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9p Minus Network

@9p_minus

The Chromosome 9pminus Network is a nonprofit, parent-based support group with a mission to improve the lives of families affected by 9p Deletion Syndrome.

9pminus.org
Joined January 2016
  • Tweets53
  • Following80
  • Followers72
9Media
Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)Photo by 9p Minus Network (@9p_minus)
Happy (belated) 9p Minus Day! 9minus.org #9pminus #RareDisease
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Happy 9p Minus Day! 9pminus.org #9pminus #rarediseases
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Happy 9p Minus Day!!! 9minus.org #9pminus #RareDisease
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Happy 9p Minus Day!!! 9minus.org #9pminus #RareDisease
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Happy 9p Minus Day!!! 9minus.org #9minus #RareDisease
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9p Minus Network retweeted
Global Genes (@GlobalGenes) profile picture
Global Genes@GlobalGenes7 Sep 2016
Congress is currently debating a vital piece of legislatioN: the 21st Century Cures Act #CuresNOW globalgenes.org/raredaily/ev… @EveryLifeOrg
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For those needing residential & respite care 4 children & young adults,Nic's house is opening soon. #Respite #JoBurg
Image from Rare Diseases South Africa (@rarediseasessa)
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@Jill_the_Pill , spread the word!!! teapaw.org/RareDiseases/status/77…
National Organization for Rare Disorders (NORD) (@RareDiseases) profile pictureNational Organization for Rare Disorders (NORD)
@RareDiseases9 Sep 2016
6 #researchgrants are available for the study of #rarediseases. Retweet. Spread the word. bit.ly/2bJRdi9
Image from National Organization for Rare Disorders (NORD) (@RareDiseases)
Happy 9p Minus Day!!! 9pminus.org #9pminus #RareDisease
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Happy 9p Minus Day!!! 9pminus.org #9pminus #RareDisease
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Social media has really changed how we connect with families with rare and genetic conditions huffingtonpost.com/rachel-en… – at Sydney, New South Wales
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9p Minus Network retweeted
BuzzFeed (@BuzzFeed) profile picture
BuzzFeed
@BuzzFeed10 May 2016
10 people talk about what it’s actually like living with illness and disability bzfd.it/1NpNBS5
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Image from BuzzFeed (@BuzzFeed)
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timetolisten.blogspot.com/20… #WorldAutismAwarenessDay #REDInstead
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9p Minus Network retweeted
The Whatever Mom (@WhateverMom2) profile picture
The Whatever Mom@WhateverMom22 Apr 2016
In honor of friends & family living w/autism. thewhatevermom.com/2016/04/0… #WorldAutismAwarenessDay #autismawareness
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Woooooo!! #WRDD2016 #RareDiseaseDay #9pminus teapaw.org/savingcase/status/7043…
Project Alive (@Projectalive) profile pictureProject Alive@Projectalive29 Feb 2016
#RareDiseaseDay is trending! #WRDD2016 cc @GlobalGenes @RareDiseases
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29 February: A rare day for Rare Disease Day. Join us in making the voice of rare diseases heard today! thndr.me/QxLkNL
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9p Minus Network retweeted
WebMD (@WebMD) profile picture
WebMD
@WebMD26 Feb 2016
.@IAmLaurenMiller says caregiving is much more than a 40 hr./wk job. It's 24/7. wb.md/1S6H52Q #EndAlz amp.twimg.com/v/31ba752c-d9f…
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9p Minus Network retweeted
NIH (@NIH) profile picture
NIH
@NIH22 Feb 2016
Chat with the experts on rare diseases today at 2:00 pm ET using #NIHChat!
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9p Minus Network retweeted
People (@people) profile picture
People
@people16 Feb 2016
"We need to make every single thing accessible to every single person with a disability." —Stevie Wonder #GRAMMYs
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9p Minus Network retweeted
UN Women (@UN_Women) profile picture
UN Women
@UN_Women17 Feb 2016
Women&girls with #disability must have equal participation in leadership & employment. More: owl.li/YrDF2
Image from UN Women (@UN_Women)
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