@DaisyPcos

Dissecting Androgen excess & metabolic dysfunction – an Integrated SYstems approach to PolyCystic Ovary Syndrome. #WellcomeTrust funded, led by Prof @WiebkeArlt

 Birmingham
daisypcos.com
Joined August 2019
  • Tweets839
  • Following492
  • Followers1.1K
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A big day for #PCOS! The condition will now be know as Polyendocrine Metabolic Ovarian Syndrome #PMOS. Head over to @veritypcos to learn more or read today’sLancet paper thelancet.com/journals/lance…. Multilingual resources also available here: bit.ly/3V85nPJ #PCOSNameChange

Polyendocrine metabolic ovarian syndrome, the new name for polycystic ovary syndrome: a multistep...

Polyendocrine metabolic ovarian syndrome (PMOS), previously named polycystic ovary syndrome (PCOS), affects one in eight women. However, the term PCOS is inaccurate, implying pathological ovarian...

thelancet.com
DAISy-PCOS@DaisyPcosMay 12
An exciting day for those affected by, supporting care for & undertaking research in #PCOS! The new name, reached through rigorous consensus with worldwide partners, is Polyendocrine Metabolic Ovarian Syndrome #PMOS which more closely reflects the true nature of the condition 1/2
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DAISy-PCOS retweeted
Verity (PMOS UK)@veritypmosMay 9
It’s incredible to see so many UK professionals involved in @aepcossociety on #PCOS #ECE2026 #becausehormonesmatter @eka_melson @SandroGraca @Devicollab @DaisyPcos
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DAISy-PCOS retweeted
Verity (PMOS UK)@veritypmosMay 12
PCOS has a new name. It will now be known as Polyendocrine Metabolic Ovarian Syndrome (PMOS). A change that accurately reflects the condition affecting 3.1 million women and girls in the UK. This is the largest global engagement ever for a medical name change.
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DAISy-PCOS retweeted
Verity (PMOS UK)@veritypmosMay 12
#PMOS is the new name for #PCOS it will allow for research and funding on this life long health condition #ece2026 #PCOSNameChange
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DAISy-PCOS retweeted
Verity (PMOS UK)@veritypmosMay 12
What’s next #PMOS #PCOSNameChange
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📢 PCOS NAME CHANGE! 📢 Polycystic Ovary Syndrome (PCOS) has been renamed Polyendocrine Metabolic Ovarian Syndrome (PMOS) to reflect the realities of the condition which affects 1 in 8 women. My statement on this important step forward 👇 💜 @veritypcos
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DAISy-PCOS retweeted
Verity (PMOS UK)@veritypmos14 Oct 2025
Registrations open soon for the #JLAPCOS webinar with @cardiffuni on #PCOS
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A big thank you to my local MP Laurence Turner @larry_turner for taking the time to respond to my invite & for joining us at the @APPG_PCOS report launch. I was pleased to have the opportunity to talk with you about #PCOS women’s health research & public engagement @unibirmingham
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Read the report here pcosappg.co.uk/2025-report-b… It features insights from one of our Hildas #PPIE advocates & @DAISyPCOS Leaders, Sunila! Thank you Sunila for all the work you’ve done with us on research engagement and involvement over the years! 🌼 #PCOSAPPG #pcosawarenessmonth 2/2
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Delighted to have been at the Houses of Parliament today with @DAISyPCOS 🌼for the launch of the @APPG_PCOS inaugural report outlining recommendations for reform on #PCOS diagnosis, treatment & care. Incredible work by @verity & collaborators to get to this point! #PCOSAPPG 1/2
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Great day at the QE hospital engaging #PCOS patients (& partners!) on a discussion about the ongoing Seva clinic pathway development led by @drpunith & @Devicollab team. Special thanks to Dani & Sunila for helping co-develop this event & for sharing their own stories! ✨
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DAISy-PCOS retweeted
Verity (PMOS UK)@veritypmos21 Aug 2025
Get your friends involved in helping with #pcos research with our friends at @DaisyPcos
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Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
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Amazing afternoon of patient engagement with the team @DaisyPcos
Caroline Gillett@cdtgillett28 Jul 2025
Thank you London! Another day of feedback from people with lived experience of PCOS for @DAISYPCOS #EMPOWERPCOS. We appreciate all the questions & suggestions received & will take them on board as we decision-make. Great to be joined by @carand2015 @veritypcos today as well! 😊
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Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀
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Enjoyable day indeed! Thank you @cdtgillett, Lida and Cadence for the support! @DaisyPcos
Caroline Gillett@cdtgillett25 Jul 2025
Thank you Birmingham attendees! Such a useful & enjoyable day getting your feedback @DAISyPCOS #EMPOWERPCOS. Special thanks @eka_melson for talking through plans & answering questions so thoroughly! Thanks Lida & Cadence for behind the scenes support! London… see you Monday! 😀
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We have 2 workshops for women with PCOS interested in helping us with planning a future PCOS research project - one workshop is in London, the other one is in Birmingham. Last chance to sign up, we are almost fully booked! Scan poster QRs for more information.
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Thank you @veritypcos for the opportunity to be part of today's excellent @APPG_PCOS oral evidence session focusing on #PCOSTreatment, chaired by @MichelleWelshMP. Very proud of @DAISyPCOS patient advocate Sunila who shared her powerful reflections. Informative talks from all 1/3
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DAISy-PCOS retweeted
Verity (PMOS UK)@veritypmos18 Apr 2025
Thank you to the 467 that have completed our survey. We need a minimum of 1000 from as diverse a group as possible. If you have #PCOS & live in the UK please share your experiences. Will only take 15 mins. Pls RT if you can!
Verity (PMOS UK)@veritypmos10 Apr 2025
Do you have #PCOS & live in the UK? Please take our #PCOSconsultation survey, which will help inform a ** PARLIAMENTARY INQUIRY** into diagnosis & management of PCOS in the #NHS. Take the survey: surveymonkey.com/r/ZX8DD85 Please share!
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Thank you so much for coming and contributing- you have done such great work in the field of #PCOS and #PCOSDiagnosis it was great to have you there
Caroline Gillett@cdtgillett23 Apr 2025
Thank you @veritypcos for the invitation to be part of the oral evidence session on #PCOSDiagnosis in parliament today, chaired by @fivanmierlo. Well done to all scientists & lived experience voices who shared powerful data & testimonials, including our #PPIE partner Sunila!
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