
A patient led initiative bringing autoimmune patients together to share experiences, support and raise disease awareness. Join our #autoimmunechat community
Joined February 2022
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Autoimmune Chat retweeted
A cure for MS is synonymous with infinite possibility — whether it means increased mobility, an end to MS anxiety, or simply waking up in the morning pain-free. What does a cure mean to you?
Autoimmune Chat retweeted
Chronic Illness #TopicOfTheDay
- OBESITY -
Autoimmune Chat retweeted
🌍 More than 200,000 people live with #lupus in Europe.
🚨 Some #SLE patients have physical disabilities due to the impact of symptoms like fatigue, joint pain, & organ involvement, that could make daily life and work challenging.
#WorldDisabilityDay
#IDPWD
Autoimmune Chat retweeted
ABOUT CROHN'S DISEASE & ULCERATIVE COLITIS
#Crohns Disease & Ulcerative #Colitis are the two main forms of Inflammatory Bowel Disease (IBD) and are not to be confused with Irritable Bowel Syndrome (IBS).
For example, Irritable Bowel Syndrome (IBS) does not produce the destructive inflammation found in Inflammatory Bowel Disease (IBD). Although both share some similar symptoms they are very different illnesses - please be mindful of this and sensitive in your approach when sharing your experiences with others.
Inflammatory Bowel Disease (IBD) = Crohn's Disease & Ulcerative Colitis 👍
Irritable Bowel Syndrome (IBS) = Something else 🙈
Irritable Bowel Disease = Doesn't exist 🙃
💜 @GetYourBellyOut 💜
#GetYourBellyOut provides support, education and advocacy to a global community of people affected by Crohn’s Disease or Ulcerative Colitis (collectively known as Inflammatory Bowel Disease or IBD) 🥰🤗
👉 #CrohnsDisease causes inflammation of the digestive system or gut. Crohn’s Disease can affect any part of the gut, though the most common area affected is the end of the ileum (the last part of the small intestine), or the colon.
The areas of inflammation are often patchy with sections of normal gut in between. A patch of inflammation may be small, only a few centimetres, or extend quite a distance along part of the gut. As well as affecting the lining of the bowel, Crohn’s may also go deeper into the bowel wall.
👉 #UlcerativeColitis causes inflammation and ulceration of the inner lining of the rectum and colon (the large bowel). In Ulcerative Colitis, ulcers develop on the surface of the lining and these may bleed and produce mucus.
The inflammation usually begins in the rectum and lower colon, but it may affect the entire colon. If Ulcerative Colitis only affects the rectum, it's called proctitis, while if it affects the whole colon it may be called total colitis or pancolitis.
⭐️ Crohn’s Disease & Ulcerative Colitis are chronic illnesses. This means it's ongoing and life-long, although you may have periods of good health (remission), as well as times when symptoms are more active (relapses or flare-ups).
🙃 IBD can also affect other areas of the body not only the digestive system - these are referred to as 'extraintestinal manifestations' (such as the eyes, joints or skin etc)
❤️ You can help us and others living with Inflammatory Bowel Disease by sharing this post to raise awareness and consider making a donation via our website. Thank you!
Autoimmune Chat retweeted
Some critics have cartooned #MECFS as alternate science. Did you know that there have been more than 6,000 papers on ME/CFS published in peer reviewed journals and that one current and one previous member of the OMF Scientific Advisory Board are Nobel laureates? #MEAwarenessHour
Autoimmune Chat retweeted
*TRIGGER WARNING*
Last night, Action for ME CEO Sonya spoke to BBC News Scotland’s The Nine programme about the impact of ME and the need to accelerate research.
Sonya appears from 10 minutes in, watch here: bbc.co.uk/iplayer/episode/m0…
Autoimmune Chat retweeted
El lupus es una enfermedad autoinmunitaria crónica y compleja. Los síntomas más comunes son cansancio extremo, erupción malar, inflamación de las articulaciones y fiebre sin causa aparente.
Obtenga más información: bit.ly/lupusespanol
#LupusEnEspañol
Autoimmune Chat retweeted
Chronic Illness #TermOfTheDay
- COGNITIVE HEALTH -
Source: nationalmssociety.org/managi…
Autoimmune Chat retweeted
The relationship between autoimmune disorders and intracranial aneurysms in East Asian and European populations: a bidirectional and multivariable two-sample Mendelian randomization study buff.ly/3WmU9qN
Autoimmune Chat retweeted
Being diagnosed with #PsoriaticArthritis can be confusing and worrying. For someone who has just been diagnosed, it may raise a lot of questions about the condition.
Do you have any advice you can share? Drop your tips below.
Autoimmune Chat retweeted
Paper on Quality of Life of people with #MECFS: “Contrary to popular misconception, anxiety and depression are the least often affected areas in persons with ME/CFS who are most impacted by their inability to perform usual activities.”
mdpi.com/1648-9144/60/8/1215
Autoimmune Chat retweeted
A huge day for us here at Crohn’s & Colitis UK. We were on @BBCBreakfast ! Our Head of Policy & Campaigns, Fern Howard, spoke about what we are doing to make sure people are diagnosed early, get on the right treatment and can live the lives they want to youtu.be/55SLcOaAcZk
Autoimmune Chat retweeted
Comment your heart 💗💚💜❤️💙💛
Remember, you are not alone.
#Crohns #Colitis #InflammatoryBowelDisease #IBD

ALT The title reads: "Sending strength and positivity to..." followed by a series of hearts representing different feelings. (Pink heart) "those who are supporting a loved one." (Green heart) "those who’ve had to cancel plans this weekend." (Purple heart) "those who are experiencing a flair." (Red heart) "those getting used to a new way of life." (Blue heart) "those who are fatigued." (Yellow heart) "those who are doing ok for now." At the bottom it reads, "Remember, you are not alone."
Autoimmune Chat retweeted
Paris Olympics open today!
Even more special as twins @Laviai & @LinaFJNielsen are among Team GB's best Olympic gold medal hopes. Both have MS.
They are running the 4x400m relay. Laviai is also going for gold in the 400m & Lina in the 400m hurdles.
olympics.com/en/news/laviai-…
Autoimmune Chat retweeted
1/2📣 📣 Have you seen our new website? 📣 📣
We are really excited to share that our new website is now live; showcasing the important support we are offering to people living with autoimmune disease.
As well as explaining the power of active listening, how to apply and...
Autoimmune Chat retweeted
Germany 🇩🇪has the highest MS prevalence among all European countries - about 250,000 out of 84m (EMSP - 2019) pop.
And that number is expected to rise 75-85% by 2040 compared to 2015, a @unibielefeld study says.
Why? mirroring global trend + ageing pop.
msard-journal.com/article/S2…
Autoimmune Chat retweeted
#WorldBrainDay - Post 2. The @WHO observes July 22 as World Brain Day. As an #autoimmune disease, celiac has up to 200 symptoms and can impact our physical *and* mental health. #celiacdisease #glutenfree #MedEd @AutoimmuneChat @AutoimmuneGAI #mentalhealth @mghfc @GF_Psychology
Autoimmune Chat retweeted
I couldn't be more excited for all the new things for #sjogrens and other #autoimmunediseases patients! Check out details here: bit.ly/sjogrensspotandsummit






























