@bluebefore

they/them @cherche__encore how about more care less "mental health" digital autonomy / data justice for disabled people and survivors!

Joined May 2013
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Kilroy Was Here@1kilroywashere30 Aug 2025
'Coventry council to use Palantir AI in social work, Send and children’s services msn.com/en-gb/news/uknews/co… @paulapeters2 @RITB_ @RandolphTrent @BigBrotherWatch @SusanChubb1 @leanahosea @irisstylosa @vamroses @Glennademeter @premnsikka @BadPutty
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THE FIGHT IS NOT OVER to protect chronically ill & disabled people! A White Paper is coming THIS AUTUMN which is going to take a wrecking ball to incapacity benefits (LCW/LCWRA/ESA) DON'T REPEAT THE SAME MISTAKES THAT LED TO THE UC BILL READ & OPPOSE! lurgeelife.wordpress.com/202…

The 5 remaining “Pathways to Work” proposals & the 2025 autumn White Paper: What’s the likely imp...

A blog by Liz @LurgeeLife ——– Since the Universal Credit Bill passed the House of Commons and the House of Lords you’d be forgiven for thinking that the current ‘welfare war’ for …

lurgeelife.wordpress.com
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Our response to the Universal Credit and Personal Independence Payment Bill 📢 We've shared a detailed breakdown of what's in the bill, why we oppose it and what you can do to resist disability benefit cuts. #StopTheCuts #TakingThePip Find out more: buff.ly/igJ3qFt
Stop the cuts. Act now to stop disability benefit cuts.

ALT Stop the cuts. Act now to stop disability benefit cuts.

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The government claims cutting disability benefits is about getting people into work. But they haven't produced evidence backing this up. Meanwhile, an FOI request reveals that these cuts would remove PIP from 281,000 of the 510,000 claimants currently in work #TakingThePIP
Chaminda Jayanetti@cjayanetti17 Jun 2025
Private Eye has found that that 281,000 PIP claimants *already in paid work* stand to lose out under the proposed cuts (i.e the four-point rule) That's 55% of all PIP claimants in paid work, according to the article (not my article but I want to flag it)
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Everything about this bill is calculated for cruelty. It really makes me see red when clinical academics, faced with an avalanche of deliberately deadly policies, insist that what's needed is more evidence. This policy is not built on evidence; it can't be fought through evidence
Lucy Easthope@LucyGoBag18 Jun 2025
Nooooooo? They snuck that little blighter in there. Lots of people have health conditions diagnosed in private sector and through employment insurance schemes. WOW
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#DisabilityBenefits The second reading of The Universal Credit and Personal Independence Payment Bill will be on Tuesday, 1st July 2025 This is when MPs will vote on disability benefit cuts It’s vital you contact your MP and keep piling the pressure on.
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MPs vote to support assisted dying bill MPs have voted 330 to 275 in support of the assisted dying bill A difference of 55 We will never give up fighting ✊
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I still recall the shame I felt as a social worker sat in my home & talked about my very large care package. We’re not considering assisted suicide in the context of an ideal scenario but within our current failing systems: touretteshero.com/2024/10/29… #AssistUsToLive @TheNotDeadYetUK
A digital drawing by Jess Thom. Text in the top right corner reads: A Comparison of Waiting Times for Disability Support and Assisted Suicide. Based on previously proposed legislation, personal experience and data - November 2024. At the top of the image is a black silhouette of a wheelchair user a black line reaches from them to different types of support in order of how long the wait is likely to be. Each has a black symbol on a yellow background to reflect the text. Text includes: Assisted Suicide - 2 weeks, Mental Health Services - 3 months, Personal Independence Payment - 5 months, Access To Work - 8 months, social care -11 months, wheelchair - 1 year, pain specialist - 2 years and accessible housing - 47 years.

ALT A digital drawing by Jess Thom. Text in the top right corner reads: A Comparison of Waiting Times for Disability Support and Assisted Suicide. Based on previously proposed legislation, personal experience and data - November 2024. At the top of the image is a black silhouette of a wheelchair user a black line reaches from them to different types of support in order of how long the wait is likely to be. Each has a black symbol on a yellow background to reflect the text. Text includes: Assisted Suicide - 2 weeks, Mental Health Services - 3 months, Personal Independence Payment - 5 months, Access To Work - 8 months, social care -11 months, wheelchair - 1 year, pain specialist - 2 years and accessible housing - 47 years.

