
Bit of patient knowledge/experience 2 transplants 39yrs Dx Wilson's disease. Creaky joints. Complex illness Coproduction. QI #RareDisease #Candour. Like history
N Ireland
Joined June 2012
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In past 2 weeks I was dropped at the door of BCH Tower Block, Belfast.
Made my way to the 11th Floor.
A nurse walked me down to my family 5 days later after a second kidney transplant.
Again indebted to a donor, their family & the magnificent BCH multi-disciplinary renal team.
Carol McCullough π¦ β‘π¬πΏ retweeted
BREAKING NEWS! Serious Disorder breaks out on the London Underground Northern Line this afternoonππ€·ββοΈπ
Carol McCullough π¦ β‘π¬πΏ retweeted
Why should the organisation responsible for a patient's care also control the evidence used to investigate that care?
When the institution under scrutiny holds the records, controls the audit trail and verifies its own account, who independently verifies the truth?
#PatientSafety #addresstheharm
I can be quite affable when a big fat lie about my diagnosis and inappropriate attacks on my character, are not being accepted.
This is where being given the silent treatment does not work.
Iβm not shutting up until there is #,Candour about what happened.
Vive la rΓ©volution
MLA inaction enables the practice of overlooking concerns raised & is dismissive of the Independent Neurology Inquiry findings @RobbieButlerMLA
This is how people are harmed & scandals evolve
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
Have you found out if Dr Hagan still insists on accepting complaint findings given what he knows about them @RobbieButlerMLA
Gives a very negative image of his Trust.
And I have witnesses
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
Iβll still see the dental hygienist
I also have a broken back tooth. Not giving bother but dentist said it could lead to an infection in the nerve. Theyβll only know if another type of x-ray is carried out.
All on hold.
So, much for transplant patients looking after their teethπ‘
Replying to @HSJnews
Transplant patients R supposed to see a dental hygienist every 3 months. Β£200 p a.
Dentist checkup this morning. Only private now. Β£80 - check-up & x-rays.
Need 2 fillings. Β£370. My other bills have skyrocketed. Had to say no. Joined waiting list for private plan. Told itβs long.
Carol McCullough π¦ β‘π¬πΏ retweeted
Vulnerable patientsβ long dental waits βburiedβ ift.tt/El0YbA6
Carol McCullough π¦ β‘π¬πΏ retweeted
Replying to @nickbostock
Carol McCullough π¦ β‘π¬πΏ retweeted
Absolutely agree, #whistleblowing protection is just smoke and mirrors. #FTSU just part of the facade.
Replying to @Victoria_Rixon @UKChange
The Protection for NHS whistleblowers is supposedly there but really it is a Pied Piper situation to make you think you were safe when really, once you blew the whistle you were identified as an 'Enemy' IMO
@CompassnInCare @TheHonestDr @DrMohammadIAdi1 @DrTeckKhong @jem
Carol McCullough π¦ β‘π¬πΏ retweeted
The time is now. RFK Jr. must resign or be fired. End of discussion.
Carol McCullough π¦ β‘π¬πΏ retweeted
Covid damages the heart. Even mild infections can do so. οΏΌ
Media and government seem unwilling to make it clear.
The BHF acknowledges this itself.
Iβm afraid weβre living in a time of collapsed public health and an unwillingness to treat the public like adults and tell them the truth about scary things.
οΏΌ
Still no response from MLAs
#HopeNotFear
Your silence is putting people at risk.
I donβt know if itβs due to fear. Only you can explain.
However, you're not protecting patients & until you speak up it's not candour
@RobbieButlerMLA #HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
Carol McCullough π¦ β‘π¬πΏ retweeted
NHS MADE HER SIGN A GAG ORDER. PARLIAMENT PROMISED TO STOP IT. BOTH LIED.
Sue Allison was a breast radiographer at University Hospitals of Morecambe Bay NHS Trust (@UHMBT) for nearly two decades. In 2012, she reported a senior radiologist who was repeatedly failing to diagnose women with breast cancer.
Two of those women died from cancers that should have been caught.
What happened next is the NHS playbook, start to finish.
She was ostracised. Bullied. Pushed out of her department. Blacklisted across the NHS so thoroughly that job applications in hospitals as far away as Kingston triggered questions about her whistleblowing.
She described her reputation as "absolutely destroyed."
After 34 years in the profession, she will never work in it again.
In 2015, with no legal advice, she was pressured into signing not one but two NDAs. The trust used those agreements to try to stop her from ever bringing a claim against them.
An employment tribunal later ruled both NDAs void. The judge found she had a clear case of whistleblower detriment.
By 2019, her case had reached Parliament.
Health Secretary Matt Hancock (@MattHancock) personally cited Sue Allison's NDAs in the House of Commons and declared he was "determined to end" the injustice of gagging NHS whistleblowers.
The ban was never enforced. Six years later, it still hasn't been.
She eventually settled her detriment claim in 2020 for financial compensation after admitting she would have had to sell her house to fund a full tribunal.
The trust thanked her for raising concerns. The same trust that silenced her for eight years.
She wasn't done. She became a governor of the same trust, trying to hold it to account from the inside.
In May 2023, she resigned. The bullying culture, she said, had never changed.
Governors asking legitimate questions about patient safety were being suppressed and eventually dismissed.
This case runs from 2012 to 2023. Eleven years. Same trust. Same culture. Same result for the people who spoke up.
The Morecambe Bay maternity scandal. The urology cover-up. The disputed emails. Peter Duffy. And Sue Allison, running through all of it, trying to hold the line, watching the institution close ranks every time.
Sources: @ComputerWeekly, @BylineTimes, Lancaster Guardian, @IndexCensorship,
Carol McCullough π¦ β‘π¬πΏ retweeted
βDaddy, am I going to die?β
A question my 11 year old Daughter asked me that still haunts me every single day.
My hope is that the general public will finally understand how devastating #ChildhoodCancer truly is & how desperately we need their support if real change is ever going to happen in our community.
If you care about Children battling cancer, please follow & become a voice for them. ππ»
β€οΈ πππ½πππ β€οΈ
#Forever13
Carol McCullough π¦ β‘π¬πΏ retweeted
A key finding from the Neurology Inquiry.
This finding also would apply to adult safeguarding at Muckamore Abbey Hospital
When Dr Hagan used complaint findings that don't exist, & those that were heavily criticised, to claim an apology wouldn't concur with them
Loads more & new
Enough for today
@RobbieButlerMLA
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
ALERT.
THE TRUST ACCEPTS BLAME THE HARMED PATIENT
Iβve only e-mailed you twice @RobbieButlerMLA
You havenβt responded.
Others in this post can fill you in on full docs youβve not received.
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
U might remind Dr Hagan accepting complaint findings, where the drβs statement doesnβt concur with his clinic letter, might give the impression he's trying to bury the truth @RobbieButlerMLA
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP
Tip of the iceberg but U could find out if Dr McDougall still believes heterozygotes can have eye changes
If not ask why heβs not acknowledged problems he caused & apologised @RobbieButlerMLA
#HopeNotFear
@mcguigan_philip
@DannyDonnelly1
@NualaMcAllister
@DianeDoddsMLA
@ColinSDLP

























