Society with MS is dissolved/no longer in existence. Please follow @solvingms
Joined July 2021
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SocietyWithMS retweeted
Graves: New #MS monitoring tool using wearable multi-sensor on forearm and leg. Uses gyroscope, accelerometer and surface EMG.
FMSight collects afferent & efferent visual function with mobile brain 🧠 💻 interface. #ACTRIMS2023 #ACTRIMSForum @neurology_live
SocietyWithMS retweeted
Two ongoing #vaccine trials to prevent #EBV Epstein-Barr infection. Goal: To prevent #MS and reduce disease activity.
👉Today I’m doing a Twitter takeover for @neurology_live! @AaronBosterMD NerdyNeuroMD @Brandon_Beaber @DocforMS @KlausSchmierer @MustStopMS @themsguide
Jeffrey Cohen @NIH: 2 trials to prevent #EBV infection. gp350 nanoparticle trial at NIH and mRNA @moderna_tx. If #EBV infection can be prevented, #MS may be prevented. Most exposed in #EBV childhood. Reduced #EBV viral load may reduce illness. #ACTRIMS2023 @drbarrysinger
Lawrence Steinman, MD, received the 2023 Pioneer in Medicine Award for his contributions in identifying the similarities between the Epstein-Barr virus (EBV) protein EBNA-1 and the brain protein GlialCAM aka molecular mimicry.
Steinman: Epstein-Barr virus #EBV may trigger #MS via molecular mimicry. #EBV immune responses could cross react with chloride channels, myelin basic protein and CNS adhesion molecule glialCAM. #ACTRIMS2023 #ACTRIMSForum
SWiMS has been laser-focused on latent EBV as a trigger of MS following the seminal studies from Harvard & Stanford Jan 2022 confirming this. Wonderful to see so many great presentations on this at #ACTRIMS2023!
Jacobson @NIH reveals trials clinical trials for #MS that tackle 🦠 viral trigger. Focus on #EBV Epstein-Barr #virus.
🗝️❓Is #MS prevention and disease reduction possible with an anti-viral approach? #ACTRIMS2023 #ACTRIMSForum @neurology_live @C_OrejaGuevara @GavinGiovannoni
Australia is an innovator in MS research and treatment!
Great to see the depth & breadth of #MultipleSclerosis research that @MS_Australia has supported via its latest round of grants. We look forward to following the progress of each study. Good luck to the researchers pursuing these important projects. #MS msaustralia.org.au/news/ms-a…
#EBVcausesMS Now let's cure it!
Steinman: Epstein-Barr virus #EBV may trigger #MS via molecular mimicry. #EBV immune responses could cross react with chloride channels, myelin basic protein and CNS adhesion molecule glialCAM. #ACTRIMS2023 #ACTRIMSForum
SocietyWithMS retweeted
Dr. Lawrence Steinman has ambitions to use anti-EBV therapies to "potentially eradicate MS, as we have done with nearly complete success for poliomyelitis." onlinelibrary.wiley.com/doi/…
See this discussion about the recent studies adding to the accumulating evidence that #EBVcausesMS which has long been proposed by @GavinGiovannoni
Unstable EBV latency drives inflammation in multiple sclerosis patient derived spontaneous B cells
pubmed.ncbi.nlm.nih.gov/3677…
Why yes, for me, it does. Actual bloodwork and data. Being unable to get help because "it's still in research" is exhausting. #MS #EBVcausesMS #preprint
If your New Year resolution was to do more exercise to keep MS in check you are on the right track!
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Add your votes!
VOTE NOW: If I had to choose what the next #MultipleSclerosis medication did, I would want one that…
82%Slows disease progression
18%Reduces fatigue
45 votes • Final results SocietyWithMS retweeted
I strongly believe that EBV is central to the pathogenesis of MS. In our previous work, we demonstrated the presence of the virus directly in the brain of MS patients.
Hassani et al. Plus one,2018
SocietyWithMS retweeted
This is sooo true! That’s why @SocietyWithMS is a patient led movement that tracks over 100 clinical trials for MS. A lot of doctors don’t even know about the research we track. Be your own health advocate. We take HIV antivirals for #EBV that causes MS & having great results!🧡
SocietyWithMS retweeted
MS Reasons to be Hopeful in 2023
Last - not least - from neuro @ben_m_jacobs:
"The most exciting developments will be about progression - more trials (#octopus & #chariot), the big genetic study of progression out soon & seeing the paradigm shift re MS is a‘smouldering’ disease.
@jsakermar711 We hear you! Thank you for supporting our efforts. @SocietyWithMS is tracking all the FDA trials that can #CureMS and repair damage to the CNS. Also repurposed drugs can be prescribed now. See Antivirals For MS profile in our database
societywithms.org/research-d…
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The MS community has been supporting PwALS in their valiant efforts to secure early access to therapies in trials. Congratulations on securing funding to pay for Expanded Access fees to get #DrugsInBodies!
And thank you to so many of the ALS Champions & members of the Appropriations committee for making this possible.
@RepMikeQuigley @SenatorDurbin @lisamurkowski @ChrisCoons @SenatorBraun @RepKayGranger @SenatorLeahy @SenShelb
Heat intolerance exacerbates MS symptoms, but so can cold.
MS & Cold
Many with MS find their symptoms get worse in the heat, so u would think cold temps wld suit us all...
Turns out 5-10% of ppl find it worsens their symptoms - such as cramps & pain.
Here @nikosevangelou3 and @hyperism of
@MSTrust discuss.
youtube.com/watch?v=G8Ed4mZ7…
