JeniB #Trikafta in 2020 (@jenibev) header
JeniB #Trikafta in 2020 (@jenibev) profile picture
South East, England
Joined February 2009
Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)Photo by JeniB #Trikafta in 2020 (@jenibev)
JeniB #Trikafta in 2020 retweeted
ThankYou @EMA_News #Kaftrio #KaftrioNow Now do your thing all👇🏻👇🏻 @MattHancock @VertexPharma @NHSEngland @blakeydark @pmrleahy @cftrust @DavidRamCFT $vrtx @NICEComms @CommonsHealth We need an immediate #interimdeal on day 1 You u have up to 67 to secure it #saveCFlives 🙏🏻👊🏻
‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: ema.europa.eu/en/news/new-me…
JeniB #Trikafta in 2020 retweeted
.@MattHancock I need you to fight for #TrikaftaNow as my beautiful daughter is very ill She can’t access her usual #cysticfibrosis care at @KingsCollegeNHS due to #covid19 so 🙏🏻@EMA_News get this @VertexPharma drug licensed NOW @cftrust @blakeydark @pmrleahy $vrtx @ChrisMRiches
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JeniB #Trikafta in 2020 retweeted
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JeniB #Trikafta in 2020 retweeted
JeniB #Trikafta in 2020 retweeted
What excuse have you go to celebrate something with your friends? #birthday #wedding #cheerup #ilovecrackling #hogroast #PartyDownSouth
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Who’s got an excuse for a party? Why don’t you use @CracklingRosie2 Please follow their page....
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I pledge to reach out to someone for #CuppasTogether. How about you?

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JeniB #Trikafta in 2020 retweeted
Replying to @MattHancock
@MattHancock Thanks for continuing to support our CysticFibrosis campaign for #Trikafta as it’s so important we have these @VertexPharma game changers for all gene 🧬 mutations 50% are left behind at the moment which isn’t on, is it? So we need you to make sure it’s on #nhs soon
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Why should Darren have to beg, please save his life @VertexPharma @MattHancock
Still waiting on @VertexPharma to decide my fate. My life is in their hands, if they could only permit me to have #trikafta on compassionate grounds it will give me a second chance at life. Time is not on my side #DarrenCantWaite @JaneWaite19 @SimonBamber1 @ChrisMRiches
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i love these podcasts @JoshLJ24 - I found a great episode of The Determined Podcast. Listen along here: share.transistor.fm/s/a50943…
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Anyone interested in celebrating in style with a fully catered hog roast? If so, flip over to Facebook (twitter page to come) Cracklin Rosie...m.facebook.com/cracklin/?ref…
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Like the page and comment on the competition post, and you could have your very own Hog on them 👍
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Absolutely LOVE this!!! #cysticfibrosis
A piece I wrote for @cf_ireland on parental anxiety. Much as it’s something we wish we didn’t feel, it’s important we talk about it and support each other.
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