Advocate for Patient Centered Care for people with Complex Chronic Illnesses & Disabilities with Patient and Clinician Autonomy

Shiloh, NC
Joined March 2021
I'm working on a special project & will be creating graphics for folks based on their pain descriptions that we can share with the our pain stories. #PainSpeaking #SeeOurPain If you're interested please send me a DM with your pain description.
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Hope411PainSpeaking retweeted
University Hospital is asking for the public’s help identifying a man who remains unconscious after he was hit by a vehicle on the West Side last week. FULL STORY --> bit.ly/3VIkHpJ
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Prohibition and opioid deprescribing are two of the most profound government-induced death campaigns of the last century. They have criminalized doctors (or deputized them as med cops) and justified racist structural oppression by police, child welfare, landlords & employers
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Hope411PainSpeaking retweeted
If people want to use the cocaine they should be able to buy a safeR product. It's quite a madness when the government prescribes death as the cure while telling you the actual cure (for some) is what is dangerous.
When Aleister Crowley first used cocaine, he wrote: “The depression lifted from my mind like the sun coming out of the clouds.” And yet we still use shock therapy on the suicidal.
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It was primarily pain advocates and online friends who stepped up to carry us. Knowing many fellow advocates donated while on strict, low-income budgets moves us deeply. No action went unnoticed—whether you donated, shared, or sent love, every single effort mattered. (2/3)
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Adam carried ADHD & a TBI, and fell victim to the war on drugs & toxic supply. He was trying to raise funds to move to NC with me to escape that environment. Your love is giving him the safe harbor he deserved. Please help us cross this final line. Thank you. (3/3)
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Hope411PainSpeaking retweeted
Can someone explain how both of these narratives are supposed to be true? Pain patients are accused of “just wanting opioids” instead of treating the underlying cause. But when they push for imaging, a diagnosis, or answers about what is actually causing their pain, suddenly they’re “too focused on finding something wrong.” So which is it? Apparently wanting pain relief is suspicious, and wanting to know WHY you’re in pain is suspicious too. Very convenient.
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FACT!
Actually if we change a few words slightly to fit opioids it still makes sense. That fits perfectly with the public health policy. The rest is true but that is how they are running things. "Eventually we'll run out of corpses."
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Hope411PainSpeaking retweeted
Law enforcement leaders from across the Twin Cities spoke out about ICE operations in the area.
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Hope411PainSpeaking retweeted
A 15-year-old student has drawn global attention after developing a device capable of detecting pancreatic cancer at its earliest stages. This matters because pancreatic cancer is one of the deadliest cancers largely due to late diagnosis. The invention is a low-cost sensor designed to identify specific biological markers linked to early pancreatic tumors. Unlike traditional tests that can take days or weeks, this device delivers results in just minutes. Medical experts reviewing the project noted that the technology could dramatically improve survival rates if deployed widely. Early detection allows treatment to begin sooner, when outcomes are far more favorable. What surprised researchers most was the depth of understanding behind the invention. The teenager studied existing diagnostic limitations and engineered a solution that addresses both speed and affordability. The breakthrough has earned international awards and scientific recognition, sparking discussion about how much potential remains untapped in young innovators. It highlights how curiosity, access to knowledge, and support can lead to life-changing discoveries.
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4/In this episode, we also ask why a former federal official would write an editorial pleading for an opioid-free health care system, with serious factual errors, without disclosing he's being paid $60,000 by the maker of a new non-opioid medication
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1/🔊 Our latest podcast from "On Becoming a Healer" The ❓ is: "Why are we addicted to talking about opioids rather than helping people with chronic pain?" Available on Spotify, Apple and wherever you get your podcasts (links below)
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Hope411PainSpeaking retweeted
I remember being absolutely pissed off when I read what 'qualified' one as having Complex Persistent Opioid Dependence. Now, it appears that they've dropped that 'dx' and have called it simply prescription opioid use disorder. 🤦🏻‍♀️🤬 – at Pottstown, PA
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Hope411PainSpeaking retweeted
Replying to @outbreakupdates
People don't ban drugs out of safety reasons. No one is made safer when they are forced to buy their drugs from unregulated markets. People ban them out of perceived morality and dishonesty.
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Hope411PainSpeaking retweeted
Aspirin is trusted universally. It kills more than 3,000 Americans a year through internal bleeding. The same voices that call vaccines dangerous keep aspirin in the cabinet?
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