Attorney; Caregiver; Patient Advocate; Healthcare Social Media Enthusiast. RTs≠endorsements. She/Her. Check out @LUNGevity, @TriageCancer, and @UpstageLungCanc!
NC and NYC
Joined July 2009
- Tweets14.5K
- Following4.6K
- Followers1.8K
- Likes19.1K
Pinned Tweet
Six years ago today, my mom was told she might have six months left to live. #Research saved her life. There is #hope. I want this same result for every #cancer patient on Earth. #lcsm #hcsm #oncoalert #medtwitter #advocacy #cancersm #clincialtrials #lungcancer #love #caregiving
Danielle Pardue retweeted
It's World #CervicalCancer Elimination Day
Cervical cancer could be the first cancer EVER in the world to be eliminated, if:
9️⃣0️⃣% of girls are vaccinated
7️⃣0️⃣% of women are screened
9️⃣0️⃣% of women with cervical cancer receive treatment
bit.ly/47GIbzd
#EndCervicalCancer
Danielle Pardue retweeted
I just joined 🦋 as well. It would be great to get more #LCSM folks on there!
There is a growing #LCSM group over at 🦋. The more set up accounts there the easier it is to reproduce the type of network we had here once. It still exists here but smaller, so many have been turned off another option may be good? I think some apps (Buffer) let you cross-post.
Danielle Pardue retweeted
Amazing! 1,000 people have enrolled in the @23andMe Lung Cancer Genetics Study.
Why am I so excited about this Study?
For the first time, the entire lung cancer community is rallying behind a single, comprehensive research effort. Individually, we can make a difference, but together, we can DO more, BE more, and IMPACT more!
Here is the link to the study if you are interested: 23andme.com/lung-cancer/. Please share if you know someone who may be interested.
#LCSM
Exciting news! 🎉 In just six short weeks, 1000 people living with #LungCancer have joined our research initiative! Help us find other people who may be interested by sharing this study today: 23andme.com/lung-cancer/
#WCLC24
Danielle Pardue retweeted
#WCLC24 Highlights #CommunityOncology:
1. #HARMONi2 in mNSCLC
2. #CM77TvsCM816 resectable NSCLC
3. #TROPIONLung01 in 2L mNSCLC
4. #SKIPPirr: AEs for Amivantamab
5. #TNM staging: 9th Ed
6. Personal highlights
#lcsm #OncTwitter @IASLC
1/7
Danielle Pardue retweeted
CanNOT overstate the life changing role of palliative care - but it continues to be underutilized.
Thank you @lpetrillz for
dispelling the myths and emphasizing the need of early intervention!
#WCLC24
Danielle Pardue retweeted
When you see advocates wearing #makecancerlessshitty t-shirts and pins around #WCLC24, THIS is why ⬇️ We talk a lot about cutting-edge treatment and potential cures, but we don't talk enough about HELPING PEOPLE LIVE BETTER!
We see and hear the research and clinical data & about case studies, but what about IMPACT - what does it all mean in the context of a person's life? THAT is the information that is important and meaningful to patients/families, and oncology professionals when discussing treatment options.
@CancerSuckLess #LCSM
In the thoughtful discussion of this morning’s two HER2 presentations, @jillfeldman4 makes an appearance. Drug tolerability is relative! #WCLC24
Danielle Pardue retweeted
Communication isn’t something doctors learn in school, and their degree doesn't depend on it, BUT…..
It is at the heart of patient-centered care!
Just as research and treatments advance, the way we talk about it needs to as well. Using patient friendly language to communicate science empowers patients & families to participate in SDM.
Thank you @JNJInnovMed for recognizing and addressing the communication gap!
#WCLC24 #LCSM
Forever grateful for this dynamo, @jillfeldman4, who identifies a need and finds a way to meet it, in this case creating a patient-friendly lexicon to make scientific research accessible to all
Danielle Pardue retweeted
“I have seen men survive diseases that women do not because of the care that women caregivers provide to their male partner when they are sick-I have only seen that happen once or twice for a female patient being taken care of by a man when she is sick.”
My jaw is on the floor.
Danielle Pardue retweeted
My 38 year old brother in law (with 2 kids under 10) is sitting in a great hospital @OchsnerHealth but is requiring transfer to @UCSDHealth for pulmonary artery endarterectomy. @BCBS New Mexico is road blocking (taking forever to approve) the transfer to a higher level of care despite one of the best hospitals in state of Louisiana saying he needs to go. @UCSDHealth has been excellent and has a bed and can hopefully save his life. Come on @BCBSAssociation PLEASE MOVE FASTER or there won’t be a patient to transfer.
