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MND Victoria

@MNDVic

MND Victoria provides VITAL care + support for people with motor neurone disease & funds research. Read the latest MND news & stories on our website.

 Melbourne Victoria
mnd.org.au
Joined November 2010
  • Tweets6.1K
  • Following2.6K
  • Followers1.8K
3.4KMedia
Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)Photo by MND Victoria (@MNDVic)
MND sucks! There's currently no known cure but there is something we can all do to help right now. mndrelay.org.au/my-fundraisi… @MNDVic #GreatMNDRelay Your support would mean the world to so many people and their families living with MND 💙
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I'm honoured to be teaming up with @mnd_vic as their official ambassador for 𝗧𝗛𝗘 𝗚𝗥𝗘𝗔𝗧 𝗠𝗡𝗗 𝗥𝗘𝗟𝗔𝗬. Head to MNDrelay.org.au and join me in supporting those currently living with MND. I'll see you all in Coburg in June! ✌🏼💙   #GreatMNDRelay
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Stage four lockdown is a difficult time for everyone and accessing assistance when looking after a loved one may be challenging. Carerhelp is a practical resource that supports carers manage some of these challenges. Click carerhelp.com.au for more information.
Image from MND Victoria (@MNDVic)
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#MND #News is on its way!📮 Our MND Newsletter Volunteers are looking forward to when they can get together to mail it out. For now, they are doing the most important thing – staying home and staying safe. 🏠 It was great to catch up with them online today. 🙌😀☕️ #volunteers
Image from MND Victoria (@MNDVic)
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Melbourne’s weather is getting colder. Grab a stylish and comfy hoodie to keep warm this winter, whilst showing support for people with MND. #nevergiveup #MND #ALS Shop at: bit.ly/NeverGiveUpMNDStore
#Nevergiveup bit.ly/NeverGiveUpMNDStore

ALT #Nevergiveup bit.ly/NeverGiveUpMNDStore

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facebook.com/watch/?v=320500… Click above to listen to Leah’s reminiscent, poignant and beautiful story as a carer for her beloved husband who lived with #MND. #ALS #story
Story by Leah Rosenberg. Read by Lisa Morgan.

ALT Story by Leah Rosenberg. Read by Lisa Morgan.

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The Allied Professionals Forum will be held virtually this year over two days - 3 & 4 December 2020. A forum for health professionals who support people living with #MND ABSTRACTS now open ⬇️
ALS/MND Alliance (@ALSMNDAlliance) profile pictureALS/MND Alliance@ALSMNDAlliance30 Jul 2020
Call For Abstracts! Allied Professionals Forum - mailchi.mp/7fb81788b7d1/apf-…
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MND NSW will be hosting a Facebook live event, "Ask the Experts" on 5th August at 10:30am. A panel of leading #MND researchers will talk about their work and to provide insight into current and future research. Save the date and click facebook.com/mndnsw to join on the day.
MND NSW will be hosting a Facebook live event, "Ask the Experts" on 5th August at 10:30am till midday (AEST). A panel of leading MND researchers will talk about their work and to provide insight into current and future research. Save the date and click https://www.facebook.com/mndnsw/ to join on the day.

ALT MND NSW will be hosting a Facebook live event, "Ask the Experts" on 5th August at 10:30am till midday (AEST). A panel of leading MND researchers will talk about their work and to provide insight into current and future research. Save the date and click https://www.facebook.com/mndnsw/ to join on the day.

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Karl has been volunteering with MND for 10 years.
Image from MND Victoria (@MNDVic)
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Karl has been volunteering with MND for 10 years. Daniella, Jessica, Geoff, Amanda, John, Louise, Lorraine, Caroline, Gina and Leonie have all given 5 years service as volunteers. Over the past 4 weeks, we have said thanks to volunteers who together have offered 260 years as volunteers. Thank you to each of you and every one of our volunteers.

ALT Karl has been volunteering with MND for 10 years. Daniella, Jessica, Geoff, Amanda, John, Louise, Lorraine, Caroline, Gina and Leonie have all given 5 years service as volunteers. Over the past 4 weeks, we have said thanks to volunteers who together have offered 260 years as volunteers. Thank you to each of you and every one of our volunteers.

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Daniella, Jessica, Geoff, Amanda, John, Louise, Lorraine, Caroline, Gina and Leonie have all given 5 years service as volunteers.
Image from MND Victoria (@MNDVic)
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If you or a family member has been diagnosed with motor neurone disease(#MND), attending our information session will help you develop an understanding of the disease as well as outlining the support services available from MND Victoria. To RSVP, (03) 9830 2122 or [email protected]
Image from MND Victoria (@MNDVic)
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📢 An exciting milestone in the search for effective therapies for #MND – Phase 1/2 results published in @NEJM showed that @biogen's tofersen #ASO has promise for treating patients with SOD1-ALS. 🧬 Read more in our new blog post ⬇️ mndresearch.blog/emerging-ge…
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MND Research Australia 2021 research grant applications are now open. Learn more & apply: mndaust.asn.au/Discover-our-… Applications close 28 August 2020. Through research we will one day live in a world free from #MND
Image from MND Australia (@mndaustralia)
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Today we say thanks to Betty and Sally who have both volunteered with MND Victoria for 15 years. Sally one of our Bereavement Call Volunteers, and Betty volunteering in Information and Resources, ensure people feel supported wherever they are in the #MND journey. #volunteer
Image from MND Victoria (@MNDVic)
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If you or a family member has been diagnosed with motor neurone disease(MND), attending our information session will help you develop an understanding of the disease as well as outlining the support services available from MND Victoria. To RSVP,☎️(03) 9830 2122 or [email protected]
On Thursday, 6th August, 7 pm – 8:30 pm, our MND Advisors will host a remote information session. MND Victoria warmly invites you to join in the programme via Zoom. To RSVP and receive instructions on how to connect, please call (03) 9830 2122 or email info@mnd.asn.au.

ALT On Thursday, 6th August, 7 pm – 8:30 pm, our MND Advisors will host a remote information session. MND Victoria warmly invites you to join in the programme via Zoom. To RSVP and receive instructions on how to connect, please call (03) 9830 2122 or email [email protected].

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Maureen, one of our wonderful volunteers and a past carer of someone living with motor neurone disease wrote this poem "Caring and Sharing" about her experience during the time. To share your story for publication in our newsletter and online, please email: [email protected]
Image from MND Victoria (@MNDVic)
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Thank you @aglenergy for installing solar panels for $1 ! The savings on our energy bill will enable us to buy vital equipment for people with MND. In the first year this could mean 5 people with MND will have manual wheelchairs. #solar #grateful #MND #ALS
Image from MND Victoria (@MNDVic)
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Christine has coordinated the Western Metro Support Group for MND Victoria for 20 years. Joan has been actively working to support the organisation including keeping our Information and Resource folders up to date for 20 years. #MND Victoria #volunteers are awesome! 💙 💙
Image from MND Victoria (@MNDVic)
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Interesting real-world study showing Riluzole actually provides between 6 and 19 months survival benefit - this is substantially longer than the 2- to 3-month survival benefit observed in the pivotal clinical trials of riluzole ow.ly/MhvU50AxqYc
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