Information and advocacy for CLL patients and carers in Ireland. Registered Charity RCN 20158552; CHY 22567. Retweets≠endorsement
Ireland
Joined March 2017
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CLL Ireland retweeted
Disappointed to read this. The need for the new haem ward and equal consideration for blood cancers is contained within our new policy manifesto.
We will continue to do all that we can to advocate for blood cancer patients in Northern Ireland.
bbc.co.uk/news/articles/c60q…
CLL Ireland retweeted
@AnthonyNolan What a beautiful message to receive. Eimear touch some many people and her dying wish is being fulfilled. We won’t mention the donors name. And we thank you for creating home in Eimear’s memory
Anyone aged 16-30 healthy can join the bone marrow donor register
CLL Ireland retweeted
We held our annual Derry Walk in Sept and enjoyed meeting up with supporters, some who have joined us many times before and some who came along for the first time, with everyone united in their aim to raise awareness of blood cancer in Northern Ireland.
#SupportingLocalCharity
Join us in raising awareness for patients who rely on lifesaving plasma medicines and thanking donors who make them possible during International Plasma Awareness Week this October. Learn more at: PlasmaWeek.org #IPAW2026 #PlasmaPowersPossibility via @PPTAEurope
CLL Ireland retweeted
Health Minister Jennifer Carroll MacNeill has confirmed the roll-out of the shingles vaccine will begin early next summer jrnl.ie/7185949
CLL Ireland retweeted
We were pleased to support the family of the late Catherine Sherry during the presentation of a petition calling for CAR-T therapy to be delivered in NI by Justin McNulty at Stormont.
The petition is still live and we encourage everyone to sign it.
change.org/p/bring-life-savi…
#CLL and #BloodCancer will be on the agenda in Brussels on 30th September #BloodCancerAwarenessMonth
From Recognition to Action, the European CLL Association launch their policy brief.
@EHA_Hematology
@LymphomaAction @AssoELLyE @lyle_foreningen @CLLSupport @CllSociety
📢 Blood Cancers & #CLL on the European Agenda-Join us for policy dialogue hosted by Regina Doherty MEP and the launch of #ECLLA’s European Policy Brief.
🗓 Wed, 30 Sep l🕙 10–12 CET l📍 Hub Space, European Parliament, Brussels l 💻 In-person & online
🔗 eclla.org/european-policy-br…
CLL Ireland retweeted
@RobbieButlerMLA September is blood cancer awareness month, why has the all party group on cancer and our health care providers done NOTHING to promote Blood Cancer Awareness. Even our SOS @RhonddaBryant has ignored any request to share a social media post WHY?
CLL Ireland retweeted
Attending the LGBTQIA+ Cancer Care Conference NI today at The MAC as Chair of the All-Party Group on Cancer.
Powerful discussion on making cancer care more inclusive and addressing inequalities in screening, treatment and support. #HereForEveryone
@OGCancerNI
CLL Ireland retweeted
So many of you will have seen the news today about the amazing Faith Hinitt having to raise over £100k to fund her stem cell transplant.
Faith was diagnosed with Acute Myeloid Leukaemia and had a stem cell transplant, but she relapsed within a year. Shockingly, the NHS refused her a second. She funded her second transplant through the public and goodwill and is now in recovery and hopefully please god will stay there.
But no one should have to go through this. We urgently need a change in policy right across the UK. Huge thanks to Faith, @LeukUK @AnthonyNolan @DKMS_uk for their campaign on this. I’m tabling a parliamentary motion and encourage you to ask your MP to support it. Will post as soon as it’s live!
#uk #bloodcancer #nhs #stemcell #cancer
Sept 1st is World CLL Day and our friends in @CLLSupport are busy raising awareness of #CLL and its impact on patients and their families.
#WCLLD26 #BloodCancerAwarenessMonth
World CLL Day is part of Blood Cancer Awareness Month, and throughout September we will be giving radio interviews and posting videos. You can watch the first short video trailer here:
youtu.be/gqcWPIWLUhI
#worldcllday
#BloodCancerAwarenessMonth
📣 Registration is NOW OPEN!
Join us for the CLL Ireland Patient & Care Partner Information Day in Dublin on 3 October 2026.
A day of information, support and connection for people living with CLL and their care partners. 💙
Register
tinyurl.com/4bark58x
#CLL #SLL
CLL Ireland retweeted
What an incredible man, absolutely awe-inspiring yet heartbreaking. This reminds me of the same grit and determination that Caolan Finnegan had, another talented sportsman who died from brain cancer 2 years ago and an amazing young constituent of mine from Lisburn who passed away 2 years ago. The UKG need to prioritise and grip this issue- please, please invest in treatment and research pathways 🙏🙏
Save the Date!
Join CLL Ireland's Patient & Care Partner Information Day on Saturday, 3 October at The Gibson Hotel, Dublin.
This will be a valuable opportunity to learn and connect.
Registration and programme available soon. Stay tuned!
CLL Ireland retweeted
Because there is no current screening for ovarian cancer - awareness matters. Recognising the signs and symptoms can make all the difference in achieving earlier diagnosis and improving outcomes.
#ovariancancer #ovariancancerawareness #WomensHealth #BEAT
Great to see blood cancer patients in the UK will now receive the RSV vaccine free.
Unfortunately this support is not available to patients here in Ireland.
We’re delighted that thousands more people, including those with leukaemia, will now be eligible for the RSV vaccine on the NHS. 💉
We called for broader access to RSV vaccination for people at increased risk and are pleased to see this reflected. 👏
england.nhs.uk/2026/07/thous…
ALT A medical professional wearing blue gloves and administering a vaccine to a patient. The text reads, ‘Thousands more leukaemia patients will soon be eligible for RSV vaccine on the NHS’ with the Leukaemia UK logo.
CLL Ireland retweeted
First publication of the EPIC trial.
Joint venture of the @UkCllforum and @ASTRAZENECAUK.
One of the largest RWE cohorts of Acalabrutinib in untreated CLL, matching the trial data outcomes.
ashpublications.org/bloodadv…
CLL Ireland retweeted
Come and connect with us at #ISTH2026 in Paris, July 11-15!
At EHA, we believe that progress in research, education, and patient care is driven by meaningful partnerships and collaboration, and we are proud to partner with ISTH.
Stop by our booth #1009 to learn more about our initiatives and how we can continue building a truly borderless hematology community together.
