Steve Bartram ❤️💛🖤

Ignoring that mono HCV haemophiliacs had a disrupted education, thus having a knock on effect on their grades and careers. How could a multiple reinfected child have the same education as a “normal” uninfected child. Sir Brian picked up on this throughout the inquiry, it was even documented in a draft document sent out by @government when @NickTorfaen was the paymaster general. I know that the societies saw this along with another campaigner. It was then taken out, because it was seen an admission of liability that all multiply infected children would have struggled with reaching their full potential. Knowingly Infected multiple times as children, multiple exposure to viruses. Seriously unwell, coping with fatigue we too had no chance of a normal education reaching our full potential. @fionatwycross if this does not get revisited we have not been heard and understood. @andyburnham please fix this and give our Mono HCV community the justice the so rightly deserve. We highlighted this in our letter, for ease of reference I attach a scaled down version. @katehaemophili1 @HaemoSocUK @CliveEfford @IanByrneMP @IanLaveryMP @KieranMullanUK @sianberry @Gooders2023 @GraymF1 @LabLab15460 @DarcusWolfe @DHSCgovuk @cabinetofficeuk Robin Healey @IBCA_UK @IBCA_CEO_UK @DianaJohnsonMP

The sad truth of being drip fed government IOU’s. Many long standing haemophiliacs will not see their true losses compensated due to ill health and being infected numerous times with dirty cheap factor VIII @fionatwycross @cabinetofficeuk Robin Healey @IBCA_UK @IBCA_CEO_UK @sianberry @KieranMullanUK @ashishskynews

#NotRecognised mono HCV haemophiliacs #NotAnAccident Nothing for multiple re infection of HCV and impact on mono HCV haemophiliacs educational / childhood losses. Written into the draft document that was circulated to a chosen few, for then @GOVUK @cabinetofficeuk to realise that they made an admission of guilt that children infected multiple times would of had an impact on their education and a knock on effect with job prospects. @fionatwycross @andyburnham we ask you sit with @katehaemophili1 and MHH which is a group for mono infected HCV haemophiliacs to #FinishThisFight @KieranMullanUK @sianberry @CliveEfford @DianaJohnsonMP @IanLaveryMP @cazjwheeler HCV haemophiliacs are not the same as transfusion patients. The risk with every bottle of factor VIII was 100% transmission. Given for non life saving reasons. Giving us a life sentence !! Transfusion less than 1% risk. @Gooders2023 @steveb297 @LabLab15460 @GraymF1

#NotRecognised #NotAnAccident no parents were advised of the risks! Mild haemophiliacs pumped with factor VIII for joint pain, tooth extraction SAFE ddavp left on the shelf. They was walking experiments and mono HCV haemophiliacs have not been recognised for this abuse. I have photos of my husband yellow throughout his schooling. All ignored by the current scheme for mono HCV haemophiliacs. We are asking that @fionatwycross @andyburnham please re visit the financial losses for mono HCV haemophiliacs on the grounds stated in our letter MHH-010 and attached document. It is a simple ask that can be costed out and would mean that this cohort receives the justice they deserve @katehaemophili1 @ConanMci @KieranMullanUK @DianaJohnsonMP @GraymF1 @CliveEfford @IanLaveryMP @sianberry @HaemoSocUK @LabLab15460 @IBCA_CEO_UK @ibca @Gooders2023 @DarcusWolfe

@fionatwycross @andyburnham #FinishThisFight #NotRecognised Below are the issues that need addressing for Mono-HCV Haemophiliacs re financial losses and for ALL haemophiliacs on the issues re unethical research. There is no justice for us until the issues have been addressed and put right. @katehaemophili1 @ConanMci @IBCA_UK @IBCA_CEO_UK @cabinetofficeuk @CliveEfford @IanLaveryMP @KieranMullanUK @DianaJohnsonMP @ashishskynews @cazjwheeler @addresstheharm @HumanRightsCtte @guardian @TheNewsAgents @HackedOffHugh @LabLab15460 @GraymF1 @Gooders2023 @DarcusWolfe @DuryTerren13578 @addresstheharm @MoJGovUK

