
hypermobility + related conditions brain-body neuro research @bsmsmedschool | Chair RCPSYCH NDPSIG | https://xitter.cf/t.co/HayQnrkpZk | @bendybrain.bsky.social
Brighton
Joined September 2018
- Tweets3.2K
- Following1.8K
- Followers8K
- Likes5.5K
Thanks to @MRC @MQmentalhealth @VersusArthritis @BSMSMedSchool. Direct link to paper #hypermobility #neurodivergence #dysuatonomia #pain here frontiersin.org/articles/10.…
BSMS research led by @BendyBrain & funded by @The_MRC, @MQmentalhealth & @VersusArthritis found Neurodivergent people are more than 2x as likely as the general population to have hypermobile joints 🧠 Read more 👉bit.ly/3oiDQuT
@SussexUni @uniofbrighton @SussexUniPress
BendyBrain: Dr Jessica Eccles retweeted
Government Probe into “Over-Diagnosis” of #ADHD & Mental Health over-diagnosis of ADHD and mental health conditions risks overlooking the real picture.
In the recent article in the British Journal of General Practice (BJGP Open), written with GPs, psychiatrists/researchers and educationalists, it highlights why this narrative is misleading.
Too often, the underlying physiological conditions including hypermobility, dysautonomia and related issues are missed or not even considered though, they affect both children and adults and have a profound impact on physical and mental health.
Without recognition and diagnosis, many lose opportunities in education, work and quality of life.
Some end up trapped in cycles of prison and re-offending, where the underlying causes remain unaddressed.
This is not just about health. It is about justice, education and economic wellbeing and health literacy. Diagnosis and support are not “over-diagnosis” they are vital steps to improve lives, reduce long-term costs, and build a fairer society.
📷 pslhub.org/.../9054-streetin…
📷 bjgp.org/content/75/759/462
SEDSConnective is the foremost, user led charity for #hypermobility and #neurodivergence sedsconnective.org
#EDS #HSD #Dysautonomia
BendyBrain: Dr Jessica Eccles retweeted
Our article examining the extent to which people with #hypermobility are at risk of Long COVID was just published in BMJ Public Health, an open access journal. bmjpublichealth.bmj.com/cont…
BendyBrain: Dr Jessica Eccles retweeted
We were proud to be the community patient charity at the “Invisible Impact of COVID-19 on Hypermobility & Neurodivergence” @RoySocMed! Grateful to @BendyBrain @JGjanegreenMBE Kate Toller, Dr Alan Hakim, Dame Jane Dacre, many more & our fab volunteers! 🙏🫶 #hypermobility #neurodivergent
BendyBrain: Dr Jessica Eccles retweeted
Dr Jessica Eccles @bendybrain will be discussing the links between #EDS and #HSD and the brain specifically around #neurodiversity in our upcoming webinar
Join Dr. Eccles on the 24th September at 7pm for this webinar on Zoom.
Register here: shop.ehlers-danlos.org/produ…
BendyBrain: Dr Jessica Eccles retweeted
Replying to @EdwardJDavey @munirawilson
For too long medical, education, and research ignores hypermobility which may play a causative in neurodivergence. Please listen to @BendyBrain Dr Jessica Eccles
BendyBrain: Dr Jessica Eccles retweeted
Excited to catch up with the London Hypermobility Network next week at this event, plus a catch up with @BendyBrain 🙌.
BendyBrain: Dr Jessica Eccles retweeted
I put this slide in every talk I do. From not being able to fill our core training posts we have gone to nearly doubling our numbers. #choosepsychiatry #RCPsychIC
BendyBrain: Dr Jessica Eccles retweeted
This has made our heart melt & break at the same time ❤️
Ms Ann Chamings shares her extremely poignant lived experience navigating neurodivergence throughout life - deeply human reminder of why authentic voices access & diagnosis matter
#NothingAboutUsWithoutUs
@BendyBrain
BendyBrain: Dr Jessica Eccles retweeted
Replying to @rcpsychNDPSIG @BendyBrain
Brief Q&A with the audience :
Neurodivergence and emotional dysregulation - deeper consideration think sensory processing, proprioception, brain-body strategies. A crucial, complex and wider conversation @BendyBrain Dr. Samuel Tromans
BendyBrain: Dr Jessica Eccles retweeted
Thank you for writing and sharing this, Jane! The link between hypermobility and neurodivergence is still under recognised and the link is so important to understand for truly comprehensive care. @JGjanegreenMBE @SEDSConnective and thank you @BendyBrain for all your amazing work
BendyBrain: Dr Jessica Eccles retweeted
We are the foremost hypermobility and neurodivergent, community charity. Volunteers are us! #VolunteersWeek Thank you Here are a couple of our Trustees who oversee the running of SEDSConnective as a charity.
