Design + Brand Development | Founder + Managing Dir of ACCKT Adenoid Cystic Carcinoma Kids + Teens | Cycle For Survival '18, '19, '20
Connecticut
Joined September 2009
- Tweets2.3K
- Following210
- Followers959
- Likes158
Honored to announce the launch of @ProOurFrontline . #COVIDー19 #COVID19 #CoronavirusUSA #coronavirus #protectourfrontliners #protectourfrontlineworkers
#ProtectOurFrontline We are a group of volunteers dedicated to ensuring that the healthcare professionals and hospital staff on the frontlines are fully supported by their communities during the COVID19 crises. Follow on Twitter, Facebook & Instagram as we Protect Our Frontline.
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Amy Heller retweeted
#TeamHOPP is nearing $2M raised through @Cycle4Survival! @CancerProjectUS is partnering w/us to “MakeanImpact” w/a $44K match for all donations received through March 6! < $80K to go, we will do this together! Pls consider a $5 donation mskcc.convio.net/goto/Solit2…
Hey there @simplesimmosays - did you write this article? If so, can you pls PM me? thesun.ie/sport/boxing/51354…
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For your generosity.
For your hard work.
For your dedication.
For the miles you've put in on a bike.
WE THANK YOU ALL!
From ACCKT and Team ACCelerate, Happy Thanksgiving!
#adenoidcysticcarcinoma #cycleforsurvival #ayacancer #rarecancer #mskkids #memorialsloankettering
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Amy Heller retweeted
Read new work from Frederic Kaye and colleagues on new models and therapies for #adenoidcysticcarcinoma including our MYBMIM inhibitor: MYB-activated models for testing therapeutic agents in adenoid cystic carcinoma: sciencedirect.com/science/ar… @amyhellerdesign @accrf_org
Check out the updated ACCKT website. Filled with new content spec. for the parents of and patients originally dx w ACC between age 0-20. Resources, fundraising, research +more! acckt.org
#adenoidcysticcarcinoma #ChildhoodCancer #rarecancer #findacure
Amy Heller retweeted
Terrific meeting on adenoid cystic carcinoma: new biology of MYB, NOTCH, immunotherapy and new clinical trials for patients and exceptional support @accrf_org
Amazing to see what goes into this dynamic and life-changing event!
The Cycle for Survival events take a village! From @Equinox's incredible instructors, to the doctors and researchers from @sloan_kettering, and the 36K participants who attended—THANK YOU to everyone who helped make this year’s rides possible.
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Amy Heller retweeted
Our Team HOPP Captain @BarbaraSolit inspiring family, friends, patients, cancer survivors, and @Sloan_kettering physicians, nurses and staff @Cycle4Survival Bryant Park. Team HOPP has now raised $1.5 million over the past 8 years for rare cancer research.
🧡🧡🧡 THANK YOU @BarbaraSolit, @DSolit, @Cycle4Survival, #TeamHOPP and @sloan_kettering for believing in me, validating my questions and insistence on research for pediatric onset ACC!! #fightingtogether #adenoidcysticcarcinoma #rarepediatriccancer #battlecry
Thank you for helping spread the word about Pediatric ACC!
@amyhellerdesign and #TeamACCelerate have raised more than $70,000 through @Cycle4Survival to fund the 1st Pediatric ACC study: mskcc.org/research-programs/…
To contribute to #PediatricACC research: mskcc.convio.net/site/TR/Cyc…
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This is what it's all about for me. To donate: bit.ly/ACCelerateNYC
@Cycle4SSurvival make a tangible impact in childhood cancers like those w/ Adenoid Cystic Carcinoma (ACC). Only 10/1834 pts w/ ped ca @sloankettering hv ACC. W/ no targetable genetic alterations donate to #TeamHOPP @ bit.ly/2FX50Tv to help ACC research @BarbaraSolit
We're so proud of our Team ACCelerate and their efforts in fundraising for ACC research through Cycle for Survival!
In fact, we've just added a Chicago team, and they've been doing… instagram.com/p/BsvoNuXFf3Q/…
Amy Heller retweeted
MSK's Make-An-IMPACT program provides genetic sequencing & testing at no cost to qualifying patients with rare cancers. It's open to patients worldwide and there's no need to travel to MSK. Read more about becoming a volunteer: bit.ly/2BSMIPS
Amy Heller retweeted
“Traditionally in cancer therapy, we've treated patients based on where their cancer came from, what part of the body. What makes Vitrakvi (#Larotrectinib) unique is that it works regardless of where the cancer came from as long as it has the specific mutation." @DHymanMD
FDA approves a new cancer drug targeted to genetic mutation, not cancer type. nbcnews.to/2RhmMD2
Tomorrow is #GivingTuesday. Our @Cycle4Survival fundraising in 2018 resulted in the very 1st study in pediatric #AdenoidCysticCarcinoma through the #MakeAnImpact program at @sloan_kettering. ✔️out what we’ve done in 8mos! Help us do more in ‘19. TO DONATE: bit.ly/ACCelerateNYC
Tomorrow is #GivingTuesday. Our @Cycle4Survival fundraising in 2018 resulted in the very 1st study in pediatric #AdenoidCysticCarcinoma through the #MakeAnImpact program at @sloan_kettering. ✔️out what we’ve done in 8mos! Help us do more in ‘19. TO DONATE: bit.ly/ACCelerateNYC
Amy Heller retweeted
LUCKY to have the most dedicated team of physicians, researchers and staff @sloan_kettering working hard every day to solve extraordinarily rare cancers including #ovariangermcell #cervical & #adenoidcysticcarcinoma.
YOU ARE ALL AMAZING & have my continued support. #Whyweride
Reviewing patient accrual with Dalicia Reales, the Research Project Manager for Make-an-IMPACT, the @sloan_kettering patient-partnered genomics study. This initiative provides free tumor genomic testing to patients with select rare cancers. mskcc.org/research-programs/… @Cycle4Survival
Our 2019 @Cycle4Survival team is going NATIONAL to ACCelerate research for #AdenoidCysticCarcinoma supporting our Pediatric ACC study through @sloan_kettering’s Make-An-IMPACT program as well as additional ACC research taking place at MSK.today.com/video/cycle-for-su…
Join us!
Thank YOU, @DSolit for your unwavering support and dedication to this mom’s (and many other moms’ and dads’) need for information and better treatment options for this complicated, relentless and incredibly rare cancer in our kids.
Amy, I am so inspired by your unwavering support for research on the biologic causes of ACC in pediatric and young adult patients. There is an urgent need for better and less toxic therapies for this rare cancer. I look forward to riding with you @Cycle4Survival. #GetitDone