CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter) header
CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter) profile picture

CF Tweeter - Trikafta - Kaftrio now!

@CF_Tweeter

We need Trikafta now! #Cysticfibrosis #UKneedstrikaftanext #Trikafta #Trikaftanext #Trikaftanow #Kaftrio

 Morden
cftrust.org/
Joined May 2012
  • Tweets2.2K
  • Following203
  • Followers467
11Media
Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)Photo by CF Tweeter - Trikafta - Kaftrio now! (@CF_Tweeter)
CF Tweeter - Trikafta - Kaftrio now! retweeted
#UK CF campaigner Sharon (@CFno1LeftBehind) profile picture
#UK CF campaigner Sharon@CFno1LeftBehind7 Oct 2020
This is heartbreaking After a successful transplant the @NHSEngland admitted a mix up with anti rejection drugs. But now they refuse to allow a second tx A brilliant surgeon in Geneva has agreed to do this Please donate💛 gofundme.com/f/ben-wolfenden… facebook.com/510528477/posts…
1
24
6
18
CF Tweeter - Trikafta - Kaftrio now! retweeted
Matt Hancock (@MattHancock) profile picture
Matt Hancock@MattHancock1 Jul 2020
This deal by the NHS & Vertex for cystic fibrosis will save thousands of lives. Thank you to everyone involved in making this happen ⁦⁦@Daily_Express⁩
Image from Matt Hancock (@MattHancock)
70
72
15
601
CF Tweeter - Trikafta - Kaftrio now! retweeted
Anthony usher (@anthonyusher1) profile picture
Anthony usher@anthonyusher130 Jun 2020
In the words of biggie Smalls ..it was all a dream 😁🥳💙 #kaftrionow #cysticfibrosis
2
6
CF Tweeter - Trikafta - Kaftrio now! retweeted
Chris Riches (@ChrisMRiches) profile picture
Chris Riches@ChrisMRiches30 Jun 2020
Thats great!! Is that Katy!?! She looks so different @Daily_Express
Stacey (@StaceyMKI16) profile pictureStacey@StaceyMKI1630 Jun 2020
That smile says it all! #cysticfibrosis #kaftrio @MattHancock @ChrisMRiches and everyone else involved! #livingalifeunlimited #dreamingbig
Image from Stacey (@StaceyMKI16)
1
1
4
CF Tweeter - Trikafta - Kaftrio now! retweeted
Anthony usher (@anthonyusher1) profile picture
Anthony usher@anthonyusher130 Jun 2020
Thanks @BarneyCalman helping me share my story and helping all us cf grateful 💙
Barney Calman (@BarneyCalman) profile pictureBarney Calman@BarneyCalman30 Jun 2020
Replying to @DailyMail @anthonyusher1
Absolutely delighted - so pleased for @anthonyusher1 and everyone else who’s going to benefit.
1
2
CF Tweeter - Trikafta - Kaftrio now! retweeted
Barney Calman (@BarneyCalman) profile picture
Barney Calman@BarneyCalman30 Jun 2020
Replying to @DailyMail @anthonyusher1
Absolutely delighted - so pleased for @anthonyusher1 and everyone else who’s going to benefit.
1
2
1
6
CF Tweeter - Trikafta - Kaftrio now! retweeted
Department of Health and Social Care (@DHSCgovuk) profile picture
Department of Health and Social Care
@DHSCgovuk30 Jun 2020
Cystic fibrosis patients in England will soon benefit from a new cutting-edge treatment. @NHSEngland and @VertexPharma have announced an agreement to fund cystic fibrosis medicine #Kaftrio (#Trikafta). Learn more: ▶️england.nhs.uk/2020/06/nhs-p… #LifeSavingDrugs4CF | #CysticFibrosis

