JeniB #Trikafta in 2020 retweeted
ThankYou @EMA_News
#Kaftrio
#KaftrioNow
Now do your thing all👇🏻👇🏻
@MattHancock @VertexPharma @NHSEngland @blakeydark @pmrleahy @cftrust @DavidRamCFT $vrtx @NICEComms @CommonsHealth
We need an immediate #interimdeal on day 1
You u have up to 67 to secure it
#saveCFlives 🙏🏻👊🏻
‼️ EMA recommended granting a marketing authorisation in the 🇪🇺 for Kaftrio, the first triple combination therapy for the treatment of #cysticfibrosis in #patients aged 12 years and older: ema.europa.eu/en/news/new-me…
JeniB #Trikafta in 2020 retweeted
.@MattHancock I need you to fight for #TrikaftaNow as my beautiful daughter is very ill
She can’t access her usual #cysticfibrosis care at @KingsCollegeNHS due to #covid19 so 🙏🏻@EMA_News get this @VertexPharma drug licensed NOW @cftrust @blakeydark @pmrleahy $vrtx @ChrisMRiches
Replying to @CFno1LeftBehind @Conservatives @scullyp @CrispinBlunt @VertexPharma @NHSEngland @blakeydark @pmrleahy @cftrust
Yes I will fight for it
JeniB #Trikafta in 2020 retweeted
Click on our webpage, view our menu, book a hog roast party - simples! #webpage #click #book #read #askmeanyquestionsyoumayhave #getready #celebrate #hogroast #applesauce #stuffing #behappy
Crackling-Rosie.co.uk
JeniB #Trikafta in 2020 retweeted
National Old Stuff Day #nationaloldstuffday #oldpicture #villagelife #ilovewhereilive #pembury #villagegreen #hogroast #party #birthday #wedding #applesauce #stuffing
JeniB #Trikafta in 2020 retweeted
Crackling-Rosie.co.uk #MeetTheArtist #meetthechef #hogroast #party #ilovecrackling #birthday #wedding
JeniB #Trikafta in 2020 retweeted
Stop Thinking & Start Booking #thursdayquotes #hogroast #ilovecrackling #stopthinking #startbooking #birthday #weddingfood #crackling
JeniB #Trikafta in 2020 retweeted
“There is no WE in food, so keep away from my plate” #ilovefood #ilovecrackling #hogroastcatering #birthday #wedding #parties #wednesdaywisdom #cracklingrosie
JeniB #Trikafta in 2020 retweeted
#pancakes #pancakeday #lemonandsugar #hogroast #hogroasts #ilovecrackling #cracklingrosie #birthday #wedding
JeniB #Trikafta in 2020 retweeted
What excuse have you go to celebrate something with your friends? #birthday #wedding #cheerup #ilovecrackling #hogroast #PartyDownSouth
Who’s got an excuse for a party? Why don’t you use @CracklingRosie2 Please follow their page....
I pledge to reach out to someone for #CuppasTogether. How about you?
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JeniB #Trikafta in 2020 retweeted
Replying to @MattHancock
@MattHancock Thanks for continuing to support our CysticFibrosis campaign for #Trikafta as it’s so important we have these @VertexPharma game changers for all gene 🧬 mutations
50% are left behind at the moment which isn’t on, is it?
So we need you to make sure it’s on #nhs soon
Boris Johnson: Approve the use of Trikafta in UK - Sign the Petition! chng.it/YSgjGf2L via @UKChange
Why should Darren have to beg, please save his life @VertexPharma @MattHancock
Still waiting on @VertexPharma to decide my fate. My life is in their hands, if they could only permit me to have #trikafta on compassionate grounds it will give me a second chance at life. Time is not on my side #DarrenCantWaite @JaneWaite19 @SimonBamber1 @ChrisMRiches
i love these podcasts @JoshLJ24 - I found a great episode of The Determined Podcast. Listen along here: share.transistor.fm/s/a50943…
Anyone interested in celebrating in style with a fully catered hog roast? If so, flip over to Facebook (twitter page to come) Cracklin Rosie...m.facebook.com/cracklin/?ref…
Absolutely LOVE this!!! #cysticfibrosis
A piece I wrote for @cf_ireland on parental anxiety. Much as it’s something we wish we didn’t feel, it’s important we talk about it and support each other.