@andyburnham @DHSCgovuk @cabinetofficeuk #NotRecognised #NotAnAccident The scandal within a scandal @ashishskynews @cazjwheeler haemophiliac children used for human research … there is no case law to cite when dealing with this part of the scandal. The reason why is NO other country or government would allow such an heinous act. The U.K. Government is trying to sweep this part of the infected blood scandal under the carpet. This should not be allowed to take place. They need to go back and relook at this as a matter of urgency. They need to sit with people who understand the gravity of this scandal they need human rights lawyers involved, societies @katehaemophili1 and haemophilia campaigners. You need those who went through this to get a true understanding and to be involved. Not very well paid solicitors trying to silence us. We need this to never happen again !! @IBCA_CEO_UK @IBCA_UK @HaemoSocUK_PI @HaemoSocUK @HumanRightsCtte @GraymF1 @Gooders2023 @addresstheharm @LabLab15460

#NotAnAccident #NotRecognised The Haemophiliac story has been brushed under the carpet to stop the heinous acts of our government becoming common knowledge. Mono-HCV in the wrong tariff. Sir Brian recognised the differences between whole blood and haemophiliacs why didn’t you? @cabinetofficeuk @GOVUK Autonomy - this is far too low for ALL haemophiliacs. Was it a deliberate decision to go down the virus route rather than looking at the route of infection and its prevailing consequences. Thus wiping out the history and stigma ALL haemophiliacs suffered. Transfusion / whole blood community did not have the stigma that a medical identity bracelet had. They did now stand in front of the school assembly whilst the school was told to “be careful” around xyz. They were not ostracised from their community. They had their childhood and their autonomy. We did not….. @RupertLowe10 @KieranMullanUK @IanLaveryMP @IanByrneMP @CliveEfford @sianberry @katehaemophili1 @ConanMci @andyburnham @fionatwycross @jamesmurray_ldn @LouHaigh @IBCA_CEO_UK @IBCA_UK We ask that you relook at the scheme to include our suffering @Gooders2023 @GraymF1 @LabLab15460 @Haemosexual

Thoughout the inquiry Sir Brian Langstaff held a clear distinction between transfusion and factor victims. “They were a distinct population and a different route of infection”. “Many were infected during childhood” “The consequences extend beyond physical differences” The inquiry recognised the effects of being infected as a child, how it would have impacted education and future job prospects. This was the case for ALL haemophiliacs. Why are HCV infected not recognised within the current core route for this ? We have been put in with a cohort that does not recognised our true losses. Sir Brian’s findings have been ignored by @cabinetofficeuk @GOVUK and the previous Paymaster General. We ask @andyburnham to sit with our group MHH the only group for mono infected HCV haemophiliacs and @ConanMci @katehaemophili1 to rectify the issues we have. Stop this scandal within a scandal @IBCA_UK @IBCA_CEO_UK @DianaJohnsonMP @IanByrneMP @IanLaveryMP @CliveEfford @cazjwheeler @ashishskynews @addresstheharm @LabLab15460 @Gooders2023 @GraymF1 @DarcusWolfe @oeogovuk

@katehaemophili1 @ConanMci please can we see a copy of the letter that was sent in from the society. Many of our members are asking what it contained. Thank you @GraymF1 @Gooders2023 @steveb297 @DarcusWolfe @Haemosexual @GlennWilko58 @CliveEfford @HaemoSocUK @Factor8Campaign @JasonEvansF8 @NatashaPolitics

Mono HCV HAEMOPHILIACS in fact all HAEMOPHILIACS have been let down by the scheme. Reasons why:- - Years of state abuse, being studied and used for research without consent. - Department of Health, Government and clinicians turning a blind eye when risks were known. - Safer products such as cryro or DDAVP ignored. - Huge risks taken moving to larger pools. - Dangerous disease ridden Factor given for non life threatening reasons such as dental work, joint pains etc. - Clinicians not telling haemophiliacs of their viruses for years so that they could study the spread within families. - Infected numerous times over and over as children and effecting their education #NotRecognised for HCV haemophiliacs. - Stigma after the AD campaign run by Government. Which put fear into the wider community. This made EVERY haemophiliac a target. Still to this day people have to keep their haemophiliac status secret because of this. No haemophiliac has truly been compensated. The above is why we have not been recognised, in the rush to again sweep this under the carpet and to minimise government back lash. A scheme was set up the next day without sitting with haemophiliac campaigners and @katehaemophili1 and the @HaemoSocUK Without understanding. HCV haemophiliacs infected as children have been placed with HCV transfusion patients often given life saving treatment later in life. We are not the same. We ask the Minister @jamesmurray_ldn and the PM @andyburnham sit down with us. We need to #FinishThisFight that has been going on for decades. @ConanMci @KieranMullanUK @cabinetofficeuk @IBCA_CEO_UK @IBCA_UK @BBCHughPym @HaemophiliaIRL @GraymF1 @Haemosexual @CampaignTB @Factor8Campaign @LabLab15460 @DuryTerren13578 @DarcusWolfe @GlennWilko58

