Director at FasterCures, venture philanthropy advocate
Joined April 2012
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Kristin Schneeman retweeted
NIH Director Dr. Jay Bhattacharya has announced that the NIH Public Access Policy, originally slated to go into effect on 12/31/25 will now be effective 7/1/25. Read more in his statement: bit.ly/4jTQI4O
ALT Graphic with blue background, HHS and NIH logo, and a photo of NIH Director Dr. Jay Bhattacharya. Quote included: "Providing speedy public access to NIH-funded results is just one of the ways we are working to earn back the trust of the American people. Trust in science is an essential element in Making America Healthy Again. As such, NIH and its research partners will continue to promote maximum transparency in all that we do."
Kristin Schneeman retweeted
“The word ‘science’ is in the US Constitution."
@BillNye gives a passionate speech at the #STATBreakthrough Summit.
Excited to see @BillNye and @NAF_Ataxia’s Andrew Rosen building awareness of ataxia and the critical importance of federal funding of fundamental science #STATBreakthrough @statnews
Frank discussion about “What Science May Lose” in current administration. @HollyLynchez suggests that industry should exhibit more support for federally funded academic on which it relies for innovation #statbreakthrough @statnews
UPenn’s @kiranmusunuru reminds us that innovations like CRISPR often start with @NIH funding, and miracle gene therapies for ultra-rare pediatric patients may only ever happen through federally-funded academic N-of-1 trials #statbreakthrough @statnews
Great conversation with @EliLillyandCo ‘s Janelle Sabo about their effective approach to community-based clinical trials #statbreakthrough @statnews
This is what #RareDiseaseDay2025 is all about.
“When I was born, EB was a death sentence. Life expectancy was two. But now? The technology has finally caught up. This is an exciting time for the EB community.” – Hodges Caldwell Jr., EB Patient @Eblifestyle717
For decades, Epidermolysis Bullosa (EB) was considered untreatable. But today, everything is changing.
New technology.
Groundbreaking research.
A global network of scientists, doctors, and advocates working together.
EBRP has united the research community like never before, and the momentum is unstoppable.
This is the moment to push for a cure.
This is the time to act.
Join us. Share. Donate. Be part of the cure.
🦋 DONATE NOW. 🦋 bit.ly/4hVtUB9
#CureEB #RareDiseaseDay #EBResearch #ButterflyChildren #EndEB #StanfordMedicine #GeneTherapy #VenturePhilanthropy #RareDiseaseDay
Kristin Schneeman retweeted
NEW SURVEY: 15% of U.S. households are affected by rare disease or an undiagnosed illness. Their lives are characterized by extreme stress, often matched by their resourcefulness.
ssrs.com/insights/rare-disea…
ALT 15% of US adults live in a household affected by rare disease or an undiagnosed illness
ALT Of those, half have gone online to find others with similar health concerns.
ALT Telehealth and use of AI tools for health info are higher among those living in rare/undiagnosed illness households.
ALT A rare disease is one that affects fewer than 200,000 people in the U.S.
Flabbergasting. Who does he think the government’s money belongs to? Who gets the remaining 60% exactly? 🤔
🚨 #BREAKING: President Trump has announced he’s considering a DOGE Dividend after it was proposed to him by Elon Musk
“We’d give 20% of the DOGE savings to American citizens and 20% goes to paying down debt.”
LFG! 🔥
Kristin Schneeman retweeted
Calgary stopped adding fluoride to its water in 2011.
What happened?
"The need for intravenous antibiotic therapy by children to avoid death by infection rose 700% at the Alberta Children’s Hospital." - Dr. James Dickinson @ University of Calgary
calgary.ctvnews.ca/calgary-s…
Kristin Schneeman retweeted
@FasterCures’ latest report explores the barriers, benefits, and opportunities associated with advancing more patient engagement in the medtech sector and examines how the value of patient engagement is assessed in medtech R&D. Read our findings here: milkeninstitute.org/content-…
It was a real pleasure and privilege to have this opportunity to hear from @LizFowler_ about the important work she and her team are doing @cmsinnovation!
CMS Innovation Center Director @LizFowler_ recently sat down with @fastercures Senior Director @kschnee66 to talk through shared priorities such as person-centered care and the Quality Pathway. Learn more about the Innovation Center: go.cms.gov/innovation-center. #HealthCare
ALT CMS Innovation Center Director Liz Fowler pictured sitting next to Milken Institute's FasterCures Director Kristin Schneeman
Even considering the source, this is shocking. We cannot go back to a place where this kind of talk is normalized. Everyone needs to understand where the true threat to our democracy lies. This is not a drill. nytimes.com/2024/03/16/us/po…
Kristin Schneeman retweeted
Only 10 days left to nominate for the Made with Patients Awards 2024 🎉
✨ Submit your nominations for champions and initiatives before it is too late!
🔗 eu1.hubs.ly/H07XvgB0
Incredible news, congrats to our friends at @EveryCure and @ARPA_H!
Every Cure to Receive $48.3M from ARPA-H to Develop AI-Driven Platform to Revolutionize Future of Drug Development and Repurposing
Read the press release here:
everycure.org/every-cure-to-…
Kristin Schneeman retweeted
The deadline for @FasterCures’ LeadersLink mentorship program is Thursday, Feb 29.
Don’t miss your chance to increase your organization's impact and grow as a leader. Learn more and apply today: ow.ly/UxPS50QIqOl
Devastating news for Ms. Williams and her loved ones. I hope this diagnosis helps them better understand what is happening and helps her get the care she needs and deserves. #FTD
The former talk show host Wendy Williams was diagnosed with FTD last year, her care team announced in a Feb. 22 statement.
“In 2023, after undergoing a battery of medical tests, Wendy was officially diagnosed with primary progressive aphasia and frontotemporal dementia (FTD),” her care team said in the statement.
Click here to learn more: bit.ly/3T7EpYf
Kristin Schneeman retweeted
One week until the @FasterCures’ LeadersLink mentorship program application deadline (Feb 29). Don’t miss your chance to increase your organization's impact and grow as a leader. Learn more and apply today: ow.ly/jAFK50QGJ8I
Kristin Schneeman retweeted
Aleksey Navalny's courage will never be forgotten.
This tragedy – further proof of Putin's brutality – reminds us of the stakes of this moment.
Failure to support Ukraine against his vicious onslaught will never be forgotten.
Kristin Schneeman retweeted
A medical journal has retracted two studies claiming to show the harms of the abortion pill mifepristone — studies cited in a pivotal Texas court ruling that has threatened access to the pill.
statnews.com/2024/02/08/mife…