5
90
17
308
CF Tweeter - Trikafta - Kaftrio now! retweeted
Ali Dillon 💙 NHS (@Alidilly) profile picture
Ali Dillon 💙 NHS@Alidilly30 Jun 2020
Thank you so much to ever who made this deal happen my son now has a future I can’t thank you enough! @NHSEngland @blakeydark @MattHancock too many to name but Oh My Goodness @ChrisMRiches @Daily_Express you said you’d get our voices heard and you did!
16
53
CF Tweeter - Trikafta - Kaftrio now! retweeted
Health and Social Care Committee (@CommonsHealth) profile picture
Health and Social Care Committee
@CommonsHealth30 Jun 2020
Simon Stevens notes the work of the Committee in the last Parliament on this subject, and the importance of the announcement to families of cystic fibrosis patients up and down the country @cftrust. See more about the Committee's previous work here: parliament.uk/business/commi…
1
1
13
CF Tweeter - Trikafta - Kaftrio now! retweeted
Health and Social Care Committee (@CommonsHealth) profile picture
Health and Social Care Committee
@CommonsHealth30 Jun 2020
Simon Stevens closes the session by telling the Committee that this morning @NHSEngland has signed a commercial agreement with @VertexPharma to make available its triple therapy for cystic fibrosis patients--on the very day it receives its European licence
9
42
33
114
CF Tweeter - Trikafta - Kaftrio now! retweeted
#UK CF campaigner Sharon (@CFno1LeftBehind) profile picture
#UK CF campaigner Sharon@CFno1LeftBehind30 Jun 2020
ThankYou @ChrisMRiches @Daily_Express for making this campaign so high profile that now we’ve won our miracle #cysticfibrosis drug that will give @jess_cranfield a future she never dreamed of #kaftrio @VertexPharma thanks for your amazing drugs @MattHancock TY for helping too💕
Image from #UK CF campaigner Sharon (@CFno1LeftBehind)
NHS England (@NHSEngland) profile pictureNHS England
@NHSEngland30 Jun 2020
NHS patients with cystic fibrosis will be among the first in Europe to benefit from the new triple therapy for the condition following a landmark deal, NHS Chief Executive Simon Stevens has announced today.
4
6
4
34
CF Tweeter - Trikafta - Kaftrio now! retweeted
Vertex Pharmaceuticals (@VertexPharma) profile picture
Vertex Pharmaceuticals
@VertexPharma30 Jun 2020
Vertex announces expanded reimbursement agreement with NHS England for a fourth #cysticfibrosis medicine, pending approval, for eligible patients with #CF. Learn more: bit.ly/31qd1KG
10
30
12
144
CF Tweeter - Trikafta - Kaftrio now! retweeted
Matt Hancock (@MattHancock) profile picture
Matt Hancock@MattHancock30 Jun 2020
NEWS: So delighted we have struck a deal with Vertex on Trikafta (to be called Kaftrio over here) - the next generation Cystic Fibrosis drug. This deal will save lives. Huge congratulations to the NHS team who landed the deal
NHS England (@NHSEngland) profile pictureNHS England
@NHSEngland30 Jun 2020
NHS patients with cystic fibrosis will be among the first in Europe to benefit from the new triple therapy for the condition following a landmark deal, NHS Chief Executive Simon Stevens has announced today.
81
141
65
608
CF Tweeter - Trikafta - Kaftrio now! retweeted
NHS England (@NHSEngland) profile picture
NHS England
@NHSEngland30 Jun 2020
NHS patients with cystic fibrosis will be among the first in Europe to benefit from the new triple therapy for the condition following a landmark deal, NHS Chief Executive Simon Stevens has announced today.
83
305
285
823
CF Tweeter - Trikafta - Kaftrio now! retweeted
Ali Dillon 💙 NHS (@Alidilly) profile picture
Ali Dillon 💙 NHS@Alidilly30 Jun 2020
Good Morning @MattHancock @blakeydark here’s yr daily reminder. #Kaftrio cld be available in 63 days 4 u 2 buy for people with CF don’t make them wait, gv them their breath back so they can live life to the full instead of watching it pass by. Sing, Dance, Work Hard & Play Hard.
Image from Ali Dillon 💙 NHS (@Alidilly)
6
22
7
22
CF Tweeter - Trikafta - Kaftrio now! retweeted
#UK CF campaigner Sharon (@CFno1LeftBehind) profile picture
#UK CF campaigner Sharon@CFno1LeftBehind27 Jun 2020
.@MattHancock @DHSCgovuk .@blakeydark ThankYou You are giving this beautiful girl a future that she never dreamed she’d have @jess_cranfield 💕 @VertexPharma @NHSEngland if this story is true, I’m delighted the deal will be agreed & our CF warriors will get to breathe easy🙏🏻💛
Image from #UK CF campaigner Sharon (@CFno1LeftBehind)
Image from #UK CF campaigner Sharon (@CFno1LeftBehind)
#UK CF campaigner Sharon (@CFno1LeftBehind) profile picture#UK CF campaigner Sharon@CFno1LeftBehind27 Jun 2020
NHS to seal the deal on miracle cystic fibrosis medicine dailymail.co.uk/health/artic… via @MailOnline
NHS to seal the deal on miracle cystic fibrosis medicine