@ibca I have chased @IBCA_CEO_UK re opening the supplemental route (MHH-009), to run parallel with the current cohorts. It is important as a collective of living victims who are struggling mentally and physically with their infection and the aftermath of interferon we have closure. The supplemental route covers SCM, Exceptional Financial Losses, Unethical research and being able to join the Severe Health Condition Award. There is no reason for delaying the supplemental route! The regs have been passed there should be no issues. IBCA stated at a recent meeting that they have not looked into exceptional losses. Which means realistically that this could be years down the line, delaying compensation means the living infected cannot get full closure enabling them and their families to move on. We are asking IBCA to start planning and advising the community of a schedule of works re opening the supplemental route. @HaemoSocUK @HepatitisCTrust @CampaignTB @Factor8Campaign @GlennWilko58 @KieranMullanUK @IanLaveryMP @CliveEfford @sianberry

@andyburnham At the inquiry you said “what’s happened to people? What is the impact on their lives? What do they need? We are asking that you sit down with @katehaemophili1 @HaemoSocUK and other haemophilia campaigners. MHH have written to you and we are stating “We are not just HCV patients”. “We are haemophiliacs who were infected through our treatment”. “We grew up with haemophilia HIV/HCV fears, stigma, disrupted education and diminished opportunities”. “Our childhoods, education and working lives matter”. Don’t put us in a category that does NOT recognise that. @BBCHughPym @cazjwheeler @ellapickover @TheNewsAgents @NickFerrariLBC @guardian @ashishskynews @GraymF1 @Gooders2023 @IanByrneMP @KieranMullanUK @IanLaveryMP @sianberry @cabinetofficeuk @jamesmurray_ldn @CliveEfford @IBCA_CEO_UK @DianaJohnsonMP @ConanMci @HaemophiliaIRL

Well done @cabinetofficeuk for not understanding or acknowledging the damage done to haemophiliacs. We had hope at the end of the Inquiry findings that we would be acknowledged for all the wrong doing. We was wrong! @jamesmurray_ldn @DianaJohnsonMP @katehaemophili1 there is no justice for this community. Being paid per infection and not acknowledging the harm and risks knowingly inflicted on this cohort does not give us any closure. We ask that The Minister sits down with haemophilia campaigners and The Haemophilia society to get a true understanding of how wronged we feel. We did not have a chance of a “normal” childhood! The 80s and 90s were horrendous if you was a haemophiliac. Made worse by finding out those we trusted, our own consultants lied to us and used us for research. F8 and 9 given for non life threatening conditions such as joint pain and tooth extraction. Lives lost, families destroyed and those living with pain and a ticking time bomb of fear. No haemophiliac has been compensated for this abuse at the hands of @DHSCgovuk @GOVUK @andyburnham please #FinishThisFight #NotAnAccident #NotRecognised @GraymF1 @Clive_Smith_ @CliveEfford @Gooders2023 @DarcusWolfe @Haemosexual @JasonEvansF8 @Factor8Campaign @CampaignTB @GlennWilko58 @DuryTerren13578 @LabLab15460 @NowHillsborough

@cabinetofficeuk @jamesmurray_ldn There is a call for those implicit in the covering up of the contaminated blood scandal to have their peerage revoked. There was no apologies from Kenneth Clarke for how he treated the haemophiliac community and for his part in the deaths and long term suffering that this community has suffered. @andyburnham when you stated you want to #FinishThisFight did this include fixing the broken compensation scheme that has left haemophiliacs not being recognised for the high risk, often flippant use of F8 and f9 as well as stripping those complicit in this scandal of their peerage? Mono HCV haemophiliacs have NOT had their childhood losses recognised. Being infected as a child over and over again and being used for research is NOT the same as a life saving transfusion as an adult. NO haemophiliac has been recognised for the harm needlessly done to them. This was the state abusing a vulnerable cohort for research! Being paid per infection does not fix this community. We need recognition #NotRecognised #NotAnAccident @IBCA_CEO_UK @IBCA_UK @katehaemophili1 @HaemoSocUK @IanByrneMP @CliveEfford @GraymF1 @Gooders2023 @steveb297 @DarcusWolfe @DuryTerren13578 @Haemosexual @DianaJohnsonMP @addresstheharm @maitlis @JasonEvansF8 @ashishskynews @NickFerrariLBC The Scandal within a Scandal!!!