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📢We have written to Wes Streeting, Secretary of State for Health and Social Care, to outline the key areas we think should be a priority for the new Government to improve care for those living with mental ill-health, distress and trauma. Read the letter: nsun.org.uk/news/nsuns-ceo-w…

NSUN's CEO writes to Wes Streeting

Our CEO Mandy Crandale has today written to Wes Streeting, outlining three areas we think should be a priority for this new Government.

nsun.org.uk
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New flyer! Made by someone based on their lived experience of oxevision use Remember: it’s not consent if you’re scared to say no.
Flyer on a cork board. Images of Oxevision and someone crying. It reads IT’S NOT CONSENT IF YOU’RE SCARED TO SAY NO. For your consent to be valid it has to be voluntary, you must have capacity and be fully informed on the technology beforehand. It is not consent if they use guilt trips, pressure tactics or threats to influence your decision. There shouldn't be consequences if you say "no". If you or someone you know has had non-consensual experience of a vision-based monitoring system in hospital, contact Stop Oxevision. www.stopoxevision.com

ALT Flyer on a cork board. Images of Oxevision and someone crying. It reads IT’S NOT CONSENT IF YOU’RE SCARED TO SAY NO. For your consent to be valid it has to be voluntary, you must have capacity and be fully informed on the technology beforehand. It is not consent if they use guilt trips, pressure tactics or threats to influence your decision. There shouldn't be consequences if you say "no". If you or someone you know has had non-consensual experience of a vision-based monitoring system in hospital, contact Stop Oxevision. www.stopoxevision.com

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"The Government must take responsibility and act to ensure that no one else has to endure what I, and many others, have had to face." Read the fourth blog in our 'Mental Healthcare in a Failing State' series on the NSUN website. nsun.org.uk/how-eating-disor…

How eating disorder care got thrown down the drain

Four years ago, I was discharged from an inpatient eating disorder ward in London, but I shouldn’t have been.

nsun.org.uk
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This patterning is linked to death by suicide and homicides and has been for over 40 years. Don’t get rid of CPA.
This Post is from an account that no longer exists. Learn more
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We just need a few more contributions to reach our stretch target and be able to send copies to relevant local politicians as well as MPs.
Disability News Service@johnpringdns8 Aug 2024
Crowdfunder success means every MP will receive copy of book that lays bare decades of DWP violence #DWP #TheDepartment @PlutoPress @EllenClifford1 @blacktriangle1 disabilitynewsservice.com/cr…

Crowdfunder success means every MP will receive copy of book that lays bare decades of DWP violence

Thanks to the success of a crowdfunding initiative, every MP is to receive a copy of a book that investigates how the Department for Work and Pensions (DWP) caused countless deaths of disabled bene…

disabilitynewsservice.com
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So #DWP has just published stats on #UniversalCredit migration notices sent out between July 2022 and Feb 2024. More than a third of individuals did not claim UC and their legacy benefits were closed. This is hugely concerning, isn't it @stephenctimms? gov.uk/government/statistics…

Completing the move to Universal Credit: Statistics related to the move of households claiming Tax...

gov.uk
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A group of disabled People in the London sunshine at parliament square taking part in DPAC’s celebration of Disabled People’s creativity and our demands for the new government Image by @paulapeters2 #DisabledPeopleDemand
A large group of disabled people, parliament Square London waving banners in the sunshine image by Paula Peters DPAC

ALT A large group of disabled people, parliament Square London waving banners in the sunshine image by Paula Peters DPAC

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Were you an NHS inpatient between Oct 2021 and Apr 2023 at any of these Trusts? @TEWV @rdash_nhs @EPUTNHS You may have been filmed in your inpatient bedroom without your knowledge or consent and footage of you sent to researchers. @katiecoletv #StopOxevision
Recovery in the Bin@RITB_15 Jul 2024
Why is @NHSEngland allowing oxevision to be rolled out without proper scrutiny and used as an experimental tool on non-consenting NHS inpatients who are filmed in their hospital bedrooms like rats in a lab? @TEWV @rdash_nhs @EPUTNHS
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so wes wants a clinical trial for puberty blockers. as if that leads to any kind of real "evidence". disabled ppl know the mechanism so well: don't listen to us, instead demand "evidence-based interventions" but oops the evidence comes from the health tech manufacturer?
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in academia procedural ethics is so often dissociated from actual ethics. doesn't matter your uni says it's ok if you're researching people who never consented to be surveilled. shame on those researchers. scrap the project, scrap the tech, stop harming survivors.
Stop Oxevision@StopOxevision15 Jul 2024
Today we sent a letter to the HRA asking for retraction of ethical approval of a study that involved analysing blurred video of patients in their bedroom for up to 2 hours prior to self-harm The patients have no idea they’ve been part of this study. They were never asked consent
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Why is @NHSEngland allowing oxevision to be rolled out without proper scrutiny and used as an experimental tool on non-consenting NHS inpatients who are filmed in their hospital bedrooms like rats in a lab? @TEWV @rdash_nhs @EPUTNHS
Stop Oxevision@StopOxevision15 Jul 2024
Today we sent a letter to the HRA asking for retraction of ethical approval of a study that involved analysing blurred video of patients in their bedroom for up to 2 hours prior to self-harm The patients have no idea they’ve been part of this study. They were never asked consent
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