CF Lounge retweeted
A thread requesting support for a petition to ensure life changing drugs for those with #cysticfibrosis are not made unavailable on the NHS due to decisions by regulators.
Feel free to ignore the rest and just put your name to the petition at the link 🙏
petition.parliament.uk/petit…
CF Lounge retweeted
Huge congratulations to @RishiSunak. He is exactly the Prime Minister we need.
All of those who know Rishi well know he has the integrity, ability and experience to lead our country in these troubled times.
CF Lounge retweeted
Meet sisters Louise and Lauren. They both have a rare #cysticfibrosis gene. If they lived in Scotland, Wales or NI they’d be on wonder drug #kaftrio. But @NHSEngland red tape won’t let Lauren have it - while it’s needed a US firm to pay for poorly Louise’s pills. This is a #farce
CF Lounge retweeted
@Daily_Express today reports farce of @NHSEngland #kaftrio commissioning for #cysticfibrosis patients as those with rare mutations unable to get wonder drug - while those in Scotland, NI and Wales can. #dailyexpresscrusade4cf @MattHancock @blakeydark @NHSEnglandMedia
CF Lounge retweeted
Let's fill Twitter with EU flags and start the rejoin campaign. #Brexit #BrexitBritain #BrexitReality – at Caol, Scotland
CF Lounge retweeted
Humbled that @Daily_Express and our amazing team of #cysticfibrosis parents and sufferers have won Campaign of the Year at the prestigious #BJA2020. It’s our 2nd gong for #dailyexpresscrusade4cf this year after the @EditorsUK Campaign of the Year award. #kaftrio @MotherhoodvsCF
Winner of the Campaign of the Year is @Daily_Express and @ChrisMRiches for the Time To End Cystic Fibrosis Drug Scandal campaign which has improved the lives of many, many young people #BJA2020
CF Lounge retweeted
The approval of a vaccine is a huge step towards normality, but the rules in your area have not changed.
Please keep following the restrictions to protect those around you.
CF Lounge retweeted
Just held a persons hand as they died alone, without their family or loved ones by their side. Glad you enjoyed your meal.
This quoted post is unavailable.
CF Lounge retweeted
Great to hear Canadian authorities are getting closer to a deal with @VertexPharma for their range of #cysticfibrosis drugs. The worldwide community have been praying this would happen. #kaftrio @CFCanada @CFCanadaWestern #canada #dailyexpresscrusade4cf #trikafta
CF Lounge retweeted
Heartbreaking. We all @Daily_Express are praying Ben travels to Geneva soon and gets his lifesaving double lung transplant. He should be able to get it here on #NHS. @cftrust @MattHancock @blakeydark @BorisJohnson @RBandH #dailyexpresscrusade4cf @nhsuk express.co.uk/news/uk/134894…
CF Lounge retweeted
I’m determined to do what’s needed to bring faster access to life-saving treatment on the NHS.
express.co.uk/news/politics/…
CF Lounge retweeted
I'm officially @PrideOfBritain Fundraiser of the year 2020 for NI. Couldn't be more proud. Couldn't have done it without each and every single one of you. £271,000.00 raised for @cftrust @carolvorders @UTVNews @Gwilkinson_utv @PaulClark_UTV @RachelMc523 @EleanorMcHugh2
CF Lounge retweeted
14-year-old Isabelle Finn has cystic fibrosis but today her condition and future has miraculously changed thanks to a new ‘miracle’ drug @StephLunch @cftrust #PackedLunchC4
CF Lounge retweeted
#Breaking U.S. FDA approves expanded indication for our first #cysticfibrosis medicine. Learn more: bit.ly/304mkhF
CF Lounge retweeted
Face coverings work. Evidence shows that wearing one limits the spread of COVID-19 and protects you and those around you. Keep going, London.
Share the facts ⬇️
ALT Person wearing a facemask
CF Lounge retweeted
The situation in Canada re access to @VertexPharma’s lifesaving #cysticfibrosis drugs is a disgrace. How can @GovCanHealth not sit down with the firm and thrash out a deal? Lives are at stake and sufferers cannot wait. @Daily_Express #dailyexpresscrusade4cf
