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IPaCOR

@IPaCOR_CF

The Italian Patient Centered Outcome Research is a working group of the Italian Cystic Fibrosis Society #CF #cysticfibrosis #empowerment #evidence #EBM

 Italy
Joined December 2016
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Photo by IPaCOR (@IPaCOR_CF)
#EYIM2019 @aarashsaleh presents his work on development of assays for #lentiviral #GeneTherapy in #cysticfibrosis @CFGT_Edinburgh @imperialcollege @cftrust @wellcometrust
Image from DE CARLI Paola (@paodecarli)
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"Older people who are in need of care and their families roll from crisis to crisis until they knit together some ad-hoc solution." Michael Gill looks at how Australia's care system is in crisis #AgedCareRC blogs.bmj.com/bmj/2019/02/22… @dragonclaw2017

Michael Gill: Care for older people and the Royal Commission in Australia - The BMJ

Australia’s care system is complex and almost impossible for the average person to navigate, says Michael Gill Australia’s aged care sector has been exposed as requiring a total overhaul, so [...]M...

blogs.bmj.com
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Very interesting presentation on "lnnovative & creative methods to provide CF patients& family education." at #NACFC2018
Image from Luigi Graziano (@LuigiGraziano10)
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My passport expired in 2015. I was on the transplant list and didn’t bother to renew it. I planned my funeral with my family. A year after the gift of new lungs, I feel great, I have a new passport, I can travel & swim in the sea. Things can change ✌️ #NewProfilePic #Mallorca
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Congresso Arir 2019!! 😎 Soon the final programme!💪
Image from ARIRassociation (@ARIRassociation)
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#RaccoltaFondi e #Sensibilizzazione #a18annipuoi promossa da LIFC ( Lega Italiana Fibrosi Cistica - @fibrosicistica ) sulla #DonazioneOrgani e per migliorare l’assistenza e la qualità di vita dei pazienti con #fibrosicistica e delle loro famiglie. #smssolidale 45587.
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#cysticfibrosis #OrkambiNow great news for Ireland ! Waiting for the same news ASAP in all concerned countries @vaincrelamuco teapaw.org/cf_ireland/status/9743…
CF Ireland (@cf_ireland) profile pictureCF Ireland@cf_ireland15 Mar 2018
CF Ireland welcomes the statement made by Minister for Health @SimonHarrisTD today in relation to the extension of Orkambi to children aged 6 - 11 years. Read the full statement online at cfireland.ie
Image from CF Ireland (@cf_ireland)
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Thanks to @vaincrelamuco, French translations of #CFResearchNews articles can now be found here bit.ly/2E6m9ti #cysticfibrosis #francais teapaw.org/vaincrelamuco/status/9…
Vaincre la Muco #SAM2025 (@vaincrelamuco) profile pictureVaincre la Muco #SAM2025@vaincrelamuco23 Feb 2018
#LECTURE 🔬 Aujourd’hui, nous vous proposons la synthèse d'un article concernant les effets d’Orkambi® sur le métabolisme du #glucose et la sécrétion d'#insuline ▶ bit.ly/2E6m9ti #mucoviscidose #CysticFibrosis cc @ECFSRegistry
Image from Vaincre la Muco #SAM2025 (@vaincrelamuco)
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#EYIM2018 #cysticfibrosis last posters session: #clinicalresearch issues and #immunology
Image from DE CARLI Paola (@paodecarli)
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By one of our students of Ist level Master in pulmonary rehab @LaStatale: Clinical Criteria for Tracheostomy Decannulation in Subjects with Acquired Brain Injury rc.rcjournal.com/content/62/… #respiratoryphysiotherapy – at Milan, Lombardy
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Idalopirdine: another disappointment for people with #dementia. Participants affected by dementia deserve greater involvement and recognition in future trials #BMJeditorial bmj.com/content/360/bmj.k753
Image from The BMJ (@bmj_latest)
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Violaine Dubois, labo @jl_herrmann, présente à l'EYIM2018 son travail sur la virulence de Mycobacterium abscessus cofinancé par @vaincrelamuco et @A_GregLemarchal
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Après le #CFJC2018, Alexandra Pommier présente ses travaux à ses collègues européens #EYIM2018 @Inserm teapaw.org/vaincrelamuco/status/9… teapaw.org/vaincrelamuco/status/9…
Vaincre la Muco #SAM2025 (@vaincrelamuco) profile pictureVaincre la Muco #SAM2025@vaincrelamuco20 Feb 2018
#CFJC2018 C'est au tour d'Alexandra Pommier de prendre la parole #EA7402 @umontpellier
Image from Vaincre la Muco #SAM2025 (@vaincrelamuco)
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#EYIM2018 2nd session of the day dedicated to #microbiology introduced by a lecture by @Genevieve_Hery and co-chaired by @jl_herrmann #duo #microbiome #microbiota #cysticfibrosis
Image from DE CARLI Paola (@paodecarli)
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#EYIM2018 Alice Rossi, italian PhD student, on acute and chronic murine Pseudomonas infection models to assess antibacterials
Image from Geneviève HéryArnaud (@Genevieve_Hery)
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#EYIM2018 Ranjani Somayaji, MD from University of Calgary 🇨🇦, on the sinus #microbiome and its association with clinical status in transplant patients with #cysticfibrosis
Image from Geneviève HéryArnaud (@Genevieve_Hery)
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#EYIM2018 State of the Art in cell biology of #CysticFibrosis by Bertrand Kleizen. The cell as a big candy!
Image from Geneviève HéryArnaud (@Genevieve_Hery)
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#EYIM2018 @elbahnsi presents the collaborative work supported by @vaincrelamuco on #CFTR molecular modeling and dynamics: understanding the impact of mutations A step foward new specific compounds @Inserm @CNRS
Image from DE CARLI Paola (@paodecarli)
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#EYIM2018 round tables ongoing: #CFTR modulating therapies, #CRISPR vs gene therapy, gut #microbiome, anti-inflammatory approaches Food for thought before lunch
Image from DE CARLI Paola (@paodecarli)
Image from DE CARLI Paola (@paodecarli)
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#EYIM2018 an original work presented by Manurel Nietert to create a community driven web-service on data on #CFTR modulating substances #notonlyforchemists supported by the Mukoviszidose Institut @mukoinfo
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