Author & Advocate. Subscribe for updates, as not here often. Books #TheRedHatStories #LivingWithPKU #LivingWithMildBrainInjury #RareDisease #BrainInjury #PKU
UK
Joined January 2008
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- Following183
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Pauline O'Connor retweeted
#PKU Community
Pls use online info for protein content for No Chick Kievs - pack-side info is wrong
One kiev is 5.5 #pku exchanges (not 2 or 2 g protein as packaging)
@NoMeatLtd @IcelandFoods pls rectify asap - wrong protein info is dangerous to those on medical low protein diet
Pauline O'Connor retweeted
#PKU suitable #lowprotein Easter Treats downloadable photobook is here!
Thank you @macdonj @MetabolicsBCH for making this brilliant resource!
🐇🐇🐇
nspku.org/download/low-prote…
Pauline O'Connor retweeted
#Measles is highly infectious and can be passed on even before a rash appears.
Make sure your child is protected from becoming seriously unwell from measles by making sure they are up to date with their #MMR vaccinations.
More info ➡️ nhs.uk/mmr
Pauline O'Connor retweeted
If you don't pay, it is harder to find people & communicate on here.
For #PKU news, #BrainInjury updates, & more please follow or subscribe
Let's keep talking! tinyurl.com/jbyebwjs
#LivingWithPKU #LivingWithBrainInjury #PKU #TBI #concussion #RareDisease #AuthorsOfTwitter
Pauline O'Connor retweeted
🚨BlackFriday 25% off 🚨
Living with Mild Brain Injury & Post-Concussion Syndrome
“Incredibly vivid...this book will be of great benefit to professionals, survivors and their families alike"
#LivingWithMildBrainInjury #TBI #Concussion #ABI #BrainInjury
buff.ly/474BrZm
Pauline O'Connor retweeted
On sale: A unique, personal account of a mild traumatic #BrainInjury
“Incredibly vivid... this book will be of great benefit to professionals, survivors and their families alike.”
🚨 20% off #LivingWithMildBrainInjury
Limited time sale @Routledgebooks
#TBI #Concussion #ABI
Pauline O'Connor retweeted
We are looking for new team members!
Have a read of our advert, & email [email protected] if you’re interested
We’d LOVE to hear from you!
Please RT!
📣📣📣
Pauline O'Connor retweeted
Will 11-17 year olds in the #PKU Community contribute to this?
Send an email to Angela (see pic for email address)
📣📣📣
Adolescents' Views on Newborn Screening
Can you help? A colleague from @UHSFT is seeking young people aged 11-17
- with a diagnosis of a metabolic genetic condition
- Confirmed molecular diagnosis
- English speaking and living in the UK.
@NSPKU @galactosaemia @MetabolicsBCH
Pauline O'Connor retweeted
Prescriptions should remain FREE for all NZers, regardless of the government in power - Sign the Petition! chng.it/HHKcJwPR via @Change
Pauline O'Connor retweeted
#PKU community - recipe change alert
Genius altered their bread recipe
The new bread has higher protein levels - these 2 products now have 3.5 #PKU exchanges per 2 slices
Sorry to tell this news, but
Vital to be alert to recipe changes
A reminder too- check labels every time 📣
Pauline O'Connor retweeted
If you don't pay, it is harder to find people & communicate on here.
For #PKU news, #BrainInjury updates, & more please follow or subscribe.
Let's keep talking!
tinyurl.com/jbyebwjs
#LivingWithPKU #LivingWithBrainInjury #PKU #TBI #concussion #RareDisease #AuthorsOfTwitter
Pauline O'Connor retweeted
1/2Great news! In 🇨🇿 was established working group of profesional nutritians, dietetians and doctors to prepare guidelines and program to educate nutricians in hospitals though the 🇨🇿 to be able to cook simple #PKU friendly food during hospitalization of PKUers.💪
Pauline O'Connor retweeted
Our book seller at the ESPKU/NSPKU meeting - thank you Maureen. Job very well done! All profits were donated to our PKU fund at the Children's Hospital. Thank you so much to everyone who bought a copy.
Pauline O'Connor retweeted
Dr Gisela Wilcox will be speaking at the ESPKU meeting (more than once!). Representing the host company, she will explain how we care for people with PKU in the UK
