Nick H retweeted
CD19-CAR T cells clear the EBV-infected B cells that carry autoreactive antibodies. Rituximab doesn’t. That may be why only one of them produces lasting remission.
New Robinson Lab preprint led by me and @panditmahes. 🧵
biorxiv.org/content/10.64898…
Nick H retweeted
Our new work using virus-specific T cells as biosensors in Long COVID. These data point to viral persistence detected by T cells and some level of T cell exhaustion. Excellent work by @markmpainter biorxiv.org/content/10.64898…
Nick H retweeted
Five years ago, Beth Dobbin was an Olympian
Today, ME leaves her in bed 22 hours a day
Even this interview could cost her months of health
But she spoke anyway, because millions are suffering in silence, and she knows her voice might help them be heard
bbc.com/sport/athletics/arti…
Nick H retweeted
CDC sent me the 2025 NHIS data this week, and one number stuck with me.
8.7 million American adults were living with Long COVID in 2025.
That's 1 in 30 of us.
It's easy to stop seeing a crisis once it stops being new.
It's still happening.
cdc.gov/nchs/nhis/documentat…
Nick H retweeted
Working thread of published research on COVID 19. Every claim links to a real study. Published, peer-reviewed research from journals like Nature, The Lancet, BMJ, and Nature Medicine. Not speculation, this is what the mainstream science says. Please take it seriously.
Nick H retweeted
Institut Pasteur researchers found SARS-CoV-2 RNA in the nervous system 80 days after acute infection in animal models, with signs of viral replication and disrupted neuronal metabolism, including pathways involved in dopamine.
pasteur.fr/en/whats-new/late…
Nick H retweeted
UCSF, 57 people. Gut biopsies found SARS-CoV-2 RNA in 27% with Long COVID, including double-stranded RNA in short-lived intestinal cells, suggesting ongoing viral activity or repeated exposure while immune clearance pathways were weakened.
bloomberg.com/news/articles/…
Nick H retweeted
The best way of treating the autoimmune condition multiple sclerosis seems to be through antivirals that target the Epstein-Barr virus, the same pathogen behind glandular fever, or mononucleosis. newscientist.com/article/257…
Nick H retweeted
RECOVER studied 74 autopsies and found replicating SARS-CoV-2 in the heart in 11 cases.
82% had cardiac Long COVID symptoms.
The virus was found inside heart muscle cells alongside immune and structural changes, supporting viral persistence.
my.uscap.org/uscap/program/S…
Nick H retweeted
“Exposure to respiratory viruses before a baby’s first birthday — when immune systems are immature and before most childhood vaccinations — consistently predicted reduced earnings, education and health decades later.”
ALT Screenshot of Washington Post headline: “Your birth order affects your future, but not for the reason you think Why birth order leaves an indelible mark has long eluded scientists. Now we have some answers that suggest what parents and policymakers can do about it.”
Nick H retweeted
i cannot stress enough the importance of the idea that the entire world is looking for specific stories and scenarios to grasp onto in order to understand the forward looking possibilities.
The aperture for what visions of the future people/companies/governments will internalize and then work off of is wide open because so few are willing to imagine and produce specific, time-bound scenarios.
Nick H retweeted
The independent research by a world renowned breast cancer oncologist at UCLA, Dr Aditya Barda, breaks news today at AACR that consistently shows regardless of the stage of BREAST CANCER, that post Covid lymphopenia results in poorer prognosis, poorer response to treatment and even 2x higher recurrence when patients are in remission. The relationship of low NK and low T cells to breast cancer ( and frankly all cancers ) is so clear.
Will share his data that he presented at major breast cancer conferences and now at AACR next. Very compelling
Nick H retweeted
By rapidly quantifying interferon-stimulated genes (ISGs) expression across 220k RNA-seq data sets from diverse animals, we comprehensively identified “hidden viral infections” in wildlife and livestock (1/n).
biorxiv.org/content/10.64898…
Nick H retweeted
What is persistent #SARS-CoV-2 Spike doing in gut tissue in situ?
In our new preprint, we used spatial transcriptomics, RNAscope, GeoMx DSP, and multiplex IF to investigate biopsies from #LongCOVID
The immune dysfunction happen on spike + regions of LC.
biorxiv.org/content/10.64898…
Nick H retweeted
Wow. I’ve always wondered if the antibiotics I took for a kidney stone right before COVID played a role in my long COVID.
This discovery makes you wonder how many things we once called mysterious are really just bacteria or viruses and now we have the tools to confirm.
Most kidney stones are made of calcium and were long believed to be free of bacteria. NIH-funded researchers have now found that bacteria are a key part of kidney stones, including types once thought to contain none. This discovery could lead to new treatments to prevent or remove kidney stones. bit.ly/4sCP9wO
ALT A medical professional performs an ultrasound on a patient's abdomen in a clinical setting. The text reads, "RESEARCH HIGHLIGHT: Bacteria play key role in kidney stones." Logos for NIH and the Department of Health and Human Services are visible.
Nick H retweeted
54 year old Jari Litmanen opens up about years of long Covid that left him unable to play for 4 years.
The former Liverpool and Ajax star says returning in 2024 legends games felt like a new life and he is now almost fully recovered.
nytimes.com/athletic/7037490…
Nick H retweeted
Talking Again in 2025
I started eating again in 2024. After 11 years not eating a crumb of food or even drinking a drop of water. I got all fluids and nutrition from tubes inserted into my body. For 11 years.
In 2025 I have another big improvement to announce.
I have started ‼️ TALKING ‼️ again after 12 years of not saying a word to anyone!
What will 2026 bring❓
Talking has been truly AMAZING. A slow process, it started when I slowly started feeling like I could talk again, but my stress response was still very high about it and it was hard to breach that stress wall and say the first words to someone. I first talked to my best friend, who I am really close with, comfortable with and feel very safe with so my stress levels are lower with her. I practiced talking to her on calls and video calls for about 6 months before talking to anyone else. Then I moved on with a few more close friends. It was hardest with my parents and caregiver because of the incredibly high stress I have been through with them in the past during my sickest years - my stress response seems to still be high with them - sensing danger likely due to a PTSD response mixed with the messed up fight or flight response in ME/CFS. But I am now talking to everyone! It is sooo much easier with my caregiver to just tell her what I need instead of pantomiming every little thing for sometimes a long time until she figures it out. What a relief! And I can have conversations with friends and loved ones!
I just said goodbye to a lifelong friend who is dying and I got to talk to her on the phone and tell her how much she means to me, the impact she has had on my life, how wonderful she is; And then say goodbye. It was profoundly sad, but it meant the world to me that I got to talk to her and say goodbye at all. She is not online and does not text, so it would have been so devastating not to have that last connection with her…
Read, watch or listen to the whole post on my blog!
whitneydafoe.com/mecfs/?post…
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#mecfs #chronicillness #pwME #LongCovid #Disability