
@allwheelsup VP and Founding Board Member | @ParentProjectMD PAAC I DMD and Disability Advocate | All Views My Own | Sharing my entrepreneur journey
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Joined February 2011
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Alan Chaulet ♿✈ retweeted
In 1991 his wife called him from Romania about a three year old boy who could not walk and could not talk.
Here is what she said on that phone call.
"this guy's so much more than we can handle"
They took him anyway. He became their sixth child.
His name was Michael, and the man on the other end of that phone was Ernie Johnson.
Within a year the diagnosis came back. Duchenne muscular dystrophy. It is a genetic disease that takes the muscles one at a time, and it mostly takes boys.
Michael went into a wheelchair. Later he needed a ventilator to breathe.
Here is what Ernie Johnson says about getting that news.
"What's amazing is the value reveals itself."
He lived 33 years.
Here is how his father put it when it ended.
"This guy we adopted from Romania in 1991 and diagnosed with Duchenne muscular dystrophy lived a miraculous life of 33 years."
And then this.
"We lost michael johnson today and we're crushed. But we also know we'll see him again, and that sustains us."
That was five years ago.
Today Ernie Johnson announced that this is his last season hosting Inside the NBA. Thirty-seven seasons in that chair.
He wanted one thing understood.
"Just to be clear, I'm not retiring."
"Just cutting back."
He called it a turning of the page. Thirty-seven seasons means he was in that chair before most of the people watching him were born.
He is still doing March Madness and other work for TNT and CBS. He also started a production company and named it 32 Bowties, and the whole point of it is telling feel-good sports stories.
Of course it is.
Now go back one more generation.
His father was Ernie Johnson Sr., who pitched for the Milwaukee Braves, was a teammate of Hank Aaron, and was on the 1957 team that won the World Series. He went 7 and 3 with four saves that season. Those Braves are still the last team from Milwaukee to win one.
Then he put the ball down, went into a booth, and called Braves games from 1962 until 1999.
So the son is stepping back from a microphone 64 years after his father first sat down behind one.
Be straight about it. A man leaving a studio show is not a tragedy. He is 70 years old, he had a long run, he is not even fully leaving, and plenty of people would take that deal.
But here is the line he keeps coming back to, from a speech he gave in 2019.
"There's value in everybody."
He did not learn that in a television studio.
He learned it from a boy in Romania that his own wife said was more than they could handle.
"Hawaiian Airlines recently hosted a practice flight for more than 250 travelers with disabilities and their families to help them become more comfortable with air travel.
The simulation took place Sunday at Honolulu’s Daniel K. Inouye International Airport, allowing people with disabilities to practice every step of a journey, from check-in to taxiing, according to Alaska Air Group News.
Families checked in at the ticket counter, passed through security, found their departure gate and boarded an Airbus A330 that later taxied around the airport.
The event was organized in partnership with Never Quit Dreaming, the Hawaiʻi Autism Foundation and the Autism Society of Hawaiʻi." mauinow.com/2026/10/21/hawai…
Alan Chaulet ♿✈ retweeted
Major cheat code for life: realizing you can just decide you're "a runner" or "an early riser" or "a writer" or whatever. Start doing the thing, and you become the thing.
Pass the SSI Savings Penalty Elimination Act to increase asset limits to $10,000 and index it to inflation aapd.quorum.us/campaign/1603…
#SSI benefits for many people with #disabilities will surpass $1,000 per month for the first time next year making it even harder for beneficiaries to save without exceeding the program's asset limits. disabilityscoop.com/2026/10/…
The Mitte Family extends their deepest thanks and appreciation for the overwhelming love being shared with them from around the world since RJ's passing. He was a friend to everyone he met, and its shown in the outpouring of kind thoughts and lively stories being shared about his life.
As we go forward, this page will be managed by his team, who will be navigating how we keep his story alive. Whether through his art or his advocacy, we hope to continue changing and inspiring the world through his messages.
In lieu of donations, contributions can be made to The Mitte Foundation - Mitte Cultural District in Brownsville, Tx to support the local arts, education, and community development projects he was working on.
givebutter.com/mitte-cultura…
UK government promises disabled air passengers better safeguards theguardian.com/business/202…
Republican leaders frame Ohio’s crackdown on Medicaid fraud as a way of protecting tax dollars and vulnerable people.
NBC News finds that it has also made it harder for disabled residents to find reliable caregivers, blocking some from getting the daily support they need and endangering their health and independence. nbcnews.com/news/us-news/ohi…
Alan Chaulet ♿✈ retweeted
“Far left extremists” and it’s just everyone affording to go to the doctor and not be financially ruined because a loved one gets cancer
And it's a disease similar to DMD.
A powerful gene-editing technique has been used to edit DNA directly in a person’s body — the first known instance of such a treatment.
go.nature.com/4Bgi3Yx
Great move for the rare disease community.
Mark Cuban wants to crack open the market for rare disease treatments statnews.com/2026/10/21/mark… via @statnews
Watching the Disability Convening conference for disabled entrepreneurs
disabilityownedconvening.com
Alan Chaulet ♿✈ retweeted
I love planners. I consider myself one. What I don’t love is when they consider the mobility/dignity of people with disabilities to be an inconvenient truth. Most micromobility proponents willfully ignore the downside. #ableism #planning #ADA #WheelchairAccess #UniversalDesign
Great look at the state of newborn screening dmdcompanion.com/news/eviden…


















