ she says, because of the “lack of awareness about scleroderma plus the higher incidence of this disease within the Black community.”
SclerodermaCa retweeted
New Post: Rare Disease Day at NIH, Set for March 1, Growing Year by Year buff.ly/3dyRV2M
Get all those questions regarding #scleroderma and #dentistry answered at our combined support group meeting tomorrow! Register here zoom.us/meeting/register/tJA…
SclerodermaCa retweeted
#RareDiseaseDay is just a few days away! At Castle Creek, we’re committed to collaborating with patient advocates and #advocacy organizations to support people living with underserved disorders. Learn more: castlecreekbio.com/patients-…
Join Dr. Susan Nyanzi next Wed Feb 24 from 4-6p PST for a City of Hope hosted ONLINE cooking class!! Learn how to make these amazing black bean burgers and get all the info on the nutrition from the Dr. herself! Register here: eventbrite.com/e/savoring-ho… #scleroderma #sclerowarrior
Don’t forget to register for our combined support group meeting THIS SATURDAY! zoom.us/meeting/register/tJA…
Our office will be closed today in honor of Presidents Day! We will be back tomorrow rested and ready to support you! #PresidentsDay #scleroderma
KN95s, cutting our own hair, renting ebooks from the library, and upgraded loungewear—- what are you guys doing to protect and care for yourself in year two of the pandemic? #scleroderma #sclerowarrior #selfcare
SclerodermaCa retweeted
Scleroderma Young Adults (Ages 18-42) are invited to join the SYNC Meet Up this Friday February 12, 2021 at 7pm Eastern. For more details, email [email protected] or [email protected]. See you then!
Repeat after me: I DESERVE a new sweater. Scleroderma.org/socalshop sweaters and other cozy things here to save the day 😘 #scleroderma #socal #sclerowarrior
Is it just us, or are masks disappearing around your house like socks? Stock up on some extras at scleroderma.org/socalmasks #maskup #scleroderma #sclerowarrior #maskkeyswallet
“If you can’t fly then run, if you can’t run then walk, if you can’t walk then crawl, but whatever you do you have to keep moving forward.” -MLK Jr our office is closed today as we reflect on the lessons of this great leader.
Don’t forget our combined support group meeting tomorrow morning at 10:30am PST with Dr. Ginny Maril. Register here: zoom.us/meeting/register/tJI… #scleroderma #sclerowarrior #support
