starcazm

#prayerforRowanBear Rowan Bear Update 23 August 2025 “I lift up my eyes to the hills. From where does my help come? My help comes from the Lord, who made heaven and earth.” Psalm 121:1-2 Dear friends and family, Thank you for your prayers and support. The last couple weeks have been a roller coaster as we received good news at first, then a very difficult update. Good update: Our sweet boy Rowan had a 24 hour EEG this past Sunday where the neurology team confirmed that Rowan has responded well to the injection protocol. They did not see any seizures, and we have not seen any seizures at home for over 2 weeks now. Thank you God. We have 3 more weeks of daily ACTH injections before our next follow up. Difficult update: Our hearts are heavy this week as we found out our sweet boy Rowan has been diagnosed with a severe mitochondrial DNA disorder and Leigh Syndrome. This is a rare disorder that inhibit the mitochondria of our cells to produce energy and a rare disease (Leigh) that causes the central nervous system to degenerate. There is no cure for these and life expectancy is often low. At this point, we have been referred to diet and therapy specialists to work on managing symptoms and trying to slow the progression of the disease. Prayer request: Please continue to pray for Rowan and our family as we grapple with this news. Pray that God would give us wisdom for walking out caring for our sweet boy for as long as God lets him stay with us. We are so grateful for each of you and to God. Your prayer and support have helped us realize that we don’t have to do this alone. We will keep sending updates as we walk through this With love, Austin, Angela, Rosa and Rowan Bear “For you created my inmost being; you knit me together in my mother’s womb. I praise you because I am fearfully and wonderfully made; your works are wonderful, I know that full well. My frame was not hidden from you when I was made in the secret place, when I was woven together in the depths of the earth. Your eyes saw my unformed body; all the days ordained for me were written in your book before one of them came to be.” Psalm 139:13-16 #prayerforRowanBear

#prayerforRowanBear Rowan Bear Roberts Update 06 August 2025 Dear friends and family, Our sweet boy Rowan is back home for now, getting much needed rest and sleep. We’re still waiting on a diagnosis, but Rowan is on week 1 of 6 week program of ACTH intramuscular injections to treat seizures while we wait on further test results. We are trying to rest while we monitor him and report vitals to Cook til we return to Fort Worth this Monday for another EEG. Words fail to express our appreciation of all of you. Your love, prayer and support are priceless to us. Please continue to pray for Rowan, that he recovers well, responds to the ACTH injections, and does not get sick during this 6 weeks (the injections are immune suppressing). Please continue to pray for the neurology team as the test results continue to come in and they get a clearer picture on his condition. We are immensely thankful for you and will keep sending updates. Love, The Roberts Family #prayerforRowanBear

#prayerforRowanBear Rowan Bear Roberts Update 04 August 2025 Dear friends and family, It is Day 6 at Cook Children’s. Thank you for praying for our sweet boy Rowan. Last night was a real answer to prayer: Despite him being totally exhausted, the seizure meds kept Rowan awake til midnight but then he slept for 8 hours, with just one spurt of seizures around 1am. Thank you God. Angela got some much needed rest too. Today, we continue injections, run more labs, and do echocardiogram and electrocardiogram. Rowan needs to be eating and drinking more so that is a point of prayer. Please continue to pray for Rowan rests in between all the tests. Please pray for the neurology team. Please share the GiveSendGo link. We are so grateful for you all and will keep sending updates. Love, The Roberts Family #prayerforRowanBear

Hey friends, our baby is in the hospital. Please visit the campaign to see what’s happening and please consider sharing as we are in need of prayer and support right now. Thank you, Austin and Angela givesendgo.com/RowanRoberts

Rowan Bear Roberts night #4 at hospital 💙

2/ Last night we got good news & bad news: The good news is the CT scan came back clear of any major things so that eliminates tumors, bleeding, fluid or swelling. The bad news is they identified “mildly dysmorphic frontal horns of both lateral ventricles of the brain…