@andyburnham #FinishThisFight #NotRecognised #NotAnAccident in a recent @IBCA_UK meeting it was noted that they are not waiting on further regulations to open and start processing exceptional loss of earnings. So what is the delay ? Dare it be that if whilst waiting a person dies that claim dies with them @katehaemophili1 @CliveEfford @IBCA_CEO_UK surely this is not fair just! Or could it be that the delay in opening this route will save @cabinetofficeuk @jamesmurray_ldn money in the hope that people won’t live long enough to see their true losses recognised? @milnerslaw @Collins_Law @Gooders2023 @GraymF1 @steveb297 @Haemosexual @GlennWilko58 @DarcusWolfe @DanStocks5

Compensation in government IOU’s is keeping us tied to our abusers. As stated in a recent meeting @IBCA_UK are NOT waiting for more regulations to open “exceptional losses” @milnerslaw There is no reasons why victims should have to wait. Only that is is buying government time. Time that living infected victims do not have @IBCA_CEO_UK @jamesmurray_ldn @cabinetofficeuk please do the right thing and end this trauma and allow those living infected to enjoy what time they have left with compensation that is rightfully theirs. @Gooders2023 @GraymF1 @DianaJohnsonMP @steveb297 @LabLab15460 @DarcusWolfe @CliveEfford @katehaemophili1 @HaemoSocUK_PI @Factor8Campaign

@cabinetofficeuk Louise Haigh this shows the contempt @DHSCgovuk @HumanRightsCtte had for haemophiliacs. This now continues into today by not recognising the journey and abuse this vulnerable cohort has been put through. We are not the same as whole bloods who had a chance to enjoy their childhoods without stigma and pain. Who had a chance to have a full education and enter the job world. We did not have this…. This has not been recognised we have no closure #NotAnAccident #NotRecognised #FinishThisFight @katehaemophili1 @HaemoSocUK @Factor8Campaign @JasonEvansF8 @IBCA_CEO_UK @IBCA_UK @GraymF1 @Gooders2023 @steveb297 @GlennWilko58 @LabLab15460 @DuryTerren13578 @CliveEfford @andyburnham @Haemosexual @DianaJohnsonMP @IanByrneMP There is a scandal within the compensation scheme @ashishskynews campaigners were not consulted before the scheme was announced. There was no input or insight from those at the very heart of this scandal.

The speed of which compensation is reaching victims is not acceptable. At this rate it will take years to get full compensation paid out. It also needs to be noted that living infected have not been paid in full and are having to re live their horrific stories when applying later down the line for government “IOU’s” aka compensation. In a court case they would have received their compensation as one payment. Doing it in dribs and drabs not only means having to be re traumatised the victim time and time again going over and collating information to hand to our abusers…. But it also means we cannot move on and make decisions of what to do with the rest of our lives. We need to be compensated in full and allowed to move on. This scheme is cruel the only winners being IBCA staff with their huge salaries and 28.9% pension. Something which those people who worked like myself had to give up once they stoped working to look after their partners. Which isn’t compensated for! At the current speed ibca are going at, by the time they open the supplemental route for exceptional loss of earnings (the bulk of many victims claim) it will be too late for most of the living infected victims to enjoy. Plus if they die whilst waiting the claim dies with them. Which is convenient for @NickTorfaen @_Government_UK @IBCA_CEO_UK #NotRecognised #FinishThisFight

Sir Brian Langstaff (on the pervasive medical/state cover-up): "Was there a cover-up? ...there has been. Not in the sense of a handful of people plotting in an orchestrated conspiracy to mislead, but in a way that was more subtle, more pervasive and more chilling in its implications. To save face and to save expense, there has been a hiding of much of the truth.” Haemophiliacs have been ignored throughout the compensation scheme. This vulnerable cohort were knowingly abused by the state who they trusted. Used for research, lied too, lives were cut short, families ripped apart, children were persecuted and vilified. Education and job prospects affected and all were impacted NONE of this has been addressed. We ask you @andyburnham to #FinishThisFight and for @NickTorfaen to recognise MHH within the core route. We are not the same as adult transfusion victims. Our losses are #NotRecognised @katehaemophili1 @ConanMci @IBCA_CEO_UK @theresa_may @HaemoSocUK_PI @JasonEvansF8 @Factor8Campaign @HaemoSocUK @Gooders2023 @steveb297 @GraymF1 @GlennWilko58 @DuryTerren13578 @LabLab15460 @DarcusWolfe