@kyleabryant and @seanbaumstark have a rare disease. This podcast is all about cultivating the courage to live beyond any circumstance and laugh along the way.
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Joined February 2017
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Two Disabled Dudes retweeted
Sponsored by @ReataPharma. Watch for Important Safety Info & see Prescribing Info: bit.ly/SKYCLARYS-PI.
5/20 is #FA Awareness Day, & there’s finally a treatment option for FA–SKYCLARYS. Learn more at bit.ly/3KnYtQy, & talk to your doctor to see if it’s right for you.
Two Disabled Dudes retweeted
.@HorizonNews created a program for people living with rare diseases to connect & share their stories! Our
@KyleABryant of @2DDPodcast visited #HorizonTherapeutics to share what #RAREis means to him.
Share your own #RAREis story by visiting rareiscommunity.com
Two Disabled Dudes retweeted
You can hear more about this from #thedudes at @2DDPodcast in ep185! We’re excited to follow our friends at Google in their mission to improve life through their tech…
Are you an English-speaking Android user with a speech impairment? We invite you to provide feedback on Project Relate, a beta app that improves speech recognition technology for people with speech impairments→ g.co/ProjectRelate #a11y #accessibility youtu.be/e6z5rEgoqnI
Two Disabled Dudes retweeted
It's raining
So time to listen to @2DDPodcast podcast while in the #TeamAtaxia training studio (garage) on #Tricycle for @SuperheroTri
Event
#Disability #RareDisease #Ataxia
Two Disabled Dudes retweeted
A 7 year old @KIF1A kiddo just stole my @2DDPodcast hat! I guess I’ll have to get another one. You can get your own hat here: twodisableddudes.com/shop/
Two Disabled Dudes retweeted
Reata Pharmaceuticals Completes Rolling Submission of New Drug Application for Omaveloxolone for the Treatment of Patients with Friedreich’s Ataxia
Click here to read the full press release: buff.ly/3Lx0UPA
Two Disabled Dudes retweeted
"Friedreich's - it's me, down to the molecular level. It's me. So I can no more hate it than hate myself." - Joe Boon
I really enjoyed this - youtu.be/zh1vGDrTC3I
#friedreichsataxia #curefa #raredisease #ataxia @attitude_tv
Two Disabled Dudes retweeted
"It kind of took the world ending for me to realize I needed to do something better for myself."
- Musician & #hemophilia advocate @bloodandsound
w/ podcasters @SeanBaumstark & @KyleABryant on @2DDPodcast.
Worth a listen!
🎙️open.spotify.com/episode/0IJ…
🎙️
podcasts.apple.com/us/podcas…
Two Disabled Dudes retweeted
Excited about this!
FARA is excited to announce the Center for Experimental Neurotherapeutics at @StJude in Memphis, TN has joined the Collaborative Clinical Research Network in #FriedreichAtaxia, led #pediatric #neurological disorder specialist- Dr. Richard Finkel. buff.ly/3Hstz72 #CureFA
Two Disabled Dudes retweeted
I asked, Auburn answered. My column made an impact and mobility-impaired students will now be able to reserve seats in the jungle, per @AuburnTigers.
Two Disabled Dudes retweeted
On Nov 1st we hosted a thought-provoking chat on men’s #mentalhealth & #disability, hosted by Ally Macgregor, with guests @KyleABryant & @SeanBaumstark from @2DDPodcast plus @MattLafsays, #FA advocate. You can now watch it here: buff.ly/3kh3HBx
#FriedreichsAtaxia #FANews
Two Disabled Dudes retweeted
Hosts @KyleABryant & @SeanBaumstark humanize #rarediseases and #disability on every episode of the @2DDPodcast.
I'm a fan of their show & enjoyed talking #hemophilia, #identity, #contentcreation, and a whole lot more with them for Ep 163!
👀🎧➡️ twodisableddudes.com/163-act…
Two Disabled Dudes retweeted
Hosts @KyleABryant & @SeanBaumstark humanize #rarediseases and #disability on every episode of the @2DDPodcast.
I'm a fan of their show & enjoyed talking #hemophilia, #identity, #contentcreation, and a whole lot more with them for Ep 163!
👀🎧➡️ twodisableddudes.com/163-act…
Two Disabled Dudes retweeted
Going LIVE in just under 1-hour w/ @boardo87 featuring a segment w/ @SeanBaumstark & @KyleABryant from @2DDPodcast and a LetsTalkMH.com segment w/ @ShuaBragg.
😃
All that, plus, my face almost melted off today.
😱
Hear about it, soon, HERE: fb.me/e/7YOTT8wOU
Two Disabled Dudes retweeted
Larimar Therapeutics Reports Positive Topline Phase 1 Clinical Trial Data Showing Dose-Dependent Increases in Frataxin Levels in Patients with Friedreich’s Ataxia investors.larimartx.com/news…
Two Disabled Dudes retweeted
Did you know ?
our new website has links to #Podcasts
the first one is via @2DDPodcast
ataxia-and-me.org/ataxia-eve…
#kNOwATAXIA #Ataxia #RareDisease #Neurological #disability
Two Disabled Dudes retweeted
Thank you to everyone who participated in the @rideATAXIA Coastal Challenge. Over $98,000 was raised for Friedreich's ataxia (FA) research! After 10 ten days, the East Coast team was crowned the winner. Ultimately, everyone is on the same team with one goal to treat and cure FA.
Two Disabled Dudes retweeted
Thank you all for sharing your #RareDiseaseTruth There have been more than 10,000 tweets, & we have reached nearly 5 million people!
It has been exhausting, cathartic, & powerful.
I hope you will join us this evening as we think about next steps to create faster pathways.
#RareDiseaseTruth EPIC ZOOM ROOM MEET UP!
When: #RareDiseaseDay2021 Feb 28
Moderators: @livinlavidalopo @OnceUponAGene
Register by clicking the link: bit.ly/2ZMODRr
Friends, please share with your RD community far and wide!
The more the merrier!
Two Disabled Dudes retweeted
The 2021 Ataxian Athlete Initiative (AAI) application period is now open! This competitive grant application program, available to people living with Ataxia worldwide, has funded equipment for 79 people since 2009. If interested, apply today. curefa.org/aai
Two Disabled Dudes retweeted
#RareDiseaseTruth my best friend died of #lipodystrophy three years ago. She watches over me in my office. On good days I like to think she’s proud of me. My @2DDPodcast calendar keeps me company as well. This can be a hard life but it a beautiful one.
ALT 2 pictures on a desk. One of two women smiling and one of a sunflower. There is also a desk calendar.