Mike Matters (@MikeMattersDMD) header
Mike Matters (@MikeMattersDMD) profile picture

Mike Matters

@MikeMattersDMD
 Scotland, United Kingdom
Joined May 2015
  • Tweets391
  • Following293
  • Followers149
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Photo by Mike Matters (@MikeMattersDMD)Photo by Mike Matters (@MikeMattersDMD)Photo by Mike Matters (@MikeMattersDMD)Photo by Mike Matters (@MikeMattersDMD)Photo by Mike Matters (@MikeMattersDMD)
Mike Matters retweeted
Muscle Owl (@MuscleOwl) profile picture
Muscle Owl@MuscleOwl10 Nov 2017
This weekend we’re at the @ActionDuchenne Conference. Stay tuned for updates on here and through Action Duchenne on Facebook!
Image from Muscle Owl (@MuscleOwl)
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Mike Matters at #ADConf17
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Mike Matters retweeted
IPPOSI (@IPPOSI) profile picture
IPPOSI@IPPOSI18 Oct 2017
.@AvrilKennan of @MRCGie - patients are experts too and they need to be involved in the medicines reimbursement process #access2meds
Image from IPPOSI (@IPPOSI)
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Mike Matters retweeted
Muscle Owl (@MuscleOwl) profile picture
Muscle Owl@MuscleOwl21 Oct 2017
Last year Michael Young campaigned to get #Translarna in Scotland. This year he wants it in Ireland! change.org/p/simon-harris-pl… #duchenne
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At #Translarna briefing in @OireachtasNews We need 2 catch up with the rest of Europe Maith thú @conwaywalsh 4 facilitating
Image from Louise O’Reilly TD for Dublin Fingal West (@loreillysf)
Image from Louise O’Reilly TD for Dublin Fingal West (@loreillysf)
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New: #ParliamentAdvocate4Rare, a network of EU & national members of parliament advocating for #raredisease ow.ly/liuF30fNw8R
Image from EURORDIS-Rare Diseases Europe (@eurordis)
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Mike Matters retweeted
Muscle Owl (@MuscleOwl) profile picture
Muscle Owl@MuscleOwl13 Oct 2017
This week @MDUK_News launched their new #FastTrack campaign for faster access to treatments. Sign the petition here change.org/p/theresa-may-mp-…
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#standwithlewis #Translarna Lewis and his family on TV tonight asking for medicine that is available in 22 European countries. tv3.ie/news_sub_page.php?vid…
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#standwithlewis
Mike Matters retweeted
Help4harry (@Help4harrynow) profile picture
Help4harry@Help4harrynow7 Oct 2017
Fellow tweeters pls sign this so the boys Ireland can start receiving #Translarna every day counts, they need this drug now thank you 💙 teapaw.org/MikeMattersDMD/status/…
Mike Matters (@MikeMattersDMD) profile pictureMike Matters@MikeMattersDMD6 Oct 2017
Please sign this petition. Little Lewis Harte is being denied Translarna. He is five years old and desperately needs this life enhancing medicine as quickly as possible. change.org/p/simon-harris-pl…
17,115 people signed and won this petition

17,115 people signed and won this petition

Please make Translarna available in Ireland to help boys with Duchenne Muscular Dystrophy

change.org
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Please sign this petition. Little Lewis Harte is being denied Translarna. He is five years old and desperately needs this life enhancing medicine as quickly as possible. change.org/p/simon-harris-pl…
17,115 people signed and won this petition

17,115 people signed and won this petition

Please make Translarna available in Ireland to help boys with Duchenne Muscular Dystrophy

change.org
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Managed Access Programme announced for Exondys51 by Sarepta Therapeutics. Suitable for deletions amenable to exon 51 investorrelations.sarepta.co…
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Mike Matters retweeted
RitchieH (@BacktotheEU) profile picture
RitchieH@BacktotheEU21 Mar 2017
Progress for VISION_DMD as trial sites expand internationally @BushbyKate @Vision_DMD @EU_H2020 #DMD #RD @findacure @trinds_nmd teapaw.org/trinds_nmd/status/8441…
TRiNDS (@trinds_nmd) profile pictureTRiNDS@trinds_nmd21 Mar 2017
Many new sites have been activated in the past week for our Reveragen study! Check out the exciting study updates... fb.me/5w8ETKoef
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Cross Party meeting for Muscular Dystrophy on Wednesday focused on Adult Services @markichapman @h0pefulmummy @ActionDuchenne @jackiebmsp
Image from Mike Matters (@MikeMattersDMD)
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What will you be doing for #RareDiseaseDay tomorrow?
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I've volunteered a few hours each month. So, if you are interested in helping get in touch with Fraser 👇 teapaw.org/cwafalkirk/status/8359…
CWA Falkirk (@CWAFalkirk) profile pictureCWA Falkirk@CWAFalkirk26 Feb 2017
We are recruiting Volunteer Trishaw Pilots - can you help? Get in touch with [email protected] for more information!
Image from CWA Falkirk (@CWAFalkirk)
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Mike Matters retweeted
Dean Widd (@Deanwidd) profile picture
Dean Widd@Deanwidd26 Feb 2017
Great to see so much support for today's @MDUK_News family fund Defeating Duchenne Kerr's Cause with #charity #football tournament
Image from Dean Widd (@Deanwidd)
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Please support Duchenne families in Ireland Here’s the link: change.org/p/hse-ireland-ple…
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Our boy is home 22 nights in hospital taken off traction now has a cast on #brokenfemursucks #braveboy #beatduchenne #stillsmiling
Image from Help4harry (@Help4harrynow)
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Potentially life-saving medication does no one any good if they cannot afford it.
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