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Joined July 2010
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Mesh
We need urgent care. All mesh injured do…. And it must happen now. Decades of waiting is taking its toll!!
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Was congratulated on my eloquent description of my mesh injuries and my ability to verbalize the impact on myself and my family.’Fluffing’ me won’t help me feel like the woman I should be.Real action will @scotgovhealth @HumzaYousaf @NicolaSturgeon @lsutherlandqc @MonicaLennon7
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So many women go into no man’s land for long periods of time. This is catastrophic for their overall well-being. We need joined up thinking here folks. I could recommend several women who could organise this for you??? @scotgovhealth
Replying to @honeyball69
@MBLacey @jenni_minto @nursenormski @InjuredMesh @ladymcbeth2 @hrhqlm @AnneMonie1 Whoever deals with the contracts, travel arrangements needs to get their act together and help those who were promised their choice of #mesh removal surgeon @WRNH63 my life is on hold 💔😭
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On paper and in the media this sounds like a done deal…. Except it’s not. Not one person has been referred to outside Scotland by the government. Not one. Let that sink in….
Sounds good to the outside world #mesh
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Absolutely Linda. We continue to be gaslighted by professionals. It’s absolutely not good enough. We know our own bodies!!
#mesh just to be believed wouldbe a start! #abdominalmesh
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The Truths of the Safety & Efficacy of Pelvic Mesh have not been told. Congress, FDA an Entire Medical Community and A Judicial System continues to perpetuate these Untruths, holding NO ONE Accountable. Mesh continues to be Implanted Destroying Lives Worldwide all for Profit.
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Many #Mesh victims remember the day a surgeon ruined their life without any warning of the potential devastating risks of the procedure. Surgeons who ignored warnings in the manufacturers manual & ignored NICE guidelines faced no retribution yet victims denied REDRESS by @GOVUK!
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Implementing of a more relaxed regulation system is a concern. Regulatory shortcuts compromising the quality and safety of medical devices will result in patient harm Already illustrated my surgical mesh @MHRAgovuk @sajidjavid link.springer.com/article/10…
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What is the care pathway for #mesh injured women in Scotland? #@meshinjuredscotland When are @scotgov and those staffing the complex mesh removal centre in Glasgow going to get their act together to give us the choice of treatment by trusted surgeons?
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Replying to @InjuredMesh
Women were told in July last year they would be able to request the surgeon of their choice for removal of mesh. Where is the pathway to allow these women to have this choice. More lives and bodies being destroyed whilst they wait. 😰😰
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A year down the line and we’re in exactly the same position as last year. It’s just not good enough #getamoveon
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No it didn’t help at all even with a referral to the mesh centre very few actual trust the surgeons there just wish Dr Veronikis was allowed to come to Scotland to train them in his mesh removal techniques 😩
Govt needs to support us #redress#resolution
We have supported patient engagement, patient voice… now start acting on what we have said! #mesh injured women need real help now! @scotgovhealth @HumzaYousaf @NicolaSturgeon
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Doctors don’t have to log healthcare treatment problems to the MHRA #YellowCard which means they’re able to say nonsense like this to patients. As said to a #mesh injured woman circa 2017
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#mesh what happens when you get a partial passed off as full removal leaves not a chance of getting rest out @ embedded to ur insides who will help me !!
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#mesh @InjuredMesh @HumzaYousaf @NicolaSturgeon It's been an absolutely beautiful day here on the Moray coast, but I haven't been able to get out there and enjoy a walk along the shore because of chronic pain due to mesh injury. ☹️☹️ When are we going to get the help we need?