Advocating for those impacted by PANDAS/PANS/AE through research, education, advocacy, and awareness programs.

Menlo Park, CA
Joined February 2011
PANDAS Network - Official retweeted
How much do PhD students earn? The first comprehensive overview of PhD income shows vast imbalances across much of Europe Read the full story: go.nature.com/4B8qAwD go.nature.com/4zwzdiR
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PANDAS Network - Official retweeted
Witnessing a murmuration of starlings in Italy was absolutely breathtaking! 🇮🇹 Thousands of birds swirling together in a synchronized dance—nature's own aerial ballet.
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PANDAS Network - Official retweeted
BREAKING: The Nobel Prize in Physiology or Medicine has been awarded to Karl Deisseroth, Peter Hegemann and Georg Nagel “for their discoveries concerning light-gated ion channels and optogenetics.” More to follow.
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PANDAS Network - Official retweeted
“OCD is an isolating and scary thing...” Comedian and podcast host Jake Shane recently opened up about his experience with OCD on The Drew Barrymore Show, sharing what it can feel like to live with OCD and the importance of feeling seen. We’re grateful to Jake for speaking openly about his experience. Every person who shares their story helps challenge misconceptions about OCD and reminds others in the community that they aren’t alone. 🩵
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PANDAS Network - Official retweeted
We here show that Group A Strep infections trigger profound changes in the transcriptome of microglia and BECs. Distinct Th17-derived cytokines have shared and unique effects on these cells. Microglia activate many cytokines that are also found elevated in patients with PANDAS.
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PANDAS Network - Official retweeted
Finally, it is official! Our paper describing how microglia and brain endothelial cells respond to repeated Group A Strep infections and the implications for Sydenham’s chorea and PANDAS is out in Nature Communications. nature.com/articles/s41467-0…
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PANDAS Network - Official retweeted
Dr. Ugur Akcan @occludens gave a nice presentation today.
Are you attending the @IOCDF Research Symposium today? Stop by Elucidating the role of RXRA factor in myeloid cells for immune-mediated mechanisms of OCD July 6 · 10:15am Uğur AKCAN, PhD Columbia University #PANS #PANS #OCDcon #OCD pandasppn.org/exhibiting/#IO…
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PANDAS Network - Official retweeted
Please send your questions that you may have for a chance to answer them at the end of the webinar on 6/29.
What PANS/PANDAS research question do you want Dritan Agalliu PhD to answer during the 6/29 webinar? Ask here & it might get answered. Webinar registration: bit.ly/dragalliuwebinar Read the research: shorturl.at/uxTX3 Hosted in partnership by @PANDASPPN & @PANDASnetwork
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PANDAS Network - Official retweeted
This is an important paper to read in order to understand not only the biology of these receptors but also how autoantibodies against these receptors may trigger activation. #PANDAS #Sydenhamchorea
Finally--structures of D1, D2, D3, D4 and D5-dopamine receptors!! Congrats to folks from @RothLabUNC , Eric Xu's lab and many others. nature.com/articles/s41422-0…
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PANDAS Network - Official retweeted
Watch our latest free CME webinar: Preventing & Responding to Insurance Denials for PANS/PANDAS Treatments. pandasppn.org/cme The presentation will discuss: 🔵Defining ‘Medical Necessity’ 🟣UR-Related Laws 🟢Insurance UR/UM Systems 🟡Advocacy Strategies
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Good morning to World Encephalitis Day! #WED My research team in Oxford shows representation from 🏴󠁧󠁢󠁥󠁮󠁧󠁿 , 🏴󠁧󠁢󠁷󠁬󠁳󠁿 , 🇩🇪, 🇲🇰, 🇹🇷, 🇲🇾, 🇰🇷, 🇮🇪 , 🇨🇳 and 🇧🇷. So we really do embrace the world 🌎 today @encephalitis
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PANDAS Network - Official retweeted
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question: Could it be #sepsis ? I was treated for pneumonia for 3 weeks but kept getting sicker. Turns out was a kidney infection that had turned septic untreated
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PANDAS Network - Official retweeted
So brave of you to share your traumatic journey. As you say, could’ve been so different.
Replying to @poppygibsonuk
Please make sure you know the symptoms of sepsis- & if doctors are struggling to identify what’s wrong just ask the question: Could it be #sepsis ? I was treated for pneumonia for 3 weeks but kept getting sicker. Turns out was a kidney infection that had turned septic untreated
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PANDAS Network - Official retweeted
The @BBCNews coverage of #GroupAStrep is helpful: but what's really important is to educate about the associated risk of #sepsis as that's what endangers lives! Most of us have these bugs somewhere on us, it's when it becomes invasive we worry!
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PANDAS Network - Official retweeted
The 2023 #iocdf Research Grant Awards will begin accepting proposals on Jan. 3, 2022! Grants ranging from $50,000 to $300,000 will be available for #ocd, #bdd, #hoardingdisorder, & related disorders research. Please visit iocdf.org/research/research-… to learn more.
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PANDAS Network - Official retweeted
Cool paper!
nature.com/articles/s42255-0… What do bad eating habits do to our blood vessels? Turns out a poor diet has unique detrimental effects on endothelial cells in different organs. And an improved diet can only partially improve their molecular health. Check out our paper and🧵for dets👇
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PANDAS Network - Official retweeted
"the risk of [heart attacks, arrhythmias, strokes, cardiac arrest, and more] substantially increased in those who had COVID-19 1 year earlier, compared with those who didn’t. Even people who never went to the hospital had more cardiovascular disease science.org/content/article/…
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PANDAS Network - Official retweeted
Thank you for the invitation @SiegenthalerLab (Julie), @LehtinenLab (Maria), Benoit. It’s a great honor to present the keynote lectures for a beloved @cshlmeetings that I co-chaired twice before!
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