Author & Advocate. Subscribe for updates, as not here often. Books #TheRedHatStories #LivingWithPKU #LivingWithMildBrainInjury #RareDisease #BrainInjury #PKU
UK
Joined January 2008
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If you don't pay, it is hard to find people & communicate on here.
For #PKU news, #BrainInjury updates, & more please:
➡️subscribe via link in bio
Let's keep talking!
#LivingWithPKU #RareDisease #PCU
#LivingWithBrainInjury #TBI #concussion #MTBI #authorcommunity #Newsletter
ALT Newsletter - June at PigPen - news on PKU, Brain Injury & more. subscribe at www.PigPen.page
🚨 Mid-year sale
Save 20% on your copy of "Living with Mild Brain Injury"
This 'incredibly vivid' memoir is an essential resource for those navigating life with brain injury
⭐⭐⭐⭐⭐ "A brilliantly written, and emotional narrative"
#TBI #Concussion buff.ly/3L6TYus
Celebrating #PKUDay2024 with:
1️⃣ A spotlight on research, and clinical trials in the #UK, which you can support now!
2️⃣ A sale all weekend! 20% off Living With #PKU ebook
🚨 UK & US readers can buy direct via Shopify
link in bio
#LivingWithPKU #raredisease #PCU #LowProtein
Report from the 2024 @nspku #Conference on the review of the #EU Guidelines for #PKU
This session touched on #PheLevels, #NewTreatments, #NewbornScreening, #Cost of PKU, and much more!
buff.ly/4byUGfD
#LivingWithPKU #RareDisease #phenylketonuria #PCU #NSPKUConference
Pauline O'Connor retweeted
#PKU Community
Pls use online info for protein content for No Chick Kievs - pack-side info is wrong
One kiev is 5.5 #pku exchanges (not 2 or 2 g protein as packaging)
@NoMeatLtd @IcelandFoods pls rectify asap - wrong protein info is dangerous to those on medical low protein diet
Anyone with experience of #Sapropterin in the #UK, please fill this in!
#LivingWithPKU #PKU #PKUAdult #lowProtein
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One week until the @NSPKU Conference, I look forward to seeing you all there :)
#PKU #LivingWithPKU #LowProtein #LowPhe #NSPKU2024
Last Chance! The Red Hat Stories Kickstarter ends tomorrow. Fully funded, so it will be published.
Grab your copy, link in bio
#theredhatstories #shortstory #anthology #shortstorywriter #kickstarter #newbook #bookstagram #author #London #londonlife #londoncity #london #londonlove
PKU-Friendly Chocolate, cherry & sour cream cupcakes incoming…
#PKU #LivingWithPKU #LowProtein #baking
An #anthology of #ShortStories set on #London public transport.
@transportforlondon know anyone who might be interested in the London transport system😉
#kickstarter coming soon Pigpen.start.page
#theredhatstories #theredhat #theredhatsociety #newBook #author #crowdfunding
Please support #TheRedHatStories Kickstarter!
This is my first foray into fiction, though I began writing The Red Hat Stories in 2006.
Please help ensure these stories are published. Pledges will start at £1.
#NewBook #ShortStory #Authors #AmWriting
buff.ly/4ciAXBD
Whoop! The first proof of #TheRedHatStories arrived today. Excited to try a #Kickstarter for my first fiction book, with pricing starting from £1.
Lots of planning underway, so follow for updates - link in bio
#fiction #newbook #books #authors #shortstory
Pauline O'Connor retweeted
#PKU suitable #lowprotein Easter Treats downloadable photobook is here!
Thank you @macdonj @MetabolicsBCH for making this brilliant resource!
🐇🐇🐇
nspku.org/download/low-prote…
The March PigPen newsletter includes:
➡️ possible new #PKU treatment
➡️ help with identity after #BrainInjury
➡️ shape your health care in future
🥂Sneak peek of #NewBook The Red Hat Stories!
buff.ly/4bXz3pU
#TheRedHatStories
#LivingWithPKU
#LivingWithMildBrainInjury
I’m allowed 5g of protein/day with #PKU. Here are my meals for Rare Disease Day.
#Breakfast
- 100g coconut yogurt (1g protein)
- banana (minus a bit for #FluffMuppet)
- tea with oat milk (dairy has too much protein for me)
- supplement is @nutriciametabolics GMPro Mix-in & vits
You pick up a paperback in store and read this on the back. please click like if you would buy it for £10
(it is 100-pages)
Is £10 too much?
#fiction #ShortStories #Anthology #AmWriting
ALT London, a city of millions where even the solitary are never alone. The bustling spaces host fleeting interactions between strangers, each with their own troubles. A homeless man wrestles with his demons, a woman braves the outside after illness, a witness is troubled by a predatory encounter, a businessman is forced to do community service, a woman grieves the love of her life; all are affected by the actions of a stranger in a red hat. Who is she, and what is her story? The Red Hat Stories is an anthology which explores the connection between strangers, the assumptions we make, and how overlooked encounters have unforeseen effects.