@UCSF_Bioethics

An interdisciplinary community of clinicians, researchers and educators addressing ethical questions in health and biomedical research.

 San Francisco, CA
bioethics.ucsf.edu
Joined November 2021
  • Tweets104
  • Following84
  • Followers156
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📣 #NewPublication "The Social Value of Genomic Sequencing for Disadvantaged Families Facing Rare Disease" by Simon Outram, PhD, @juliaehbrown, PhD, Sara Ackerman, PhD, MPH, via @NLM_NIH pubmed.ncbi.nlm.nih.gov/3627…

The social value of genomic sequencing for disadvantaged families facing rare disease - PubMed

This study explores parental expectations and value-making processes in respect to pediatric clinical genomic sequencing for socially disadvantaged families. Drawing on interviews and ethnographic...

pubmed.ncbi.nlm.nih.gov
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Have a research proposal that will help resolve an emerging or unanswered bioethics problem in clinical, biomedical, or public health decision-making, policy, or practice? Our Spring 2023 Making a Difference #RFP opens today. LOIs due 1/3/23. Learn more ➡️ greenwall.org/making-a-diffe…
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New publication from @JenJamesPhD provides some of the first qualitative data on the health effects of COVID mitigation strategies on incarcerated women. Participants describe confinement and isolation having serious effects on physical and mental health pubmed.ncbi.nlm.nih.gov/3639…

"Prison life is very hard and it's made harder if you're isolated": COVID-19 risk mitigation...

There has been little qualitative research on the mental health effects of the COVID-19 pandemic on incarcerated populations. This paper provides insight into the mental health effects of both the...

pubmed.ncbi.nlm.nih.gov
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A reminder to join us this afternoon at 4pm for our clinical ethics journal club meeting! We will be discussing ethical issues in psychedelics research. Please register at: ucsf.zoom.us/meeting/registe…
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The start of Neuroethics. #neuroethics2022
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New work by @MedCultureLab members @klharrisonPhD @sbgarrett @AlissaLily @gerimuse @dandohan and Christine Ritchie! "I Didn't Sign Up for This": Perspectives from Persons Living with Dementia and Care Partners on Challenges, Suppor… pubmed.ncbi.nlm.nih.gov/3624…

"I Didn't Sign Up for This": Perspectives from Persons Living with Dementia and Care Partners on...

Findings highlight the breadth and gravity of gaps, which surpass the disciplinary focus of either behavioral neurology or palliative care alone. Results can inform the development of novel interve...

pubmed.ncbi.nlm.nih.gov
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Join us for our clinical ethics journal club at 4pm today! We'll be discussing the role of medical technology in constructing 'brain death' and the meaningfulness of a distinction between appearing and being 'brain dead.' Register here: ucsf.zoom.us/meeting/registe…
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Dana Centers for Neuroscience & Society update: We’ve awarded planning grants to 11 US-based academic institutions to build and test plans for future hubs where multidisciplinary scholars can learn, exchange ideas, and collaborate. on.dana.org/11-planning-gran… #NeuroSociety
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These planning grants are the first phase of a two-part process; in the second phase, these 11 institutions will compete for grants to establish a Dana Center to catalyze promising people and projects at the crossroads between neuroscience and other fields. #neurosociety #scicomm
Graphic with logos from the 11 universities awarded planning grants

ALT Graphic with logos from the 11 universities awarded planning grants

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Congratulations Dr. @matthew_growdon on receiving a two-year @NIH-funded Grants for Early Medical/Surgical Specialists' Transition to Aging Research (GEMSSTAR) Award! #geriatrics #research #ucsf @ucsf Read more: geriatrics.ucsf.edu/news/mat…
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Join us tomorrow (9/22) at 4-5pm for our clinical ethics journal club meeting! @michael_train10 will be leading a discussion on caregiver-physician communication for patients with disorders of consciousness. As always, info at tiny.ucsf.edu/ClinEthicsJC. See you there!
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Thank you so much to everyone who came out to the book launch of The Clozapine Clinic by @juliaehbrown last night. It was wonderful getting to see colleagues old and new
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Wonderful to support my dear friend and colleague @juliaehbrown at the launch of her book The Clozapine Clinic @UCSF_Bioethics
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Congratulations Drs. John Newman (@GeriSciDoc) and Eric Widera (@EWidera) for receiving Academy of Medical Educators 2022 Excellence in Teaching Awards! meded.ucsf.edu/faculty-educa… #geriatrics #education #hpm #ucsf @ucsf
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UCSF Bioethics retweeted
Jen James@JenJamesPhD6 Sep 2022
Excited that this paper is finally out! @GalenJoseph1 & I explore some of the tensions in the ever-blurring boundary btw research & clinical care. As we move to more pragmatic trials & more population genomics, new models to navigate emerge. #EmbeddedELSI tandfonline.com/doi/full/10.…

“It’s personalized, but it’s still bucket based”: the promise of personalized medicine vs. the...

Adaptive pragmatic clinical trials offer an innovative approach that integrates clinical care and research. Yet, blurring the boundaries between research and clinical care raises questions about ho...

tandfonline.com
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UCSF Bioethics retweeted
UCSF IHPS@UCSF_IHPS2 Sep 2022
Health policy fellowship opportunity @UCSF_IHPS! Applications are due Nov 7, 2022! Train with smart, fun people while learning the tools you need to transform health and healthcare. healthpolicy.ucsf.edu/educat…
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Publication alert: New guidance from @GeneticsSociety on addressing underrepresentation in genomics via community engagement authored by faculty member @jharriswai and colleagues pubmed.ncbi.nlm.nih.gov/3605…

Addressing underrepresentation in genomics research through community engagement - PubMed

The vision of the American Society of Human Genetics (ASHG) is that people everywhere will realize the benefits of human genetics and genomics. Implicit in that vision is the importance of ensuring...

pubmed.ncbi.nlm.nih.gov
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UCSF Bioethics retweeted
Galen Joseph@GalenJoseph12 Sep 2022
the promise of personalized medicine --now out in New Genetics and Society with my amazing co-author @JenJamesPhD tandfonline.com/doi/full/10.… @UCSF_HumSci @UCSF_Bioethics @UCSFCancer @UCSFPrecision

“It’s personalized, but it’s still bucket based”: the promise of personalized medicine vs. the...

Adaptive pragmatic clinical trials offer an innovative approach that integrates clinical care and research. Yet, blurring the boundaries between research and clinical care raises questions about ho...

tandfonline.com
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UCSF Bioethics retweeted
ELSIhub | CERA@ELSIhub25 Aug 2022
Explore the latest #ELSI collection entitled: "Ethical issues related to research uses of residual dried bloodspots from newborn screening," edited by @alwaysgofwd, @juliaehbrown and @ajgoldenberg ow.ly/E9y250KpnNL
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Please come join us on Wed Oct 26 for a Campus Forum: Imagining Decolonization and the Health Sciences @DrRupaMarya @JayZussman @KxraZamora @DrAlexisCooke
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