Amb. for Rare & Chronic Disease Rare in 14225 SUNY Buffalo State BS, Multidis. Grad 2022 District and DC activist author Chronicles of Zazzle & activist.
Cheektowaga
Joined December 2015
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Robin EM-powers patients retweeted
I get so ANGRY hearing about people being put on Suboxone for pain!
IT'S NOT FOR PAIN
It was created & sold as a NON OPIOID to help addicts withdrawing from herion & only supposed to be used a few days/weeks~to wean them off
THEY LIED & it's no wonder addicts can't get off them
Robin EM-powers patients retweeted
“#ChronicPain is not an excuse to not be working, socializing, doing chores and errands. Believe me, we’d much rather participate in life and be able to do these things than stuck at home in #pain with little to no relief.” 27 Things Chronic Pain Is Not buff.ly/3YL5Loq
Robin EM-powers patients retweeted
Say no to the poison
Providers are promoting the opioid Suboxone as if it’s the panacea for pain and now depression - yes, you read that correctly, depression
Suboxone is linked to catastrophic dental decay, mouth trauma, and many have started to report oral cancers
Addicts are selling their Suboxone for their drug of choice
Robin EM-powers patients retweeted
They are also taking documented ADD patients off of Adderol.
My psychiatrist tried last month after 7 years on same dose.
Robin EM-powers patients retweeted
Telling a patient pain medication causes pain is a form of mental illness
It’s akin to telling patients benzodiazepine cause anxiety
“Your opioids are making your pain worse.”
That claim has been used to justify forced tapers, treatment cutoffs, and switches to Suboxone.
But where’s the evidence?
We expose the opioid induced hyperalgesia hoax, the experts, and the FDA's role.
Our full investigation is NOW PUBLIC!
youtu.be/P0U_UCjB6No
Robin EM-powers patients retweeted
After 10 years of advocacy, here’s what I’ve learned: interventional pain was an industry built on the backs of desperate pain patients; harm reduction is a jobs program fueled by opioid settlement funds, addiction medicine is Suboxone cult, state medical boards were created to destroy doctors lives and if you allow a surgeon to torture you postoperatively, they will
Robin EM-powers patients retweeted
I just lost my doctor managing my care since 2018 for PTSD and narcolepsy Famial dysautonimia and Ehlers danlos syndrome type 3 and it turns out with-drawl from this can and does kill you unless its tampered slowly if stopped. My doc wants me on sub! allergic
Robin EM-powers patients retweeted
Rx opioid pain medications are dirt cheap and highly effective. In a sane world they would be sold OTC regulated similar to alcohol. They are much less powerful than alcohol and have actual medical applications; alcohol has zero applications yet its available in every 'gas station.
Spinal epidural injections are highly risky, not fda-approved, of very limited effectiveness for treating pain, and the anesthesiologists bill insurance companies thousands of $$$$$$$ per injection.
Guess which one you are getting.
Wake up people this is here right now and they are coming for you. And they don't care if you live or die.
Robin EM-powers patients retweeted
New article posted on Rare Disease Advisor: "Cannabidiol Linked to Fewer Seizures in Adults With Lennox-Gastaut Syndrome, Other DEEs." Read the full article here: buff.ly/JSI0cCf #RareDisease
Robin EM-powers patients retweeted
@Crestofheliz: my doctor suggested MAID instead of taking narcotics. I got a copy of my records and I told him to screw.
Anti-pain medication politicians and public health fraudsters are the reason there is a growing suicide list in the pain community
Robin EM-powers patients retweeted
I could go on with the amount of damage and harm done to America over prescription medication being restricted. The financial devastation to communities is detrimental and I’m not speaking wrong or right here just facts & reality. Leaders need to be strong to do best for all.
Robin EM-powers patients retweeted
Victor Lang, JD, PhD, chief quality officer justifies withholding pain meds for bowel resection
I asked him how many Tylenol- only hysterectomies/mastectomies/C-sections/bowel resections he’s had.
0
They’re killing pts to avoid RXg pain meds.
Robin EM-powers patients retweeted
Global Genes is proud to partner with Help Hope Live, a trusted medical fundraising nonprofit that supports rare disease families across the country. Visit go.globalgenes.org/3NiZz1d for more details!
Robin EM-powers patients retweeted
There are some great groups on FB. There are different groups for various diseases. They've been very helpful in understanding & coping with my conditions. – at Buckner, KY
Robin EM-powers patients retweeted
This is exactly why we need stronger laws protect protecting patients
Emergency room providers do not care how much pain you are in
They have been taught to believe everyone is a drug seeker
Robin EM-powers patients retweeted
People make assumptions about me
I’m not a Sackler and I don’t work for any pharmaceutical company/lawfirm
I’m the spokesperson for The Doctor Patient Forum who’s reimbursed for expenses
Not everyone is a scumbag who puts money before human lives
Robin EM-powers patients retweeted
#OTD 90 years ago Erwin Schrödinger published his thought experiment, Schrödinger's cat. The famous feline paradox in which the cat is alive and dead at the same time is designed to explain quantum physics and make us question the nature of reality.
#NobelPrize
ALT A cartoon of a grey cat sitting in the middle of an enclosed box. The box is yellow. To the left is a hammer breaking a poisonous vial. To the right of the cat is the same cat but dead. This cat is transparent to reflect the cat is alive and dead.