International Kidney Cancer Coalition (IKCC) is the only global collaboration of patient groups working to reduce the burden of kidney cancer.
Global, based in Amsterdam
Joined June 2014
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IKCC Kidney Cancer retweeted
We were represented at this yearโs @ESMOcongress which was held in Madrid, Spain. Partner organisations of the @IKCCorg attended the meeting to keep up to date with the care and treatment of #kidneycancer patients.
The take home messages are here:
actionkidneycancer.org/kidneโฆ
IKCC Kidney Cancer retweeted
@IKCCorg's Global Patient Survey helps identify trends, understand evolving patient needs, and recognize where progress has been made and where challenges remain.
And every response matters!
๐
Share your experience before 11/20
bit.ly/IKCC_Kidney_Cancer_Glโฆ
IKCC Kidney Cancer retweeted
Calling all #KidneyCancer patients, carers, and survivors to share their experience in the @IKCCorg Global Patient Survey. Just 15 minutes to help improve the lives of patients in worldwide.
bit.ly/IKCC_Kidney_Cancer_Glโฆ
#AcceleratingCures
IKCC Kidney Cancer retweeted
Please help us by completing the @IKCCorg Global Patient Survey. The more opinions and experiences we have from #kidneycancer patients and carers in the UK, the
more evidence we'll have to shape services to support families in the future.
To the survey:
actionkidneycancer.org/.../tโฆ
IKCC Kidney Cancer retweeted
๐ช๐ธ #ESMO26, one week later...
Whatโs Up about #RCC??
๐ Still strong benefit with adjuvant pembro therapy! @DrChoueiri @CPRT65 @tompowles1
๐ Vaccines towards advRCC @BraunMDPhD
โก๏ธ Challenges for ADCs in RCC: the barriers @YujiMiura5
โข๏ธ The optimal management of Oligo-RCC @ShankarSiva @DrIacovelli
๐งฌ Proteogenomics, metastatic patterns, and future therapeutic vulnerabilities ๐ @FudanUniversity
And Litespark 011, 012, Care 1, Rampart, XmAb819โฆ
@myESMO @OncoAlert
@IKCCorg @KidneyCancer @kcCURE @kidneycan
IKCC Kidney Cancer retweeted
Call to #kidneycancer patients and carers, if you have not already done so, please help us and patients globally by completing the @IKCCorg patient survey on kidney cancer.
Grab a hot drink, settle in and help make a difference. actionkidneycancer.org/.../tโฆ
#bypatientsforpatients
IKCC Kidney Cancer retweeted
The study โDeveloping a core outcome set for pharmacist interventions in chronic kidney disease: A Delphi studyโ presents a standardised framework to help researchers evaluate pharmacist interventions in chronic kidney disease (CKD).
๐ Read the paper: academic.oup.com/joneph/artiโฆ
IKCC Kidney Cancer retweeted
EKPF participated in the European Kidney Forum 2026 ๐ช๐บ at the European Parliament to address the gender gap in kidney health and advocate for equitable, patient-centred care across Europe. ๐
Read more: ekpf.eu/ekpf-participates-inโฆ
IKCC Kidney Cancer retweeted
The EKPF Annual Summit 2026 video is here!
Rewatch our time in Krakow, celebrating collaboration and our European kidney community. ๐
Thank you to everyone who made it special! We hope you enjoy it and we hope to see you next year! ๐ค
youtube.com/watch?v=Dbw90WyZโฆ
IKCC Kidney Cancer retweeted
Our colleague @Pointonsupport has released the latest episode of the Living with and beyond Cancer podcast.
This weeks guest is Jemma Falloon, who was diagnosed with #KidneyCancer & Thyroid Cancer on the same day.
Listen to Jemma's inspirational story:
actionkidneycancer.org/.../pโฆ
IKCC Kidney Cancer retweeted
CANADA, LET'S MOVE.
September 25โ27, Canada's kidney cancer community is MOVING.
Wherever you are and however you MOVE:
๐ธ Take a photo or video
๐ Tell us who you're MOVING for
๐ท Tag Kidney Cancer Canada
Letโs MOVE together! kidneycancercanada.akaraisinโฆ
IKCC Kidney Cancer retweeted
The 5th @IKCCorg Global Patient Survey on #KidneyCancer is now open!
