Sciency

FDA and HHS leaders called the families of Huntington patients “the swamp”. Time to raise this again and time for the jokers at the FDA @FDA_KyleD @AndrewNixonHHS @HeidiOverton to follow the retired batch of jokers @MartyMakary and the incomparable @VPrasadMDMPH. Your mediocrity and the suffering you caused will be remembered for a lifetime. @SenBillCassidy @RobertKennedyJr @Christina4HD @FDADrugs @RepGuthrie @RepJamesComer @RepMGriffith @FDA @seehafer @Rick_Abramson @SecKennedy @SenSanders @FrankPallone @RepDianaDeGette @SenRickScott @SenGillibrand @RepAuchincloss @BernieSanders @GillibrandNY @RareAdvocates @Help4HDI @JRenz0418 @rachelreising96 @adamfeuerstein @armstrongdrew @ScottGottliebMD @davidfaber @bradloncar @docrodwong @LuckyPenguin10 @SenateAging @SenRandPaul @FoxNews @bariweiss @60Minutes @CNBC @laurencurehd @RobertLangreth @gerryfsmith @ZacharyBrennan @matthewherper @megtirrell @FierceBiotech

Watch the video below. It shows the suffering that mediocrity at the FDA (@FDA_KyleD @HeidiOverton) is causing for tens of thousands of families living with Huntington’s disease. The FDA has delayed a highly promising treatment by more than a year for no good reason, and it continues to drag its feet. No urgency whatsoever. Patients and their families are paying the price. We need accountability. Completely unacceptable. @SenBillCassidy @RobertKennedyJr @Christina4HD @FDADrugs @RepGuthrie @RepJamesComer @RepMGriffith @FDA @seehafer @Rick_Abramson @SecKennedy @SusieWiles47 @SenSanders @FrankPallone @RepDianaDeGette @SenRickScott @SenGillibrand @RepAuchincloss @BernieSanders @GillibrandNY @RareDiseases @RareAdvocates @Help4HDI @JRenz0418 @rachelreising96 @geneveritas @houmanhemmati @adamfeuerstein @armstrongdrew @ScottGottliebMD @davidfaber @bradloncar @docrodwong @LuckyPenguin10 @SenateAging @SenRandPaul @FoxNews @bariweiss @60Minutes @CNBC @laurencurehd @htthurgood @RobertLangreth @gerryfsmith @ZacharyBrennan @matthewherper @megtirrell @FierceBiotech

The FDA casually keeps patients waiting while they suffer and die. Another 6 months until the FDA’s target decision date for @uniQure_NV Huntington’s disease treatment, for a treatment whose positive 3-year results were announced in September 2025, more than a year ago. Huntington’s does not pause while the FDA works through its calendar and delays and delays. @FDA_KyleD @HeidiOverton why do you need another 6 months after sitting on the data for a year already? Where is the urgency? Where is the compassion? Where is the empathy for patients who are losing time they will never get back? The FDA has dragged its feet on this treatment, and patients continue to bear the consequences. This is irresponsible and unacceptable. @BillCassidy @SenBillCassidy @realDonaldTrump @WhiteHouse @RobertKennedyJr @Christina4HD @FDADrugs @RepGuthrie @RepJamesComer @RepMGriffith @RepAndyHarrisMD @FDA @seehafer @Rick_Abramson @SecKennedy @SusieWiles47 @SenSanders @FrankPallone @RepDianaDeGette @SenRickScott @SenGillibrand @SenRonJohnson @RepAuchincloss @RepGusBilirakis @BernieSanders @ScottforFlorida @RonJohnsonWI @GillibrandNY @RareDiseases @RareAdvocates @Help4HDI @laurencurehd

Why does the @FDA need the full 60 days to accept the application of @uniQure_NV that they already delayed by 18 months?? Huntington Disease patients are 9 times more likely to commit suicide due to suffering. This is unacceptable. Patients are suffering and the FDA continues to drag their feet. We need better leadership at FDA. @BillCassidy @SenBillCassidy @realDonaldTrump @WhiteHouse @RobertKennedyJr @Christina4HD @FDADrugs @HeidiOverton @RepGuthrie @RepJamesComer @RepMGriffith @RepAndyHarrisMD @FDA_KyleD @US_FDA @seehafer @Rick_Abramson @SecKennedy @SusieWiles47 @SenSanders @FrankPallone @RepDianaDeGette @SenRickScott @SenGillibrand @SenRonJohnson @RepAuchincloss @RepGusBilirakis #Huntingtonsdisease

How much longer do Huntington patients need to wait for FDA to act on the @uniQure treatment? @MartyMakary and his clown already delayed the treatment by more than a year. Why are the FDA dragging their feet?? @FDA @WhiteHouse @RobertKennedyJr @Christina4HD @FDADrugs @HeidiOverton #Huntingtonsdisease