CF Lounge (@cflounge) header
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Dad | Husband | Software Engineer living with CF. I built a social platform for those living with CF.

London
Joined September 2013
Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)Photo by CF Lounge (@cflounge)
So pleased I can finally run 5k continuously. This time last year I couldn’t run for more than 1.5mins without gasping for breathe and coughing. #Couchto5K #kaftrio #trikafta It was great having @MJGold in my corner. My favourite runner and all round great guy 👍🏻
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Does anyone feel like they’ve returned from military service now being on Kaftrio? before I was staring down the barrel of a gun, daily. Fighting to stay well and losing slowly, feelings of fear and death constantly, having to hide it and pretend it’s ok as to not upset family
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Does this pave the way for more modulator options? Those that do not currently have an option of their Gene type? Also, does this open the door for more Pharma companies to explore this market space? Interesting to know what AI tech @VertexPharma uses? technologyreview.com/2024/05…
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The only reason I use "X" is to check on the status of other social media sites. #instagramdown
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A thread requesting support for a petition to ensure life changing drugs for those with #cysticfibrosis are not made unavailable on the NHS due to decisions by regulators. Feel free to ignore the rest and just put your name to the petition at the link 🙏 petition.parliament.uk/petit…
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We need to truly campaign to ensure all people who have a qualifying gene type get access to Kaftrio. If I had a child with CF I would be deeply concerned. Also, can we be 100% certain that adults currently receiving Kaftrio will receive it for life? We need @MattHancock back!!!
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I don’t care what the scorecards said, anyone watching that fight knows Francis won it, it wasn’t even close. Fury looked old, weak and completely out of his depth. He should think about retirement for sure this time around. @Tyson_Fury you lost!
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Boxing has always been rigged. Francis was robbed. Saudi have become an entertainment platform, not genuine sport. It’s all about money, who’s marketable. Usyk, we need you to right a wrong #robbed #rigged #TysonFury
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I hope @DailyMailUK do not succeed in their publicity stunt pursuing Russell Brand. The things he did have been made much worse and blown out of proportion. What happened to "innocent until proven guilty"? Why do the Daily Mail decide on who's guilty? #RusselBrand #RussellBrand
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How bad are @UKLabour that even with this level of open corruption that they still struggle to gain any ground. When will they replace @Keir_Starmer
5-10% of the entire trade deal with India will be going to Infosys, owned by Rishi Sunak‘s father-in-law. Every single deal that Sunak does is with someone that he knows or is related to, corruption is his name.
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Hi ⁦@RishiSunak⁩ It’s great that people are jailed for stealing - but yet the government tell tenants who don’t pay rent (stealing in non technical terms) to stay put and wait for bailiffs!! worker ordered to pay back £55k after stealing stock kentonline.co.uk/dartford/ne…
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It seem the latest @FreeStyleDiabet app is now in the App Store! LEt's hope this works ok. Rule number 1, never deploy software on a Friday!
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It’s crazy how we let one man’s crusade for the top bring the country down through brexit. @BorisJohnson used brexit as a tool to become PM. He had no regard for the long term effect, just a hot and run approach. At what point will brexit be reversed? @UKLabour @LibDems ??
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Replying to @AppleSupport
@AppleSupport since updating to the latest MacOS release my MacBook Pro (2019 model) is now frequently displaying “out of memory” notifications, then shutting my laptop down. Is this your way of forcing people to upgrade? It’s short sited if it is. Fleecing existing customers.
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Also, why do apple solder the ram onto the logic board, meaning people need to buy a new laptop instead of simply increasing their ram? My next purchase will be a windows laptop, removable ram, removable battery, fully customisable. I’m done with Apple’s business model
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When are we going to get rid of this sleaze of a government? PM announced a new initiative for childcare and additional payments - shock horror, a nursery hos wife has shares in was chosen as part of the pilot. @UKLabour are complete trash not to be able to beat this garbage
Do you know what matters to me? Getting results for the British people 👇
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Hey @elonmusk your platform is misleading and spreading misinformation. Another example of this platform being a standing joke that can’t be trusted.
This quoted post is unavailable.
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I love how’s it cool not to have a blue tick anymore. It shows independence and rebellion like qualities. #BlueTickGone
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Replying to @RishiSunak
@RishiSunak to address peoples current struggle (nurses and other gov workers included), why not increase the initial tax threshold from £12,570 to £15k. Also, if someone earns over £100k, then they start paying tax from £5k. (1/2)
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The approach of giving the super rich and energy companies a tax break and passing this off as "this will trickle down" is fooling no one. If a company makes huge profit, they will still invest regardless of the tax. They only pay tax on profit after all! (2/2)
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Why doesn't the government make tax information, banking system and finance part of the national curriculum? Is it because the government wants children to grow up, conditioned to think you have to work hard and pay taxes?
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Replying to @HelloHowsy
@HelloHowsy your agents keep calling me with a hard sell. The bottom line is, you're too expensive. My rental is £750/pcm fully managed at 10% inc VAT. This equates to £75/pcm, they provide a great service and have a branch for easy face to face comm for landlord and tenant. 1/2
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You need to be cheaper than a good high street estate agent or there is zero point in going with your service. You have no advantage over a high street estate agent. Your business model is flawed for rental properties below £950/pcm 2/2
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