X-ray radiographer at @UHS_Radiology & @CityStG_Health doctoral researcher exploring emergency department experiences of #autistic, #ADHD & #AuDHD people

Southampton, England
Joined May 2020
The survey is closed ✅ A huge thank you to everyone who took part and shared it. I know it wasn't an easy survey. Sharing personal health experiences takes a toll. I will do all I can to make sure those voices are heard. Watch this space. needsproject.co.uk
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Ben Potts retweeted
This book and all Naomi Fisher’s posts fit very neatly into the Labour government’s desire to cut benefits for people who have autism. This is on the same page as Wessely’s approach to ME patients… trying to push the cat (autism) back into the box - force fitting.
I’ve had misgivings about what is going on in the autism world for a while. Misgivings about the way that many clinicians are going along with narratives which are not based in science, and which seem to be largely based on the say-so of a few, very influential, activists. I’m concerned about the way that we have accepted that expanding autism to include more people is the right thing to do, and how little time we have given to asking what ‘neurodivergence’ really is - and whether it might not be such a good idea to refer to ‘neuro’ all the time when we know that people tend to understanding neurological explanations as ‘set in stone’. But the thing which makes me most concerned was how hard it is to talk about it. When pioneering researchers like @utafrith say that they think we need to rethink the autism spectrum, they are treated as if they are in the stocks. Rotten tomatoes, in the shape of internet insults, are hurled. It’s as if the crowd is shouting ‘shut up shut up shut up’. Except not as politely as that. Whenever I see something like that happening, it makes me more, rather than less, interested. I wonder what they are trying to hide. What is being covered up here? Why is it so important to stop some questions from being asked? For if we can’t disagree, then we can’t conduct science. There is no way to improve our knowledge if we can’t have balanced discussions about why something is happening. That’s why I wrote my latest book, which will be coming out in Feb 2027. It’s the inside story of how autism has expanded, and why that matters to us all. It's just too important to keep quiet about, even while the rotten tomatoes are hurled.
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Last day. Our survey on emergency department experience closes tonight. Any adult in the UK who has ever needed emergency care, whether or not they attended. Around 15 minutes, anonymous. EDsurvey.link
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Our survey closes tomorrow, so this is the last time I will ask. Any UK adult who has ever needed emergency care, whether or not they attended. 15 mins, anonymous. Thank you to everyone who has taken part and passed it on. EDsurvey.link
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Our survey on emergency department experience closes tomorrow. Any adult in the UK who has ever needed emergency care, whether or not they attended. Any visit, any year. Around 15 minutes, anonymous. EDsurvey.link
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Our survey on emergency department experience closes on Friday 25 September. Whatever is in it on Friday is the dataset. Any UK adult who has ever needed emergency care, whether or not they attended. 15 mins, anonymous. EDsurvey.link
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Have you been to A&E? Can you help with our survey? Our national survey closes this Friday, 25 September. Any UK adult who has ever needed emergency care. 15 mins, anonymous. Take part and find out more: EDsurvey.link #NHS #AandE #EmergencyDepartment #HealthResearch
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Have you been to A&E? Can you help with our survey? Our national survey closes this Friday, 25 September. Any UK adult who has ever needed emergency care. 15 mins, anonymous. Take part and find out more: EDsurvey.link #NHS #AandE #EmergencyDepartment #HealthResearch
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We have less than two weeks left in our national survey on emergency department experiences. If you are Autistic or ADHD and have been to A&E, we would still love to hear your views and about your experience. Take part: EDsurvey.link #AutRes #ADHDRes #Autism #ADHD
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Less than two weeks left on our national survey of emergency department experience. It asks what goes wrong in A&E and what works well. Anonymous, takes around 15 mins, closes 25 September. EDsurvey.link #NHS #AandE #Emergency #Heathcare #Research #HealthResearch
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One thing we have very few answers to: have you ever needed A&E and not gone, or left before you were seen? Both are recorded nationally and neither is well understood. Our survey asks about it. Any UK adult, 15 mins, anonymous. EDsurvey.link
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A journal editorial asked whether autism has lost its meaning. A documentary asked whether ADHD is real. New blog post on what that does next: to the people who quietly decide not to seek an assessment, or not to tell their doctor. blogs.city.ac.uk/needs/autis… #Autism #ADHD
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Sharing this again because the question keeps getting answers. How did you decide it was bad enough to go to A&E? Nothing official records that part. Our national survey does. Any UK adult, 15 mins, anonymous. EDsurvey.link
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Our President Prof Subodh Dave has responded to Channel 4's documentary ‘The Great ADHD Myth?'. He said: "The way we speak about neurodevelopmental conditions really matters. It can fuel harmful stigma experienced by people living with the condition and risk discouraging people from seeking the support and treatment they need." There needs to be better understanding of the rise in ADHD diagnoses and more focus on ensuring people can access high-quality care & support. Read more ⬇️ shorturl.at/dFfVh
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Ben Potts retweeted
ADHD was a considered a thing right up until they started mass diagnosing women, many of them over 35. Woman’s health has always been dismissed as ‘in their head’ - this documentary will age badly.
Our President Prof Subodh Dave has responded to Channel 4's documentary ‘The Great ADHD Myth?'. He said: "The way we speak about neurodevelopmental conditions really matters. It can fuel harmful stigma experienced by people living with the condition and risk discouraging people from seeking the support and treatment they need." There needs to be better understanding of the rise in ADHD diagnoses and more focus on ensuring people can access high-quality care & support. Read more ⬇️ shorturl.at/dFfVh
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I’m pleased to see so many posts condemning the Channel 4 ADHD “documentary”, that attacked ADHD & people’s need for support without fair representation. I won’t add to that excellent work but I want boost the @adhdukcharity call to complain to Ofcom. adhduk.co.uk/challenging-c4-…
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Most people remember the waiting more clearly than the treatment. How long it went on, whether anyone told you what was happening, whether you knew where to sit. Our national survey is asking about that. Any UK adult. 15 mins, anonymous. EDsurvey.link
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Ben Potts retweeted
Channel 4 has aired "The Great ADHD Myth?". Together, we're responding. Please consider filling in our survey and complaining to Ofcom. Tell us the impact: our survey is collecting the evidence of what this programme has actually done - to how people see ADHD, and to people with it. A few minutes, anonymous, and it builds the record we'll take to Ofcom and Parliament. Complain to the regulator: our page has a ready-made Ofcom complaint: customisable, copy, paste. Both are here: adhduk.co.uk/challenging-c4-… #adhd
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Deciding whether to go to A&E is its own ordeal. Is it bad enough, can it wait, am I being silly. Our national survey asks about that, and about what happened once you got there. Any UK adult who has ever needed emergency care. 15 mins, anonymous. EDsurvey.link
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