'SEDSConnective has empowered me in countless ways. Most importantly, it’s helping build a better world for our community for those with neurodivergence, symptomatic hypermobility (EDS HSD POTS)' Sonal part 1/2
BendyBrain: Dr Jessica Eccles retweeted
New article
'We need a holistic view of neurodivergent education....we’re living through the most exciting time for autism and neuroscience in education.
Published in #SENMagazine in the autism section but does include neurodivergence such as ADHD dyspraxia TS dyslexia
'We need a holistic view of neurodivergent education......
We rely on children to tell us when they are in pain, but a neurodivergent child may be hampered in communicating interoception (sensing internal stimuli within the body), proprioception (sensing position or movement of the body) and trauma from not being believed.'
#education #Autism section
senmagazine.co.uk/autism/260…
BendyBrain: Dr Jessica Eccles retweeted
Delighted to see this unique conference happening with some of the leading researchers, clinicians in the world on Covid-19, Hypermobility & Neurodivergence
Also delighted to be speaking alongside
BBB (brilliant @bendybrain)
Please share to GPs, clinicians, Educators, policychangers
#hEDS #GJH #Autism #ADHD #dyspraxia #TS
@RoySocMed
Link here for tickets or sponsorship: rsm.ac.uk/events/rheumatolog… July 11th 2025
BendyBrain: Dr Jessica Eccles retweeted
#ADHD #Diagnosis
The amazing @BendyBrain does so much brilliant public engagement work, raining awareness it’s hard to keep up listening to all the podcasts, radio interviews etc.
Thank you for all you do @BendyBrain. Brilliant 👏
Proud to have advocated for #adhd on behalf @rcpsychNDPSIG and address #overdiagnosis debate on @BBCRadio4 World Tonight. We must think creatively with @rcpsych and @GOVUK to ensure people get timely, equitable access to reliable #nd assessments bbc.co.uk/sounds/play/m002cq… (32 mins in)
BendyBrain: Dr Jessica Eccles retweeted
“Your body will never forget how someone made your nervous system feel.” Anon
This quote hits deep for so many of us with EDS & chronic illness.
Our bodies remember the fear, the dismissals, the years without answers.
But they also remember safety. Validation. Those rare moments when someone truly listened.
We still need to create more validations. Still too many dismissals happening to our community.
BendyBrain: Dr Jessica Eccles retweeted
Great understanding and clarity by our Patron @bendybrain Dr Eccles, on the issues of delay for diagnosis of #ADHD and mis/under diagnosis
@BBCWorldTonight
Have many years have you been on the waiting list❓
SEDSConnective Patron @bendybrain and president of the @RCPsychNDSIG on the recent statistics on ADHD @NHSEngland @BBCWorld
Why it matters? Late diagnosis, poor education, poor health, poor employment records, substance misuse, prison numbers, misdiagnosis or rather underdiagnosed but missed are mentioned.
bbc.co.uk/sounds/play/m002cq…
We must ensure #neurodivergence is every clinican’s business. Read statement on waiting list #news here rcpsych.ac.uk/news-and-featu…. And listen to me talk to it on @BBCRadio4
Proud to have advocated for #adhd on behalf @rcpsychNDPSIG and address #overdiagnosis debate on @BBCRadio4 World Tonight. We must think creatively with @rcpsych and @GOVUK to ensure people get timely, equitable access to reliable #nd assessments bbc.co.uk/sounds/play/m002cq… (32 mins in)
Proud to have advocated for #adhd on behalf @rcpsychNDPSIG and address #overdiagnosis debate on @BBCRadio4 World Tonight. We must think creatively with @rcpsych and @GOVUK to ensure people get timely, equitable access to reliable #nd assessments bbc.co.uk/sounds/play/m002cq… (32 mins in)
Please do sign up #MedTwitter
There are only 2 weeks to go until our @rcpsychNDPSIG joint online event with the @rcgp Neurodiversity SIG! Can’t attend live? No problem - you can watch this event live or watch it on demand at your convenience.
Don't miss out, book your place today: bit.ly/4llhQez
BendyBrain: Dr Jessica Eccles retweeted
There are only 2 weeks to go until our @rcpsychNDPSIG joint online event with the @rcgp Neurodiversity SIG! Can’t attend live? No problem - you can watch this event live or watch it on demand at your convenience.
Don't miss out, book your place today: bit.ly/4llhQez





























