Amb. for Rare & Chronic Disease Rare in 14225 SUNY Buffalo State BS, Multidis. Grad 2022 District and DC activist author Chronicles of Zazzle & activist.
Cheektowaga
Joined December 2015
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I see her for who she is. She is the kind of woman I am. We don’t just curl up and die when the world wants to push us back. We go on to fight back and impact history for ever.
Robin EM-powers patients retweeted
I get so ANGRY hearing about people being put on Suboxone for pain!
IT'S NOT FOR PAIN
It was created & sold as a NON OPIOID to help addicts withdrawing from herion & only supposed to be used a few days/weeks~to wean them off
THEY LIED & it's no wonder addicts can't get off them
Robin EM-powers patients retweeted
“#ChronicPain is not an excuse to not be working, socializing, doing chores and errands. Believe me, we’d much rather participate in life and be able to do these things than stuck at home in #pain with little to no relief.” 27 Things Chronic Pain Is Not buff.ly/3YL5Loq
@CMerandi so is everything that happened I’m coming off the Suboxone and I’ve only been on it for like a week or two weeks and a half or something and I’m going to a pain management specialist in New York City but I have to pay for the room overnight myself and I don’t know
I would truly love to share my story. They’re letting me keep my Adderall because I have narcolepsy and could pass out and fall asleep and end up dying from that and they didn’t want to take away my Xanax for PTSD and extreme anxiety and seizures, but they gave me sub for pain
For the university of Rochester, they are trying to prescribe me Suboxone for chronic pain due to Ellers down syndrome and I’m waiting to go be evaluated in New York City and had to go on it just because I was on such a high dose of opiate that actually could’ve killed me…
Say no to the poison
Providers are promoting the opioid Suboxone as if it’s the panacea for pain and now depression - yes, you read that correctly, depression
Suboxone is linked to catastrophic dental decay, mouth trauma, and many have started to report oral cancers
Addicts are selling their Suboxone for their drug of choice
Robin EM-powers patients retweeted
Say no to the poison
Providers are promoting the opioid Suboxone as if it’s the panacea for pain and now depression - yes, you read that correctly, depression
Suboxone is linked to catastrophic dental decay, mouth trauma, and many have started to report oral cancers
Addicts are selling their Suboxone for their drug of choice
I must quote for every sector of this country. #makeaccountabilitygreatagain
This is a “harm reductionist” who acknowledges she sold Suboxone for her drug of choice.
These harm reductionists have accused me of being funded.
But it turns out, they’re PAID to distribute Narcan/fentanyl testing strips/pipes/and pamphlets that are filled with information like “try to poop before. This is so your drugs are absorbed better.”
Another harm reductionist pays himself 200k a YEAR!
I’m paid $1000 a month and we rely solely on donations yet I’m the dishonest one??? are you kidding me?
The streets are littered with legless zombie like bodies/dirty syringes and God only knows how many children have overdosed on the opioid Suboxone because of this harm reduction scheme
Many of these HR frauds vilify the Sackler family, demand a safe supply of drugs for only addicts, and they somehow believe they should dictate how opioid settlement funds are spent
They created a narrative that would benefit them professionally and financially. That same narrative would lead to a growing suicide list in the Pain community.
Everyone else is to blame for their addiction except them??
For the love of gravy, can we make accountability great again?
Robin EM-powers patients retweeted
They are also taking documented ADD patients off of Adderol.
My psychiatrist tried last month after 7 years on same dose.
also say that telling patients with a terminal disease that their best chance is to go on Suboxone so that they have less high and low and the medication is in them for a longer or something is got to be some type of mental health problem. If this is the new standard for terminal
Robin EM-powers patients retweeted
Telling a patient pain medication causes pain is a form of mental illness
It’s akin to telling patients benzodiazepine cause anxiety
“Your opioids are making your pain worse.”
That claim has been used to justify forced tapers, treatment cutoffs, and switches to Suboxone.
But where’s the evidence?
We expose the opioid induced hyperalgesia hoax, the experts, and the FDA's role.
Our full investigation is NOW PUBLIC!
youtu.be/P0U_UCjB6No
When I raised this with a pain clinic in another county, they were so appalled they tried to help preserve my care. Palliative care should protect quality of life, dignity, and well-being—not create barriers that threaten them. Everyone deserves compassion.
After 10 years of advocacy, here’s what I’ve learned: interventional pain was an industry built on the backs of desperate pain patients; harm reduction is a jobs program fueled by opioid settlement funds, addiction medicine is Suboxone cult, state medical boards were created to destroy doctors lives and if you allow a surgeon to torture you postoperatively, they will
Robin EM-powers patients retweeted
After 10 years of advocacy, here’s what I’ve learned: interventional pain was an industry built on the backs of desperate pain patients; harm reduction is a jobs program fueled by opioid settlement funds, addiction medicine is Suboxone cult, state medical boards were created to destroy doctors lives and if you allow a surgeon to torture you postoperatively, they will
Robin EM-powers patients retweeted
I just lost my doctor managing my care since 2018 for PTSD and narcolepsy Famial dysautonimia and Ehlers danlos syndrome type 3 and it turns out with-drawl from this can and does kill you unless its tampered slowly if stopped. My doc wants me on sub! allergic
Robin EM-powers patients retweeted
Rx opioid pain medications are dirt cheap and highly effective. In a sane world they would be sold OTC regulated similar to alcohol. They are much less powerful than alcohol and have actual medical applications; alcohol has zero applications yet its available in every 'gas station.
Spinal epidural injections are highly risky, not fda-approved, of very limited effectiveness for treating pain, and the anesthesiologists bill insurance companies thousands of $$$$$$$ per injection.
Guess which one you are getting.
Wake up people this is here right now and they are coming for you. And they don't care if you live or die.
