@byowife

god nerfed me with Sick to protect u all. always right and showing my ass in SOME wayšŸ”ž - shut me up by supporting my endless struggles below!!šŸ«¶beem: eeitšŸ™ily

 wurundjeri country ā€œaustraliaā€
linktr.ee/afterpay
Joined May 2012
  • Tweets109K
  • Following3.7K
  • Followers8.8K
3.9KMedia
same as it ever was
35
27
1
1,286
76,876
queen of Headaches retweeted
melissa@ArtistAffame10h
Iā€™ve seen a number of economists now saying when they go shopping thereā€™s other people shopping and doubting reports from charities to hint at no cost of living crisis. We know poverty has grown to 1 in 7 adults
22
34
3
185
2,791
iā€™d be deserving of love & care if i could ever just finally get genuinely betterā€”body & mind. iā€™m too difficult to love when iā€™m being constantly crippled traumatized distressed in agony without reprieve but when things are okay iā€™m really nice. i just donā€™t know theyā€™ll ever be
1
1
12
287
Or something. I need to go to bed
1
6
70
sounds way more self-pitying than intended lol. what sucks is that i genuinely believed i was & that i would be loved even when it was difficult and it sucks that i turned out to be wrong about that. bc now i have decades of healing before iā€™ll ever have anything to offer againšŸ˜­
1
4
queen of Headaches retweeted
jeremy poxon@JeremyPoxon8h
NEW rights guide for people in employment services How to resist job agency bullshit, avoid punishments, and find the easiest pathway through mutual obligations. Share far and wide Online version here: bit.ly/MOsurvival Order a physical copy here: bit.ly/OrderMOsRightsGuide
2
46
2
73
1,727
queen of Headaches retweeted
heather šŸ’«@_hxneyglowOct 25
sometimes you just gotta sit with the fact that after all of the trauma you actually will never be the same and it did change you fundamentally and thereā€™s no going back
25
696
63
3,352
143,510
queen of Headaches retweeted
heather šŸ’«@_hxneyglowOct 25
i can heal as much as i can and i can try to become a new version of myself and thatā€™s good! itā€™s not that its hopeless. but iā€™ll never be the same, and i miss the version of me before.
1
30
5
353
6,643
queen of Headaches retweeted
heather šŸ’«@_hxneyglowOct 25
surviving took Something from me and it was integral
3
26
1
258
6,008
queen of Headaches retweeted
Isanthrope@IsanthropiaOct 24
It is not inevitable that you catch Covid. It is, however, extremely difficult to avoid it. This thread is not an admonishment to anyone whoā€™s caught it in this round. Itā€™s to help those who feel itā€™s hopeless because everyone is catching it right now. šŸ§µ
9
109
7
643
14,141
queen of Headaches retweeted
Polly Patterson
@PollyPAuthor18h
Inspired by the amazing Beth Dobbin and the woeful uptake of ME/CFS training by healthcare professionals in the NHS, I've been working on trying to consolidate everything policymakers and open-minded healthcare professionals need to know into a five-minute video. If you think it's of use, please feel free to share it with whomever. šŸ’š Please remember, I'm bedbound and using my very limited spoons on paced advocacy work instead of hobbies I can no longer do, because I passionately believe in change for all of us. Grace and constructive engagement are always appreciated. šŸ’š #MEcfs #LongCovid #FND #MyalgicEncephalomyelitis #NHS #PublicHealth #MEawareness
8
39
2
107
1,868
queen of Headaches retweeted
grape king@titdanceOct 24
i was so desperate to not see myself as disabled that i constantly injured myself and put myself in weeks long PEM flares for the first 2-3 years of having LC. itā€™s such a devastating thing even just emotionally to feel your body fail you like that. physically itā€™s incomparable
Eliza@elizacloveOct 24
I felt pressured to push through this illness and ā€œwalk my way out of itā€ so I decided to do 10,000 steps and I ended up crying in a field and had to get picked up. I was then in PEM for a solid 3 months from that walk alone. Donā€™t listen to Drs on here telling you to exercise.
8
48
1
553
9,463
queen of Headaches retweeted
Hans Collin@HansCollin2Oct 23
El virus de Covid ha evolucionado a un punto en que ahora es 3 veces menos reconocible por los linfocitos. biorxiv.org/content/10.64898ā€¦ Al ser menos reconocible, puede ā€œdespertarā€ con mĆ”s facilidad a otros virus que estaban en el cuerpo en estado de latencia. science.org/content/article/ā€¦
12
429
16
1,106
24,455
queen of Headaches retweeted
ThePOTSPostman
@ThePOTSPostmanOct 23
Please stop using other chronically ill people as examples of what someone should be capable of doing. Iā€™m glad your friend with the same condition works full time, exercises, and has a great social life. That has absolutely nothing to do with how sick someone else is.
41
171
13
979
11,470
queen of Headaches retweeted
queen of Headaches@byowifeOct 24
Replying to @kirabira @emilykmay
itā€™s literally fucking horrific. I would trade the last 3 years for death so I never had to experience the level of loss+neglect+abandonment I have now my declining disabilities are visible, dismissal which will only be an obstacle to ever recovering in my ā€œlifeā€ā€”NOT validationšŸ™„
1
3
17
471
queen of Headaches retweeted
heather šŸ’«@_hxneyglowOct 23
yeah
āœ§@northstardollOct 23
1
4
66
913
queen of Headaches retweeted
latke@latkedelreyOct 23
you can feel all types of things even things you didnā€™t think you could feel
2
7
1
67
3,597
queen of Headaches retweeted
queen of Headaches@byowifeOct 24
Replying to @byowife @JackHadfield14
only worse and worse as you declineā€”so not only does it become MUCH more likely youā€™ll be left in an even worse condition after trying a new med, as u say in OP! but also means when you deteriorate untreated for too long, the risk of trying any treatments becomes unjustifiablešŸ„²
1
2
10
255
queen of Headaches retweeted
queen of Headaches@byowifeOct 24
Replying to @JackHadfield14
LOVE wasting my 20s + losing my LIFE to never being able to even TRY likely-lifesaving meds like LDNā€”or any treatments/procedures w extended recovery, esp surgeryā€”bc I simply donā€™t+will NEVER have anyone to take care of me + literally everything for me for weeks of 100% bedrestšŸ˜­
1
2
30
713
queen of Headaches retweeted
queen of Headaches@byowifeOct 24
Replying to @byowife @JackHadfield14
which is also very clearly why pacing + never doing (necessary) tasks outside my capacity/capability/tolerance on my own + avoiding PEM in order to recover that way has also literally never been a possibility - ALSO leading me directly to my premature deathšŸ¤© how fucking FUN!!!!!
1
2
11
279
queen of Headaches retweeted
Jack | amatica health
@JackHadfield14Oct 23
No healthy person will ever understand how terrifying it is having to try random drugs in hopes they might help you, while knowing they could equally make you 10x more ill. But the alternative is just stay ill.
29
113
11
1,006
33,286
Load more