NHS to seal the deal on miracle cystic fibrosis medicine

Anthony Usher lost his brother Elliott, pictured together, last year and now his own health his faltering, but there is hope after a 'Holy Grail' drug was given the green light by the safety regula...

dailymail.com
13
4
24
CF Tweeter - Trikafta - Kaftrio now! retweeted
#UK CF campaigner Sharon (@CFno1LeftBehind) profile picture
#UK CF campaigner Sharon@CFno1LeftBehind27 Jun 2020
Replying to @Daily_Express
@Daily_Express ThankYou @ChrisMRiches helping the #cysticfibrosis crusade for CF .@MattHancock Let’s get the job done ✅ My daughter is literally hanging on edge of life Give her a future😢 #KaftrioNow #kaftrio Please RT🙏🏻 @blakeydark @cftrust @VertexPharma @NHSuk
Image from #UK CF campaigner Sharon (@CFno1LeftBehind)
Cystic Fibrosis Trust (@cftrust) profile pictureCystic Fibrosis Trust@cftrust26 Jun 2020
This is a critical step on the road to ensuring that the Vertex triple therapy is licensed for all who would benefit from it and available on the NHS without delay. We will not stop until life-saving drugs are available for everyone with cystic fibrosis in the UK.
2
83
15
55
CF Tweeter - Trikafta - Kaftrio now! retweeted
Jess Meredith🐾 (@jessicameredi16) profile picture
Jess Meredith🐾@jessicameredi1627 Jun 2020
Yesterday #CF sufferers across #Europe received this brilliant news! For the UK the news stirs memories of the 4yr campaign it took to get #Orkambi from EMA to #NHS availability. @MattHancock @DHSCgovuk @NHSEnglandNMD @VertexPharma This cannot happen again. We need #KaftrioNow
EU Medicines Agency (@EMA_News) profile pictureEU Medicines Agency
@EMA_News26 Jun 2020
‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: ema.europa.eu/en/news/new-me…
2
11
1
27
CF Tweeter - Trikafta - Kaftrio now! retweeted
ANGRYMAMABEAR (@mjmamabear24) profile picture
ANGRYMAMABEAR@mjmamabear2427 Jun 2020
Trikafta is a gamechanger, don't delay for a single day for anyone in the world. Take it from the mom of a son with #CF who has been using this amazing drug for 6 months.
CF Lounge (@cflounge) profile pictureCF Lounge@cflounge26 Jun 2020
Now Trikafta has been approved it would be fantastic if @MattHancock would indicate when/if it will be available on the NHS. I truly hope @NHSuk & @VertexPharma can quickly get this on the NHS. I get breathless and tired just singing to my daughter. Trikafta would be a god send.
1
CF Tweeter - Trikafta - Kaftrio now! retweeted
Ali Dillon 💙 NHS (@Alidilly) profile picture
Ali Dillon 💙 NHS@Alidilly26 Jun 2020
#KaftrioNow
CF Voices (@CfVoices) profile pictureCF Voices@CfVoices26 Jun 2020
Great news that the CHMP committee of the EMA today gave positive opinion for Kaftrio triple therapy (internationally known as #Trikafta) for #CF patients aged 12+ with one or more DF508 We urge @NHSEngland and @VertexPharma to press ahead with confirmation of a deal for access
Image from CF Voices (@CfVoices)
5
7
Load more