Your lived experience matters, please share your voice take the 15minute survey and help shape the future of kidney cancer care.
For info and to take the survey:
actionkidneycancer.org/.../tโฆ
#GlobalPatientSurvey
IKCC Kidney Cancer retweeted
Today on World Cancer Research Day, EKPF and @IKCCorg launch the 2026-2027 Global Patient Survey on Kidney Cancer.
Patients, survivors & carers: share your experience and help shape future education, support and advocacy.
bit.ly/IKCC_Kidney_Cancer_Glโฆ
IKCC Kidney Cancer retweeted
Curious what a full day of kidney cancer education looks like? Here's a peek at what's on the agenda for our 2026 Virtual Patient Symposium happening September 26 11am-4pm ET! ๐ฉโ๐ป
Built for patients, caregivers, & anyone touched by kidney cancer. ๐ซถ
bit.ly/4bsGKpw
IKCC Kidney Cancer retweeted
I MOVE FOR THE FIGHTERS & SURVIVORS.
Everyone has a reason to MOVE.
For some, it's celebrating how far they've come. For others, it's supporting someone they love or remembering someone they miss.
Who will you MOVE for?
Join us! kidneycancercanada.akaraisinโฆ
IKCC Kidney Cancer retweeted
Supportive care isnโt just end-of-life care โ itโs about living better today. ๐งก Our Patient Education Series features expert-led videos on this topic:
@NorthwesternU: youtu.be/aOB0wqav6e0
@OhioState: youtu.be/9a9zPBgiuVo
@UNC_Lineberger: youtu.be/9Ah5zQ1U4to
IKCC Kidney Cancer retweeted
Clinical trials can offer access to new approaches to treatment while helping researchers answer important questions about #KidneyCancer care. But finding a trial and understanding whether it might be right for you can feel complicated.
Talking with your care team is an important place to start. The questions in this post can help you begin that conversation and better understand your options.
When you're ready to explore available trials, the KidneyCAN Clinical Trial Navigator, powered by Almara, can help. The platform connects to ClinicalTrials.gov and the National Cancer Institute's clinical trial database and uses AI to interpret complex eligibility criteria and highlight trials that may be relevant based on the information you provide.
Explore the Clinical Trial Navigator and learn more: kidneycancertrials.org/
#AcceleratingCures
IKCC Kidney Cancer retweeted
๐๐๐ฆ ๐ก๐จ๐๐ฉ๐๐ฆ ๐๐จร๐๐ฆ ๐๐ฆ๐ ๐ฅ๐๐๐ข๐ ๐๐๐ก๐๐๐ก ๐๐ฅ๐๐๐๐ฅ ๐๐ ๐๐ก๐๐๐ฅ๐ ๐๐๐๐ ๐ฅ๐๐ก๐๐ ๐๐ฅร๐ก๐๐๐ ๐๐ก ๐ง๐ข๐๐ข๐ฆ ๐๐ข๐ฆ ๐ฃ๐๐๐๐๐ก๐ง๐๐ฆ ๐๐ข๐ก ๐๐ก๐๐๐ฅ๐ ๐๐๐๐ ๐๐๐ฅ๐๐๐ข๐ฉ๐๐ฆ๐๐จ๐๐๐ฅ
La ESC pide mayor coordinaciรณn entre cardiologรญa y nefrologรญa para garantizar una atenciรณn precoz en pacientes con riesgo cardiovascular y renal.
โImpulsar la decisiรณn compartida y la prevenciรณn es clave para mejorar la calidad de vida de los pacientes.
๐Noticia completa: alcer.org/2026/09/03/las-nueโฆ
@escardio @ERAkidney @kevin_damman
IKCC Kidney Cancer retweeted
WE MOVE BETTER TOGETHER.
Bring your family, friends, neighbours or coworkers together for MOVE to Beat Cancer.
Letโs MOVE together!
kidneycancercanada.akaraisinโฆ
IKCC Kidney Cancer retweeted
There's no wrong way to MOVE.
MOVE by yourself, with family and friends, or create a team.
Your MOVE. Your Way. Your Reason.
Join Us! kidneycancercanada.akaraisinโฆ