Danielle Pardue retweeted
A week to go before the VOICE Course for Cancer Patient Advocates starts at Barts Cancer Institute, advocates learning the science of research and working with the researchers in the labs.
independentcancerpatientsvoi…
Accepting expressions of interest for 2025.
Danielle Pardue retweeted
🔥🚨Hot off the press.
@US_FDA approved #Lazertinib plus #Amivantamab for 1st line treatment of advanced non-small cell #LungCancer with #EGFR mutations (exon 19 or 21 L858R).
Approval based on results of #MARIPOSA study
✅#mPFS:
23.7 months vs 16.6 months (for Osimertinib).
Danielle Pardue retweeted
Thank you, Dr. @NarjustFlorezMD, for your heart for patients and your vision to make a difference! #LCSM
Danielle Pardue retweeted
.@RamalingamMD: "At this juncture of the 20th anniversary of the discovery of EGFR mutation, I express my sincere appreciation and gratitude to all those whose work made this possible." cancerletter.com/cancer-hist…
ALT Illustration of lungs made of cherry blossoms. Headline: Discovery of EGFR mutations dramatically changed lung cancer treatment — 20th anniversary of landmark findings.
Danielle Pardue retweeted
It has been 20 yr since the discovery of the EGFR mutation ushered in the #precisionmedicine era for #lungcancer. We are celebrating this key milestone and more at this year's @LUNGevity #ILCSC24 Sept 20 - 21. Sign up here to get notified when reg opens: lungevity.org/for-patients-c…
.@RamalingamMD: "At this juncture of the 20th anniversary of the discovery of EGFR mutation, I express my sincere appreciation and gratitude to all those whose work made this possible." cancerletter.com/cancer-hist…
ALT Illustration of lungs made of cherry blossoms. Headline: Discovery of EGFR mutations dramatically changed lung cancer treatment — 20th anniversary of landmark findings.
Danielle Pardue retweeted
TOXICITY is the top reason for checkpoint inhibitor discontinuation
TOXICITY is the top reason for checkpoint inhibitor discontinuation
TOXICITY is the top reason for checkpoint inhibitor discontinuation
TOXICITY is the top reason for checkpoint inhibitor discontinuation
#ASCO24
While not the point of @MaryBoulanger4 study "Patient and caregiver experience with the hope & prognostic uncertainty of immunotherapy," I cannot get past the fact that MORE people stopped immunotherapy based on TOXICITY than because it stopped working 🤯 #ASCO24 #SuppOnc
Danielle Pardue retweeted
If you are a #patientadvocate attending #ASCO24 make sure you visit the Patient Advocate Lounge!
Great opportunity to meet other advocates, network, learn more about @AdvocateCollab and listen to talks including one with @JaniceTNBCmets
Location S404
See you there!
Danielle Pardue retweeted
This! When researchers work w/patient advocates early in their career & listen to what's impt to pts/families!
We often ask/require pt advocate inclusion, but there's no guidance. How do we create more opportunities for these important interactions? @ASCO @AACR @IASLC @ASCOTECAG
Danielle Pardue retweeted
As we anxiously await data to read out at #ASCO24, please remember, People Come First!
@MaryBoulanger4 will present her work that highlights prognostic communication challenges & patients' unmet psychosocial needs - both JUST AS IMPORTANT as OS & HR's.
bit.ly/3R4cXJs
Danielle Pardue retweeted
#ASC024 @ASCO 👩⚕️👩🏾⚕️👩🏻⚕️👩🏿⚕️
Stellar line up of events in the Women Networking Center!
Check the events, and join in on the conversation
@AnaVManana @fumikochino @DeepaRangachari
@HemOncWomenDocs @ASCOPres @jrgralow @OncoAlert
Join us Saturday 6/1 at 1:00 PM at #ASCO24 Women’s Networking Center for a panel discussion on “Strategic Visibility: Elevating Visibility Through Personal Branding”
Honored to share my experience & learn from @fumikochino @DeepaRangachari @jackiebrown_MD
Don’t miss the Women’s Networking Lounge events 🔥🔥
#WomenInMedicine #WomenInOncology
@HemOncWomenDocs @ASCO @UCSFCancer @WomeninOnc
Danielle Pardue retweeted
Open access @ASCO #ASCODailyNews Podcast is now live, bringing you the latest insights on GU abstracts from #ASCO24 @neerajaiims . Stay up-to-date on the cutting-edge research in genitourinary oncology @OncoAlert @montypal
🎙️@neerajaiims of @HuntsmanCancer and Dr. Jeanny Aragon-Ching of @InovaSchar discuss key abstracts in mUC, #mCRPC, #mRCC, and other GU cancers in advance of #ASCO24 on the #ASCODailyNews Podcast: brnw.ch/21wK9q4 #gucsm #OncTwitter
