๐จ๐ฆ National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
Canada
Joined December 2018
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Join us for a specialย 90-minute webinarย on theย New Canadian SIH Guidelines.
๐ย Tuesday, October 13, 2026โจโฐย 7:00 PM EDT | 5:00 PM MDT
Register in advance for free: shorturl.at/JQAN1
Spinal CSF Leak Canada Charitable Organization retweeted
great work lead by Zaid Saadeh! @MayoMN_RadRes
Spinal CSF Leak Canada Charitable Organization retweeted
Hard to put into words what this means.
A $50M gift to help us transform care for patients with CSF leaks.
Iโm incredibly grateful, humbled by the trust, and feel an enormous responsibility to make sure this changes what is possible for these patients.
A remarkable day. And really, just the beginning.
news.cuanschutz.edu/news-stoโฆ
Spinal CSF Leak Canada Charitable Organization retweeted
Chronic ventral or lateral spinal CSF leaks can cause progressive weakness and atrophy of the shoulders and upper extremities. It is often misdiagnosed and can mimic ALS. Early surgical repair is crucial @spinalCSFleak @alsassociation @issclsociety neurology.org/doi/10.1212/WNโฆ
Spinal CSF Leak Canada Charitable Organization retweeted
Excited to share this newly published pictorial review in @PedRadJournal: โDetecting the Drip: Pediatric Neuroradiologist Guide to Spinal CSF Leaks.โ
A practical approach to imaging, localization, and treatment of pediatric spinal CSF leaks. @The_ASPNR
link.springer.com/content/pdโฆ
๐จ"Although pediatric CSF leaks are rare, recognition of theirย imaging manifestations is critical, as delayed diagnosis
remains common."ย Mamlouk, M.D. Detecting the drip: pediatric neuroradiologist guide to spinal CSF leaks. Pediatr Radiol (2026). doi.org/10.1007/s00247-026-0โฆ
Spinal CSF Leak Canada Charitable Organization retweeted
For years, patients with spinal CSF leaks have struggled to explain just how disabling the condition can be.
New research puts a number on it, and the results suggest the burden may rival or exceed that of many other chronic neurological and pain conditions. bit.ly/4yckTeY
๐๐ก๐๐ง ๐๐ข๐ ๐ซ๐๐ข๐ง๐ ๐๐ฌ๐ง'๐ญ ๐ญ๐ก๐ ๐๐ก๐จ๐ฅ๐ ๐๐ญ๐จ๐ซ๐ฒ: ๐๐ง๐๐๐ซ๐ฌ๐ญ๐๐ง๐๐ข๐ง๐ ๐๐ฉ๐ข๐ง๐๐ฅ ๐๐๐
๐๐๐๐ค
Spinal CSF leak Canada is pleased to partner with Migraine Canada to present a special educational webinar.
Registration ๐
shorturl.at/97ue4
๐จ๐Canadian Publication๐จ
Clinical recurrence and rebound intracranial hypertension after transvenous embolization of cerebrospinal fluidโvenous fistulas
Kinsara R, Benomar A, Grobler R, Meng H, Kapadia A.โจJournal of NeuroInterventional Surgery, 2026.
jnis.bmj.com/content/early/2โฆ
๐จย ๐๐ง ๐๐ฆ๐ฉ๐จ๐ซ๐ญ๐๐ง๐ญ ๐๐ข๐ฅ๐๐ฌ๐ญ๐จ๐ง๐ ๐ข๐ง ๐๐ฉ๐จ๐ง๐ญ๐๐ง๐๐จ๐ฎ๐ฌ ๐๐ง๐ญ๐ซ๐๐๐ซ๐๐ง๐ข๐๐ฅ ๐๐ฒ๐ฉ๐จ๐ญ๐๐ง๐ฌ๐ข๐จ๐ง ๐๐๐ซ๐ ๐ข๐ง ๐๐๐ง๐๐๐!๐
cambridge.org/core/blog/2026โฆ
Spinal CSF Leak Canada Charitable Organization retweeted
๐ฃ Save the date for our next CSF leak rounds in September!
๐
When: Sept 15, 2026 - 12:30pmPT | 3:30pmET | 7:30pmGMT
๐ฃ๏ธ Presenters: neurologists Drs. Farnaz Amoozegar and Katharina Wolf
โ๏ธ Zoom link will be sent to all members closer to the meeting
ISSCL.org
๐จ๐๐จ๐ฐ ๐๐ฏ๐๐ข๐ฅ๐๐๐ฅ๐: ๐๐๐๐ข๐ง๐๐ซ ๐๐๐๐จ๐ซ๐๐ข๐ง๐
We extend our gratitude to Dr. @AndrewCallenMD & #DrIanCarrollMD, both valued members of our Medical Advisory Committee, for generously sharing their time, & expertise with our community.
youtu.be/kKBVaghMrQk
For 12 years, Nova Scotia patientย Christinaย lived with debilitating symptoms caused by #SpinalCSFLeak while facing repeated misdiagnoses, delays in care, and barriers to accessing treatment.
Read Christinaโs story:
spinalcsfleakcanada.ca/chtisโฆ
๐จ๐ฆ Happy Canada Day! | Bonne fรชte du Canada! ๐
Today we celebrate the people, cultures, and communities that make Canada so special. Wishing everyone a joyful and safe Canada Day filled with pride, kindness, and time spent with family and friends.
๐จ Only 1 day left until our most anticipated webinar! Weโve already reached 290 registrations- there are only 10 spots available.
Free registration: shorturl.at/HB2YN
#SpinalCSFLeak
๐ข Save the Date & Register Today!
FREE webinar
๐ Register here:shorturl.at/HB2YN
#SpinalCSFLeak
@AndrewCallenMD
#IanCarrollMD
Spinal CSF Leak Canada Charitable Organization retweeted
New in @TheAJNR :
Iโve never written a paper in quite this format before, but it came from a recurring issue I see in #spinalCSFLeak care.
For selected patients with suspected SIH, the neuroradiologistโs role may need to extend beyond the report.
The task is not just to interpret images, but to integrate the clinical story, prior imaging, myelographic technique, procedural options, and uncertainty into a coherent next step.
In a disease where the tests are imperfect and the techniques are evolving, patient-facing neuroradiology can meaningfully change care.
ajnr.org/content/early/2026/โฆ
๐จNew Publication ๐จ
โOut of the Reading Room: The Case for Patient-Facing Neuroradiology in Spinal CSF Leak Careโ
Andrew L. Callen
American Journal of Neuroradiology June 2026, ajnr.A9496; DOI: doi.org/10.3174/ajnr.A9496
