Child Neurology ‘24 @uclachildneuro, Peds-trained @UCLAMCH via @Harvard, @HGSE, @BrownMedicine | 🇱🇧heritage, #healthcare advocacy, #meded | views my own.
Los Angeles, CA
Joined April 2022
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Wonderful session on community engagement at #gatcon! Loved learning about @OnceUponAGene - an engaging podcast for families of children with rare syndromes, & “beads of courage” - providing a bead for every blood draw, poke, medical session. @gatlinburgcon @uclachildneuro
Love seeing inclusive play spaces as I land for the @gatlinburgcon - wonderful work by @VarietyKC and @Fly_KansasCity ! @uclachildneuro @UCLANeurology
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When you’re weekend discharging a toddler with new seizures & no prior auth, & are told that rectal diazepam (the safety med to stop prolonged seizures) costs $700+ in a dose safe for children (10mg), but only $40 for the adult dosing (20mg). We need to change the system
Here is the very last of the puppet-driven #medsongs videos.
"Prior Auth"
A parody of 'Firework', with apologies to Katy Perry... but no other apologies.
I tried to trim this one to fit the Twitter constraints, but it needed a second verse. See 2/🧵for YouTube link.
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Inspired by the amazing work and collaboration from clinicians, industry, academic researchers, & most of all, families. Honored to have been a part of the @angelman Syndrome Foundation / @dup15q re-United conference @ShafaliJeste @vvf_vanessa #Austin
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